A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs
Title
A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs
Creator
Chocarro L; Moreno A; Barcelo M; Martino R; Gonzalez P
Identifier
Publisher
International journal of palliative nursing
Date
2019
Subject
Spain; semi structured interview; perception; palliative therapy; genetic transcription; human; article; child; problem solving; patient care; decision making; grounded theory; stomach tube
Description
BACKGROUND:: There is few literature on the difficulties and different meanings of gastrostomy tubes (GST) for parents of children with palliative needs, and what specific palliative care teams contribute to this process. AIM:: To explore the process of information in the decision of performing a gastrostomy and the meanings that parents of children with palliative needs build around them. DESIGN:: Semi-structured interviews which were transcribed and analysed using Grounded Theory. SETTING/PARTICIPANTS:: Parents and caretakers of children admitted in Paediatric Palliative Care Unit of Madrid Autonomous Community (Spain) whose children bore a gastrostomy device.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
March 2019 List
URL Address
Collection
Citation
Chocarro L; Moreno A; Barcelo M; Martino R; Gonzalez P, “A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs,” Pediatric Palliative Care Library, accessed April 25, 2024, https://pedpalascnetlibrary.omeka.net/items/show/16098.