Browse Items (71 total)
- Tags: Medical
Multidisciplinary Health Care Professionals' Perceptions About Pediatric End of Life Discussions: A Cross-Sectional Survey and Needs Analysis
The COVID-19 pandemic: A rapid global response for children with cancer from SIOP, COG, SIOP-E, SIOP-PODC, IPSO, PROS, CCI, and St Jude Global
Tags: 2020, Acute Lymphoblastic Leukemia, Baker J N, Balduzzi A, Basset-Salom L, Betacoronavirus, Bouffet E, Burkitt lymphoma, Caniza M, Challinor J, Child, Childhood Cancer, Consensus, Coronavirus Infections/*epidemiology, COVID-19, Disease Management, Fuchs J, Hawkins D S, Hessissen L, Hodgkin lymphoma, Humans, Kearns P, Kebudi R, Khan M S, low-grade glioma, Luna-Fineman S, Marcus K, Medical, Medical Oncology, Morrissey L, Neoplasms/complications/diagnosis/*therapy, nephroblastoma, Oncology 2020 List, Pandemics, Pediatric Blood and Cancer, Pediatrics, Pneumonia, Pritchard-Jones K, retinoblastoma, Rodriguez-Galindo C, SARS-CoV-2, Societies, Sullivan M, Sullivan R, Viral/*epidemiology, WHO Global Initiative on Childhood Cancer, Wilms tumor
Sleep problems in individuals with 11q terminal deletion disorder (Jacobsen syndrome)
Tags: 11q terminal deletion disorder, 2008, Behavior, Biotechnology & Applied Microbiology, Braam W J, characteristics, Children, Curfs L M G, Didden R, Disabilities, disturbance, Ethics, Genetic Counseling, Genetics & Heredity, Grossfeld P D, Jacobsen syndrome, Korzilius H, Maas A, Medical, Questionnaire, Research & Experimental Medicine, Sleep, sleep disturbance/disorders, sleep problems, Smits M G, Trajectory
Teachers communicating about life-limiting conditions, death and bereavement
[Pediatric palliative care: A national survey of French pediatric residents' knowledge, education, and clinical experience]
Pediatric palliative care and pediatric medical ethics: opportunities and challenges
The duty of the physician to care for the family in pediatric palliative care: context, communication, and caring
Judging the quality of mercy: drawing a line between palliation and euthanasia
Tags: 2014, 20th Century, Assisted, Backlog, Child, Ethics, Euthanasia, History, Humans, Journal Article, Kang TI, Medical, Morrison WE, Palliative Care, Passive, Pediatrics, Suicide
Unilateral pediatric "do not attempt resuscitation" orders: the pros, the cons, and a proposed approach
Medical ethics in pediatric critical care
Tags: 2013, Backlog, Child, Clinical, Critical Care, Critical Care Clinics, Decision Making, Dissent And Disputes, Ethics, Ethics Committees, Humans, Journal Article, Medical, Morrison WE, Orioles A, Parental Consent, Patient Rights, Pediatrics, Personal Autonomy, Professional-family Relations, Resource Allocation, Terminal Care, Tissue and Organ Procurement, Truth Disclosure, United States, Withholding Treatment
The attitudes of neonatal professionals towards end-of-life decision-making for dying infants in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Backlog, Chang YC, Chen CH, Clinical, Continuing, Cross-sectional Studies, Decision Making, Education, Ethics Committees, Female, Hospital, Huang L-C, Humans, Infant, Intensive Care Units, Journal Article, Journal of Medical Ethics, Lee Ho-Yu, Liu Hsin-Li, Male, Medical, Medical Staff, Middle Aged, Neonatal, Neonatology, Newborn, Nursing Staff, Peng Niang-Huei, Questionnaires, Referral And Consultation, Resuscitation Orders, Self Report, Taiwan, Terminal Care, Wang Teh-Ming, Withholding Treatment
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Using drugs to end life without an explicit request of the patient
Tags: 2007, 80 And Over, Adolescent, Adult, Aged, Assisted/ethics/legislation & jurisprudence/psychology, Backlog, Belgium, Bilsen J, Death studies, Decision Making, Denmark, Ethics, Euthanasia/ethics/legislation & jurisprudence/psychology, Female, Fischer S, Humans, Informed Consent, Intention, Journal Article, Male, Medical, Mental Competency/legislation & jurisprudence, Miccinessi G, Middle Aged, Netherlands, Norup M, Onwuteaka-Philipsen BD, Patient Participation/legislation & jurisprudence/psychology, Physician's Practice Patterns/ethics, Questionnaires, Rietjens JA, Suicide, Switzerland, Terminal Care/ethics/legislation & jurisprudence/psychology, van der Heide A, van der Maas PJ, van der Wal G, Vrakking AM
Staff experiences with end-of-life care in the pediatric intensive care unit
Tags: 2008, Backlog, Dupree CY, Grief, Hospital/psychology, Humans, Intensive Care Units, Interviews as Topic/methods, Journal Article, Journal of Palliative Medicine, Lee KJ, Medical, Medical Staff, Pediatric, Professional-patient Relations, Psychological, Stress, Technology, Terminal Care/ethics/methods
Training in difficult conversations: a national survey of pediatric hematology-oncology and pediatric critical care physicians
Tags: 2009, Backlog, Communication, Critical Care, Education, Fellowships And Scholarships, Female, Gyi L, Health Care Surveys, Hematology, Humans, Journal Article, Journal of Palliative Medicine, Kersun L, Male, Medical, Medical Oncology, Morrison WE, Pediatrics, Physicians, Teaching, Truth Disclosure
Are we training our fellows adequately in delivering bad news to patients? A survey of hematology/oncology program directors
Tags: 2009, Attitude Of Health Personnel, Backlog, Butera JN, Castillo J, Communication, Data Collection, Education, Fellowships And Scholarships, Graduate/economics/standards, Hebert HD, Hematology/education, Humans, Journal Article, Journal of Palliative Medicine, Medical, Medical Oncology/education, Mega AE, Physician-patient Relations, Truth Disclosure, United States
Finding the right words: using the terms allow natural death (AND) and do not resuscitate (DNR) in pediatric palliative care.
Tags: 2008, Backlog, Christie LA, Communication, DNAR, Education, Greathouse J, Health Care Surveys, Higgerson RA, Hospitals, Humans, Intensive Care Units, Jones BL, Journal Article, Journal For Healthcare Quality, Legett S, Medical, Palliative Care, Parker-Raley J, Pediatric, Resuscitation Orders, Terminal Care, Terminology as Topic
The prevalence of and survival in Mucopolysaccharidosis I: Hurler, Hurler-Scheie and Scheie syndromes in the UK
Tags: 2008, Adolescent, Adult, Backlog, Child, Connock MJ, Demography, England/epidemiology, Humans, Journal Article, Kaplan-Meier Estimate, Lavery C, Medical, Moore D, Mucopolysaccharidosis I/epidemiology/mortality/physiopathology, Orphanet Journal Of Rare Diseases, Phenotype, Prevalence, Registries, Societies, Wales/epidemiology, Wraith E
Clinical report--Forgoing medically provided nutrition and hydration in children
Tags: 2009, Adolescent, Adult, American Academy of Pediatrics, Backlog, Botkin JR, Child, Committee on Bioethics, Diekema DS, Disabled Children/legislation & jurisprudence, Ethics, Feeding Methods/ethics, Fluid Therapy/ethics, Humans, Infant, Journal Article, Legal Guardians/legislation & jurisprudence, Medical, Medical Futility/ethics/legislation & jurisprudence, Newborn, Pediatrics, Preschool, Risk Assessment/legislation & jurisprudence, Terminal Care/ethics/legislation & jurisprudence, Treatment Refusal/ethics/legislation & jurisprudence, United States, Withholding Treatment/ethics/legislation & jurisprudence
Pediatric clinical research networks: current status, common challenges, and potential solutions
Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs
Tags: 2005, Adolescent Transitions, Adult, Allada V, Backlog, Cardiology/education, Chang RK, Child, Child JS, Congenital, Data Collection, Education, Educational, Fellowships And Scholarships, Graduate/economics/standards, Gurvitz MZ, Heart Defects, Humans, Journal Article, Journal of the American College of Cardiology, Klitzner TS, Medical, Models, Pediatrics/education, Program Evaluation, Ramos FJ, United States
A paradigm of integrative care: healing with curing throughout life, "being with" and "doing to"
An update on master's degrees in medical education
Palliative care for infants, children, adolescents, and their families
Tags: 2006, Adolescent, Backlog, Child, Decision Making, Ethics, Health Services Accessibility, Himelstein BP, Humans, Infant, Journal Article, Journal of Palliative Medicine, Medical, Newborn, Palliative Care, Parent caregivers, Pediatrics, Preschool, Professional-family Relations, Professional-patient Relations
A course on the transition to adult care of patients with childhood-onset chronic illnesses
Tags: 2005, a common genetic disease with increasing life expectancy, Academic Medicine, Adolescent Adolescent Health Services/standards/trends Adult Child Child Health Services/standards/trends Child, an(TRUNCATED), and decision making in end-of-life issues. Cystic fibrosis, and group discussions are presented as teaching methods. Key insights based on experience with the course are the need to include the voices of patients and families, and many specialty organizations have endorsed this concept, and the insight that problems specific to transition offer into contemporary health care financing. Future studies should measure the impact of such courses on students' knowledge of transition issues, Backlog, begun in 2001 at their institution, cultural competence, emphasizing patient and family-centered care, Hagood JS, interviews with youth with special health care needs and family caregivers, is used as the model for the course. Involvement of interdisciplinary faculty, Journal Article, Lenker CV, making their transition to adult systems of care an issue that will affect almost all physicians. However, many adult generalists and specialists are not familiar with the management of chronic diseases that begin in childhood. While the public health system has made transition to appropriate adult care a priority, Medical, PedPal Lit, Preschool Chronic DiseaseClinical CompetenceContinuity of Patient CareCurriculum Education, readings from academic and nonacademic literature, that addresses the transition for youth with special health care needs, the use of faculty from various professions and specialties to model interdisciplinary care, there are no published studies addressing how the concept of transition can be taught to medical students or residents. The authors describe a one-week course for medical students, Thrasher S, Undergraduate Family Practice/standards/trends Female Health Services Needs and Demand Humans MaleQuality of Health Care Survivors United States%X Children with special health care needs born today have a 90% chance of surviving into adulthood
Nutrition support for neurologically impaired children: a clinical report of the North American Society for Pediatric Gastroenterology, Hepatology, and Nutrition
Tags: 2006, Backlog, Bone Diseases, Child, Children W/SNI, Committee on Nutrition NASPGHAN, Growth Disorders/diet therapy, Humans, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Malnutrition/diet therapy, Marchand V, Medical, Metabolic/diet therapy, Micronutrients/deficiency, Motil KJ, Nervous System Diseases/diet therapy, North America, Nutrition Assessment, Nutritional Failure, Nutritional Status, Nutritional Support/methods, Patient Care Team, Societies
Transitional medicine: will emergency medicine physicians be ready for the growing population of adults with congenital heart disease?
Tags: 2006, Adolescent Transitions, Adult, Backlog, Congenital/therapy, Cross KP, Cross-sectional Studies, Education, Educational Measurement, Emergency Medicine/education, Emergency Service, Graduate, Heart Defects, Hospital, Humans, Internship And Residency, Journal Article, Medical, Pediatric Emergency Care, Santucci KA, Survivors
Ethical concerns regarding guidelines for the conduct of clinical research on children
Social network analysis as an analytic tool for interaction patterns in primary care practices
Tags: 2005, Annals Of Family Medicine, Backlog, Crabtree B, Crosson JC, Decision Making, DiCicco-Bloom B, Family Practice/organization & administration, Interprofessional Relations, Journal Article, Medical, Models, O'Malley D, Orzano AJ, Practice Management, Primary Health Care/organization & administration, Process Mapping, Scott J, Shaw E, Stroebel C, Tallia A, Theoretical
New and lingering controversies in pediatric end-of-life care
Tags: 2005, Analgesics, Attitude Of Health Personnel, Backlog, Child, Data Collection, Dokken DL, Fleischman AR, Heller KS, Hospital/psychology, Humans, ICU Decision Making, Journal Article, Levetown M, Life Support Care, Medical, Medical Futility, Medical Staff, Nurses/psychology, Opioid/therapeutic use, Pain/drug Therapy, Pediatrics, Practice Guidelines, Rushton C, Sellers DE, Solomon MZ, Specialties, Terminal Care/psychology, Truog RD, Withholding Treatment
Report of the National Heart, Lung, and Blood Institute Working Group on research in adult congenital heart disease.
Tags: 2006, Adolescent Transitions, Adult, Backlog, Barst RJ, Cardiology -- Manpower, Cardiology/education, Child JS, Congenital -- Diagnosis, Congenital/therapy, del Nido P, Gersony WM, Heart Defects, Human, Journal Article, Journal of the American College of Cardiology, Kuehl KS, Landzberg MJ, Medical, Myerson M, Neish SR, Pearson GD, Research, Risk Factors, Sahn DJ, Tetralogy of Fallot -- Diagnosis, Tetralogy of Fallot -- Therapy, Transposition of Great Vessels -- Diagnosis, Transposition of Great Vessels -- Therapy, Verstappen A, Warnes CA, Webb CL, Williams RG
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors
For purposes of research, palliative care patients should not be considered a vulnerable population
Tags: 2004, Backlog, Berry SR, Biomedical and Behavioral Research, Biomedical Research/ethics, Clinical Oncology, Death and Euthanasia, Ethics, Guidelines As Topic, Humans, Journal Article, Medical, Multi-site Ethics, Neoplasms/therapy, Palliative Care/ethics/trends, Patient Advocacy, Prejudice, Terminology as Topic, Vulnerable Populations
Ethical issues in pediatric critical care neurology
Tags: 2004, Backlog, Biomedical and Behavioral Research, Child, Critical Care/ethics, Death and Euthanasia, Ethics, Health Care and Public Health, Humans, ICU Decision Making, Informed Consent, Intensive Care Units/ethics, Journal Article, Jurisprudence, Medical, Medical Futility, Neurology/ethics, Pediatrics, Professional Patient Relationship, Research, Seminars In Pediatric Neurology, Shevell M
The ethics of withholding/withdrawing nutrition in the newborn
Motility disorders in childhood: Working Group Report of the First World Congress of Pediatric Gastroenterology, Hepatology, and Nutrition
Tags: 2002, Backlog, Child, Child Nutrition Physiology, Constipation/physiopathology, Cucchiara S, Di Lorenzo C, Diarrhea/physiopathology, Esophageal Motility Disorders/physiopathology, Gastroenterology, Gastroesophageal Reflux, Gastrointestinal Diseases/physiopathology, Gastrointestinal Motility, Humans, Intestinal Obstruction, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Medical, Milla P, Practice Guidelines, Research, Rivera NM, Rudolph C, Societies, Tomomasa T, Vomiting
Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
Tags: 2003, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Data Collection, Decision Making, Ethics, Euthanasia, Female, Hardart GE, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care, Journal Article, Legal Guardians, Male, Medical, Mental Competency, Middle Aged, Morals, Newborn, Passive, Professional-family Relations, Religion and Medicine, Teaching, Truog RD, United States
Coordinating the norms and values of medical research, medical practice and patient worlds-the ethics of evidence based medicine in orphaned fields of medicine
Tags: 2004, Allied Health Occupations/ethics, Analytical Approach, Attitude To Health, Backlog, Clinical Competence, Cognitive Therapy/ethics, Delivery of Health Care, Ethics, Evidence-Based Medicine/ethics, Health Care and Public Health, Houtepen R, Humans, Integrated/ethics, Interprofessional Relations/ethics, Journal Article, Journal of Medical Ethics, Logic, Medical, Models, Patient Care Team/ethics, Personal Autonomy, Physical Therapy Modalities/ethics, Social Justice/ethics, Social Responsibility, Theoretical, Vos R, Willems D