Browse Items (69 total)
- Tags: Canada
Balancing pandemic public health restrictions and family support at the end of life: palliative care and bereavement experiences of parents whose child died during the COVID-19 pandemic
Tags: 2023, Adolescent, Article, Bereavement Support, BMC Palliative Care, Canada, Child, Chronic Disease, Controlled Study, Coping Behavior, coronavirus disease 2019, family support, February List 2024, Female, Health Care Access, health care facility, Health Care Policy, Health Service, Health Status, Human, Infant, Infection Control, Interview, Male, Nicholas DB, Palliative Therapy, Pandemic, Parental Attitude, Personal Experience, physical activity, Public Health, Qualitative Research, Rapoport A, Risk Assessment, Social Support, Terminal Care, Zulla RT
Pediatric palliative care in Canada
The meaning of dying and death for children, their carers, and families: a scoping review
An innovative hybrid palliative care fellowship program: empowering pediatricians and enhancing care for children in resource-limited settings
Tags: 2023, 2023 SE5 - Low Resource Setting, Archives of Disease in Childhood, Bangladesh, Brown S, Canada, career, Child, Child Health, clinical examination, conference abstract, Controlled Study, Doherty M, Female, Human, India, Leadership, Learning, Major Clinical Study, Male, mentor, Palat G, Palliative Care, Palliative Therapy, Pediatrician, Pediatrics, Philippines, resource limited setting, rigor, Rotation, running, Shah A, Skill, Southeast Asia, Teaching, Total Quality Management
Supportive care for cancer-related symptoms in pediatric oncology: a qualitative study among healthcare providers
Tags: 2023, 2023 SE3 - Oncology, acupressure, Acupuncture, Acute Lymphoblastic Leukemia, Adult, Aged, alternative medicine, anxiety, Arcury TA, Aromatherapy, Article, BMC Complementary Medicine and Therapies, Canada, Cancer Chemotherapy, Cancer Therapy, Childhood Cancer, Clinical Article, Constipation, Content Analysis, dietitian, Education, Fatigue, Female, Germany, Health Care Personnel, Human, insomnia, Integrative Medicine, Interview, Jong MC, Kristoffersen AE, Leukemia, Male, Massage, Mora DC, Music Therapy, Nausea, Netherlands, Norway, Nurse, Palliative Therapy, Philosophy, Play Therapy, Professional Practice, psychodrama, Qualitative Research, Quality Of Life, Quandt SA, Semi Structured Interview, Stub T, United States, vincristine, Vomiting
What constitutes meaningful engagement for patients and families as partners on research teams?
Tags: 2018, 2023 SE1 - Parent Perspectives, Adult Aged, Aged, Attitude To Health, Black A, Canada, Caregivers, Chang W, Charlton SG, Family and Patient Participation, family engagement, Hamilton C, Journal of Health Services Research & Policy, McNamee K, patient engagement in research, Patient experience, patient-oriented research, Psychology, Qualitative, Research Subjects, Researcher-Subject Relations, Strain K, Wallsworth C, Young Adult
Children's perspectives on the benefits and burdens of research participation
Tags: 2018, 2023 SE1 - Parent Perspectives, Adolescent, AJOB empirical bioethics, Attitude, Barned C, benefits burdens, Canada, Child, Child Health, Children, Chronic Disease, Delivery of Health Care, Dobson J, Emotions, Ethics, Female, health care systems, Humans, Inflammatory Bowel Diseases, Informed Consent By Minors/psychology, Learning, Mack D, Male, Motivation, O'Doherty KC, Patient Participation, psychology Qualitative Research, Research, Research Subjects, Stintzi A
Clinician views on and ethics priorities for authorizing medical cannabis in the care of children and youth in Canada: a qualitative study
Ensuring Equity and Inclusion in Virtual Care Best Practices for Diverse Populations of Youth with Chronic Pain
Tags: 2022, Adolescent, April 2022 List, Backlin G, Birnie KA, Canada, Chronic Pain, COVID-19, Gavin F, Harris C, Healthcare Quarterly (Toronto, Ontario), Humans, Jordan I, Killackey T, Kim L, Kirby-Allen M, Lalloo C, Lalonde C, Lambert S, Marianayagam J, Noel M, Oberlander T, Pandemics, Siden H, Stinson J, Swidrovich J, Tunji-Ajayi L
Improving the regulation of medical cannabis in Canada to better serve pediatric patients
Tags: ‘t Jong GW, 2021, Alcorn J, Appendino JP, Bélanger RE, Canada, Cannabis, CMAJ, Crooks B, December 2021 List, Drug regulation, Finkelstein Y, Gilpin A, Health Policy, Huntsman RJ, Jacobs J, Kelly LE, Lewis E, Litalien C, Moore-Hepburn C, Oberlander T, Pediatrics, Rassekh SR, Repetski AE, Rieder MJ, Shackelford A, Siden H, Szafron M, Vaillancourt R
How Children and Youth with Medical Complexity Use Hospital and Emergency Department Care across Canada
Beyond technology, drips, and machines: Moral distress in PICU nurses caring for end-of-life patients
Healthcare utilization and costs of pediatric home mechanical ventilation in Canada
Tags: 2020, Adult, Ambulatory Care/economics, Amin R, Canada, Caregivers/economics, Child, Child Preschool, Coyte PC, Female, Guerriere D, Health Care Costs, Health Expenditures, healthcare costs, healthcare utilization, Home Care Services/economics, home mechanical ventilation, Humans, Katz SL, long-term mechanical ventilation, Longitudinal Studies, Male, March 2021 List, McKim DA, Middle Aged, Nonoyama ML, Patient Acceptance of Health Care, Pediatric Pulmonology, Pediatrics, Prospective Studies, Quality Of Life, Respiration Artificial/economics, Rose L, Tracheostomy, ventilator assisted individual, Wasilewski M, Zagorski B
Moral Distress of Clinicians in Canadian Pediatric and Neonatal ICUs
Tags: 2020, Canada, Child, Cross-sectional Studies, Dryden-Palmer K, Humans, Infant Newborn, Intensive Care Units Neonatal, Janvier A, Larson CP, March 2021 List, McNeil C, Moore G, Morals, Parshuram CS, Pediatric Critical Care Medicine, Roumeliotis N, Stress Psychological/diagnosis/epidemiology, Surveys And Questionnaires, Tomlinson G
Genome Sequencing as a Diagnostic Test in Children With Unexplained Medical Complexity
Tags: 2020, Arje D, Buera J, Canada, Child, Child Preschool, Chitayat D, Cohen E, Cohn RD, Costain G, Curtis M, Female, Genetic Testing/statistics & numerical data, Hayeems RZ, Humans, JAMA Network Open, Luca S, Male, Marano M, March 2021 List, Marshall CR, Mendoza-Londono R, Meyn MS, Orkin J, Predictive Value of Tests, Prospective Studies, Reproducibility of Results, Reuter MS, Scherer SW, Snell M, Somatoform Disorders/diagnosis, Stavropoulos DJ, Sung WWL, Thiruvahindrapuram B, Trost B, Veenma D, Walker S, Whole Genome Sequencing/statistics & numerical data, Yuen RKC
"It's more difficult...": Clinicians' experience providing palliative care to adolescents and young adults diagnosed with advanced cancer
Tags: 2020, Adolescent, Adult, Advanced Cancer, Advanced Practice Nurse, Aged, al-Awamer A, Article, Avery J, Canada, Cancer Palliative Therapy, care behavior, clinician parent communication difficulty, counter transference, D'Agostino N M, Experience, Family, Female, Geist A, Gupta A, Health Personnel Attitude, Human, Journal of Oncology Practice, Kassam A, Kawaguchi S K, Mahtani R, Male, Mazzotta P, medical oncologist, Mosher P J, Oncology 2020 List, Perception, Physician, psychiatrist, Qualitative Research, radiation oncologist, Samadi M, Semi Structured Interview, Srikanthan A, Tam S, tertiary care center, Thematic Analysis, theoretical study, Young Adult, Zimmermann C
"It Could Have Been Me": An Interpretive Phenomenological Analysis of Health Care Providers' Experiences Caring for Adolescents and Young Adults with Terminal Cancer
Tags: 2019, Adult, Article, Canada, Clinician, Controlled Study, Drake E K, Health Care Delivery, Health Care Personnel, Human, Journal of adolescent and young adult oncology., Nurse, Oncology 2019 List, Semi Structured Interview, Terminal Care, Tutelman P R, Uncertainty, Urquhart R, Wellbeing, Young Adult
Fatigue and depression in children with demyelinating disorders
Tags: 2013, acquired demyelinating syndromes, acute disseminated encephalomyelitis, Adolescent, alertness, Article, Benedict R H B, Canada, characteristics, Child, Child Behavior, Childhood Disease, Clinical Article, Cohort Analysis, Comorbidity, Controlled Study, Cross-sectional Study, demyelinating disease, demyelinating disorders, Depression, disease duration, Epidemiology, Fatigue, Female, Health Survey, Human, Journal of Child Neurology, Male, Mood, Multiple Sclerosis, Parrish J B, Priority Journal, psychological aspect, School Child, Self Report, Sleep, Smerbeck A, Therapy, Trajectory, Weinstock-Guttman B, Yeh E A
Trends in incidence, prevalence, and mortality of neuromuscular disease in Ontario, Canada: a population-based retrospective cohort study (2003-2014)
Tags: 2019, Adolescent, Adult, Age, Aged, America, Amin R, amyotrophic lateral sclerosis, amyotrophic lateral sclerosis/ep [Epidemiology], Animals, APEC countries, Article, August 2019 List, Bai Y, Canada, Child, childhood disease/ep [Epidemiology], childhood diseases, Children, Chordata, Cohort Analysis, Cohort Studies, Commonwealth of Nations, Controlled Study, Data Base, death rate, Developed Countries, Disease Course, disease prevalence, Disease Progression, Eukaryotes, Female, Gershon A, Goldstein R, Health Care, health Insurance, Hominidae, Homo, Human, Human Diseases, Incidence, Infant, International Classification of Diseases, Katz S, Leasa D, Major Clinical Study, Male, Mammals, Man, McKim D, Middle Aged, Mortality, mortality rates, muscles, neuromuscular disease/ep [Epidemiology], Neuromuscular Diseases, Neuromuscular Disorders, Nonoyama M, North America, OECD Countries, Ontario, Palliative Care, Palliative Therapy, planning, PLoS One, Population Research, Preschool Child, Prevalence, Primates, Retrospective Studies, Retrospective Study, Rose L, School Child, sclerosis, spinal muscular atrophy/ep [Epidemiology], Spine, Survival, Tandon A, trend study, Trends, Vertebrates, Young Adult
Medical assistance in dying: A paediatric perspective
Early integrated palliative approach for idiopathic pulmonary fibrosis: A narrative study of bereaved caregivers' experiences
Tags: 2018, Accountability, Adult Children, Advance Care Planning, anxiety, Attitude To Death, Bereavement, Canada, Caregiver Attitudes, Collaboration, Communication, Content Analysis, December 2018 List, Emotions, Health Facilities -- Canada, Home Health Care, Hospital Mortality, Human, Idiopathic Pulmonary Fibrosis -- Prognosis, Idiopathic Pulmonary Fibrosis -- Therapy -- Canada, Interpersonal Relations, Interviews, Kalluri M, Life Change Events, Life Experiences, Memory, Narratives, Palliative Care, Palliative Medicine, Patient Attitudes, Patient Care Plans, Pooler C, Pulmonologists, Purposive Sample, Quality Of Life, Richman-Eisenstat J, Spouses, Stress Psychological, Support Psychosocial, Thematic Analysis
National Impact of the EPEC-Pediatrics Enhanced Train-the-Trainer Model for Delivering Education on Pediatric Palliative Care
Tags: 2018, Advance Care Planning, Article, Bouffet E, Brennenstuhl S, Canada, Cancer Palliative Therapy, Child, Childhood Cancer, Clinical Practice, Friedrichsdorf S, Greenberg M, Health Care Quality, health practitioner, Human, Husain A, Journal of Palliative Medicine, Leyden M, Liben S, Medical Education, November 2018 List, Pediatrics, Pole JD, professional knowledge, Quality Of Life, Rapoport A, Self Care, Siden H, tertiary care center, Total Quality Management, Whitlock JA, Widger K, Wolfe J
Influencing the national debate on medical assistance in dying (MAID): Leveraging the canadian paediatric surveillance system (CPSP) to inform the position of the canadian paediatric society (CPS)
Tags: 2018, Adult, Archives of Disease in Childhood, Canada, Canadian, Child, Complication, conference abstract, Conversation, Death, Disability, Female, Human, joint, June 2018 List, Law, Major Clinical Study, Male, Medical Care, Moore-Hepburn C, Morbidity, Palliative Therapy, Pediatrician, public figure, Public Health, Rare Disease, Young Adult
Survey on Neonatal End-of-Life Comfort Care Guidelines Across America
Tags: 2018, anxiety, April 2018 List, Article, bodily secretions, Canada, Carter B, Comfort, Compassion Fatigue, Farooqi S, Gastrointestinal Symptom, geographic distribution, Haug S, Hopper A, Human, Infant, Institutional Review, Intensive Care, Journal of Pain and Symptom Management, neonatal nurse practitioner, Neonatologist, Newborn, Oei G, Pain, Palliative Care, Palliative Therapy, Pediatrics, Perinatal Care, Practice Guideline, Satisfaction, Terminal Care, Wilson CG
GRADE guidelines: 15. Going from evidence to recommendation-determinants of a recommendation's direction and strength
Tags: 2013, Andrews JC, Backlog, Brito JP, Brozek J, Canada, Chronic Obstructive, Coello PA, Djulbegovic B, Elbarbary M, Evidence-based Medicine, Germany, Guyatt G, Health Care, Humans, Jaeschke R, Journal Article, Journal Of Clinical Epidemiology, Meerpohl Joerg J, Montori VM, Nasser M, Norris S, Oxman A, Post P, Pottie K, Practice Guidelines As Topic, Pulmonary Disease, Quality Assurance, Research Design, Rind D, Risk Assessment, Schunemann HJ, Shukla V, Treatment Failure, Treatment Outcome, United States
Living in the in-between: families caring for a child with a progressive neurodegenerative illness
Tags: 2013, Adaptation, Adolescent, Adult, Backlog, Canada, Caregivers, Child, Emotions, Family, Female, home care services, Humans, Journal Article, Male, Neurodegenerative Diseases, Palliative Care, Pediatrics, Preschool, Psychological, Qualitative Health Research, Raffin-Bouchal S, Rallison LB, Respite Care, Stress
Pediatric patients receiving palliative care in Canada: results of a multicenter review
Tags: 2007, Archives Of Pediatrics & Adolescent Medicine, Backlog, Beaune L, Bishop M, Canada, Child, Congenital Abnormalities/mortality, Cross-sectional Studies, Daoust L, Davies D, Drouin DJ, Farran RP, Humans, Humbert N, Infant, Journal Article, Nalewajek F, Neoplasms/mortality, Nervous System Diseases/mortality, Palliative Care/utilization, Preschool, Rattray M, Retrospective Studies, Rugg M, Widger K
Learning that leads to action: impact and characteristics of a professional education approach to improve the care of critically ill children and their families
Tags: 2010, Archives Of Pediatrics & Adolescent Medicine, Backlog, Browning DM, Canada, Child, Continuing/methods, Curriculum, Dokken DL, Education, Educational, Humans, Interdisciplinary Communication, Journal Article, Merriman MP, Models, Palliative Care, Patient Advocacy, Pediatrics/education, Professional-family Relations, Program Evaluation, Quality Of Health Care, Rushton CH, Solomon MZ, United States
Gender differences in violence exposure among university students attending campus health clinics in the United States and Canada
Tags: 2009, Adolescent, Backlog, Brown D, Canada, Cross-sectional Studies, Female, Fleming MF, Humans, Journal Article, Male, Midwestern United States, Mundt MP, Pacific States, Plane M, Saewyc EM, Sex Factors, Student Health Services, Students/psychology, The Journal Of Adolescent Health : Official Publication Of The Society For Adolescent Medicine, Violence/psychology, Wiegel J, Young Adult, Zakletskaia L
An international/multicentre report on patients with cystic fibrosis (CF) over the age of 40 years
Tags: 2008, Adolescent Transitions, Adult, Age Distribution, Aged, Assael B, Backlog, Canada, Castellani C, Cohort Studies, Corey M, Cystic Fibrosis/complications/epidemiology/physiopathology, Dodge JA, Female, Hodson ME, Humans, International Study Of Aging In Cystic Fibrosis, Italy, Journal Article, Journal of Cystic Fibrosis, Life Expectancy, London, Longevity, Male, Middle Aged, Minnesota, Retrospective Studies, Sex Distribution, Simmonds NJ, Survival Rate, Tullis E, Warwick WJ
Categorizing neonatal deaths: a cross-cultural study in the United States, Canada, and The Netherlands.
Tags: 2010, Andrews B, Artificial, Backlog, Bos AF, Canada, Cross-cultural Comparison, Decision Making, Diseases/mortality, Female, Gestational Age, Humans, Infant, Intensive Care Units, Janvier A, Journal Article, Lagatta J, Leuthner SR, Male, Meadow W, Neonatal, Netherlands, Newborn, Physician Assisted Dying PAD, Respiration, Terminal Care, The Journal Of Pediatrics, United States, Verhagen AAE, Withholding Treatment/statistics & Numerical Data
Determinants of do-not-resuscitate orders in palliative home care.
Tags: 2008, 80 And Over, Activities of Daily Living, Adolescent, Adult, Advance Directives/sn [Statistics & Numerical Data], Aged, Backlog, Brink P, Canada, Case Management, Cognition Disorders/di [Diagnosis], Cognition Disorders/ep [Epidemiology], Critical Illness/mo [Mortality], Critical Illness/th [therapy], Demography, DNAR, Female, Humans, Journal Article, Journal of Palliative Medicine, Kitson M, Male, Middle Aged, Neuropsychological Tests, Pain Measurement, Pain/di [diagnosis], Palliative Care/lj [Legislation & Jurisprudence], Palliative Care/sn [Statistics & Numerical Data], Resuscitation Orders, Retrospective Studies, Smith TF
A Report On Location of Death in Paediatric Palliative Care Between Home, Hospice and Hospital
Tags: 2008, Attitude To Death, Australia, Backlog, Canada, Child, Choice Behavior, Collins JJ, Great Britain, Humans, Journal Article, Miller M, NET CV, Omesi L, Palliative Care, Palliative Medicine, Patient Satisfaction, Residence Characteristics/statistics & numerical data, Retrospective Studies, Siden H, Straatman L, Terminal Care, Tucker T
Creating social work competencies for practice in hospice palliative care
Tags: 2010, Abernethy N, Adult, Attitudes, Backlog, Bosma H, Cadell S, Canada, Child, Clinical Competence, Delphi Technique, Educational Measurement/standards, Feron A, Health Knowledge, Hospice Care, Humans, Interprofessional Relations, Johnston M, Journal Article, Kelley ML, Nelson F, Palliative Care, Palliative Medicine, PPC Book Chapter 2011 (Kim Widger), Practice, Professional Role, Social Work/education, Wainwright W
Designing and implementing a longitudinal study of children with neurological, genetic or metabolic conditions: charting the territory
Impact of caring for a child with cancer on parents' health-related quality of life
Tags: 2008, Adolescent, Backlog, Canada, Caregivers/psychology, Child, Dix D, Female, Health Status, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Klaassen R, Klassen AF, Male, Neoplasms/nursing, O'Donnell ME, Parents/psychology, Preschool, Pritchard S, Quality Of Life, Questionnaires, Scott A, Sung L, Yanofsky R
Families' transition to a Canadian paediatric hospice. Part one: planning a pilot study
Tags: 2008, Backlog, Cadell S, Canada, Child, Davies B, Derman S, Health Planning, Health Services Needs And Demand, Hospices/organization & administration, Humans, International Journal of Palliative Nursing, Journal Article, NET CV, Palliative Care, Pediatrics, Pilot Projects, Siden H, Steele R, Straatman L
Families' transition to a Canadian paediatric hospice. Part two: results of a pilot study
Tags: 2008, Adolescent, Backlog, Cadell S, Canada, Catastrophic Illness, Child, Davies B, Derman S, Feasibility Studies, Female, Health Services Research/methods, Hospices, Hospitals, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, NET CV, Parents/psychology, Patient Acceptance of Health Care, Pediatric, Pilot Projects, Preschool, Research Design, Respite Care, Siden H, Steele R, Straatman L
Adverse effects of medical cannabinoids: a systematic review
Opioids for chronic noncancer pain: a new Canadian practice guideline
Tags: 2010, Advisory Committees/organization & administration, Analgesics, Backlog, Canada, Canadian Medical Association Journal, Chronic Disease, Furlan AD, Humans, Journal Article, National Opioid Use Guideline Group, Opioid/administration & dosage/adverse effects/therapeutic use, Pain/drug Therapy, Practice Guidelines As Topic, Reardon R, Weppler C