A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs

Title

A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs

Creator

Chocarro L; Moreno A; Barcelo M; Martino R; Gonzalez P

Publisher

International journal of palliative nursing

Date

2019

Subject

Spain; semi structured interview; perception; palliative therapy; genetic transcription; human; article; child; problem solving; patient care; decision making; grounded theory; stomach tube

Description

BACKGROUND:: There is few literature on the difficulties and different meanings of gastrostomy tubes (GST) for parents of children with palliative needs, and what specific palliative care teams contribute to this process. AIM:: To explore the process of information in the decision of performing a gastrostomy and the meanings that parents of children with palliative needs build around them. DESIGN:: Semi-structured interviews which were transcribed and analysed using Grounded Theory. SETTING/PARTICIPANTS:: Parents and caretakers of children admitted in Paediatric Palliative Care Unit of Madrid Autonomous Community (Spain) whose children bore a gastrostomy device.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

March 2019 List

Collection

Citation

Chocarro L; Moreno A; Barcelo M; Martino R; Gonzalez P, “A grounded theory study of the perceptions and meanings associated with gastrostomies among parents of children with palliative needs,” Pediatric Palliative Care Library, accessed July 26, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16098.

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