Browse Items (77 total)
- Tags: Questionnaire
Role of Pediatric Palliative Care in German-Speaking Centers for Heart Transplantation
Tags: 2024, cardiac patient, Child, Chronic Disease, conference abstract, Consultation, Controlled Study, Ethical dilemma, Fischer M, Haas N, heart disease, Heart Failure, Heart transplantation, Hermann M, Human, May List 2024, Medical Specialist, Nurse, Palliative Care, Palliative Therapy, Quality Of Life, Questionnaire, Rabenhorst D, Speech, Terminal Care, Therapy, Thoracic and Cardiovascular Surgeon, ventricular assist device
Rights of the Dying Child: The Nurses' Perception
Tags: 2018, Adult, Article, Awareness, Benini F, Brugnaro L, Child, Cross-sectional Study, Dying, Female, health care planning, Human, Human Rights, Italy, Journal of Palliative Medicine, Lazzarin P, Likert scale, Major Clinical Study, Male, Marinelli E, May List 2024, Multicenter Study, nurse attitude, Only Child, Orzalesi M, Patient Right, Pediatric Hospital, Pediatrics, postgraduate education, Quality Of Life, Questionnaire, ward, work experience
People don't realise how much their past experiences affect them in adulthood': A qualitative study of adult siblings' experiences of growing-up with a sister/brother with a childhood life-limiting condition and their perceived support needs
Tags: 2024, Adolescent, Adult, ADULTHOOD, anxiety, Article, Brother, childhood, Depression, emotionality, family assessment, Female, Hospice, Human, hydrotherapy, Interview, Kirk S, Life Expectancy, Male, May List 2024, mental disease, Mental Health, nightmare, Palliative Medicine, Palliative Therapy, Pryjmachuk S, Psychotherapy, Qualitative Research, Quality Of Life, Questionnaire, Semi Structured Interview, Sibling, single parent, Sister, social network, Social Support, Terminal Care, Thematic Analysis
Gastrointestinal symptoms and problems in children cared by pediatric palliative care teams. Observational study
Tags: 2024, abdominal pain, Adolescent, Andes Pediatrica, Article, Bernada Scarrone MM, Child, Constipation, Consultation, Diarrhea, digestive prosthesis, digestive system hemorrhage, Dysphagia, Gastrointestinal Symptom, Gastrostomy, Human, Infant, Le Pera Garofalo V, Major Clinical Study, May List 2024, mucosa inflammation, Multicenter Study, Nausea, Observational Study, Palliative Care, Palliative Therapy, pediatric patient, Preschool Child, Prevalence, Prospective Study, Quality Of Life, Questionnaire, School Child, Vomiting
Comparison of actigraphy with a sleep protocol maintained by professional caregivers and questionnaire-based parental judgment in children and adolescents with life-limiting conditions
Tags: 2024, actigraph, actimetry, Adolescent, April List 2024, Article, BMC Palliative Care, Caregiver, Child, Chronic Disease, Claus B, Clinical Article, Controlled Study, Decision Making, diagnostic procedure, Drug Therapy, Female, Human, Human Experiment, Kubek LA, Male, Palliative Therapy, Prospective Study, protocol, Questionnaire, Questionnaires, School Child, Sleep, sleep efficiency, sleep time, special situation for pharmacovigilance, stage 1 sleep, Therapy, Wager J, wake after sleep onset, Wakefulness, Zernikow B
Investigation of the impact of paediatric hospices on the quality of care of paediatric nurses
A psychological experience assessment protocol of parent caregivers in paediatric palliative care
Tags: 2023, Adult, Annals Of Medicine, Article, Caregiver, Child, Clinical Article, Coping Behavior, Coping Strategy Questionnaire, February List 2024, Human, Nogueira AJ, Palliative Therapy, Parent, Portugal, psychologic assessment, Questionnaire, Ribeiro MT, Semi Structured Interview, Social Support, Therapy, United Kingdom, VULNERABILITY
The care for oncologic patients undergoing pediatric palliative care and the griefs of a health team
Tags: 2023, 2023 SE3 - Oncology, Alves RSF, anxiety, Article, Cancer Diagnosis, Chronic Disease, Clinical Article, coronavirus disease 2019, Cross-sectional Study, de Sena JGM, de Vasconcelos AV, Female, Follow Up, Health Service, Human, Male, Melo CF, Palliative Care, Palliative Therapy, Pandemic, Psicooncologia, Psychology, Questionnaire, Ruiz EM, Semi Structured Interview, Teixeira LC
Unfolding parental knowledge, attitudes, and beliefs toward palliative care for children with cancer
Tags: 2023, 2023 SE3 - Oncology, Abboud MR, Article, Caregiver, Child, Childhood Cancer, Demography, Education, Educational Status, Emotion, Fares S, Female, Huijer HAS, Human, Lebanon, Major Clinical Study, Male, Multicenter Study, Noureddine S, Pain, Palliative Care, Palliative Therapy, Pediatric Blood and Cancer, Pediatrics, quantitative analysis, Questionnaire, Rassam RS, Smith EML, Structured Interview, Wolfe J
Simulated learning for staff at a children's hospice: a quality improvement project
Tags: 2023, anxiety, Article, care behavior, Chadwick A, Child, Conversation, Education, Hospice, Hospices, Human, Learning, November List 2027, Nurse, Nursing Children and Young People, Only Child, Palliative Therapy, paramedical personnel, Price J, Questionnaire, Richardson S, Sheedy G, Simulation, Skill, Terminal Care, Total Quality Management
The Impact of End-of-Life Care Among Nurses Working in the Pediatric Intensive Care Unit
Internet Health Resources on Nocturnal Enuresis - A Readability, Quality and Accuracy Analysis
Tags: 2023, Article, Chan IHY, Child, Clinical Article, continence, Controlled Study, enuresis, European journal of pediatric surgery : official journal of Austrian Association of Pediatric Surgery ... [et al] = Zeitschrift fur Kinderchirurgie, Female, Fung ACH, government, health care planning, Human, Internet, Kenneth W, Lee MHL, Leung L, Male, nephrologist, nocturnal enuresis, October List 2046, pediatric surgeon, Practice Guideline, Questionnaire, reading, search engine, urologist
Enhanced symptom management clinicparental evaluation. Does it help?
A One Day Paediatric Palliative Care Study Day Improves Skills
The efficacy of educational interventions on neonatal intensive care unit nurses knowledge and attitude toward neonatal palliative care
Tags: 2023, Abuhammad S, adjuvant therapy, Adult, Aggression, analgesic activity, anxiety, Article, Attitude, care behavior, Chronic Pain, cocaine, Controlled Study, Death, Demographics, drowsiness, drug dependence, Education Program, Educational Status, El-Bashir M, Elayyan M, electrolyte disturbance, Electronic Journal of General Medicine, emotional deprivation, Family, Fatigue, Female, Grief, Hospital Admission, Human, Human Experiment, Infant Newborn, Intestine, Jordan, June 2022 List, Knowledge, Male, Marriage, Morphine, Nausea And Vomiting, Neonatal Intensive Care Unit, neonatal intensive care unit attitude scale, Nurse, Nursing, Opiate, Pain, Palliative Care, Palliative Therapy, pethidine, pretest posttest design, Prognosis, Questionnaire, Respiration Depression, scoring system, Sedation, work experience
A pilot study on sports activities in pediatric palliative care: just do it
Tags: 2023, Agosto C, Article, Avagnina I, Benini F, BMC Palliative Care, Caregiver, Child, Controlled Study, Exercise, Female, Giacomelli L, Human, International Classification of Functioning Disability and Health, June 2022 List, juvenile, Maghini I, Male, mental deficiency, motor dysfunction, Palliative Care, Palliative Therapy, Papa S, Perilongo G, Personal Experience, physical activity, Pilot Projects, Pilot Study, Quality Of Life, Questionnaire, Salamon E, Santini A, Sports, Swimming
Evaluating a novel hospital-based online health community to address palliative and psychosocial care factors for chronically ill adolescent and young adult patients
Tags: 2023, Adolescent, Adult, Article, Chronic Disease, Chronic Patient, Clinical Article, Collins S, Controlled Study, Data Analysis, Expectation, Female, Hart M, Human, Interview, Lebeau K, Male, Marchi E, May List 2023, Palliative And Supportive Care, Palliative Therapy, Personal Experience, Phenomenology, Pomeranz JL, psychosocial care, Qualitative Analysis, Questionnaire, solidarity, Walker D, Young Adult, Zori G
Parent and Provider Perspectives of a Hospital-Based Bereavement Support Program in Pediatric Palliative Care
Tags: 2023, Article, Bereavement, Bereavement Support, Bradford N, Bunker K, Child, Cross-sectional Study, Donovan L, Elvidge N, Expectation, Female, Grief, Gundry A, Herbert A, Human, Human Experiment, Journal of Pain and Symptom Management, Major Clinical Study, Male, May List 2023, Palliative Care, Palliative Therapy, Pediatric Hospital, program impact, Questionnaire
Neonatal Palliative Care Practices: An Indian Perspective
Tags: 2022, 2022 Special Edition Low Resource Setting Issue, Article, Female, Goyal M, Human, Human Experiment, India, Male, Mascarenhas D, Memory, middle income country, Nanavati R, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, Newborn, Paediatrics and International Child Health, Palliative Therapy, Photography, Practice Guideline, Questionnaire, Terminal Care
Challenges in Establishing Optimal Pediatric Palliative Care at the University Hospital in Slovenia
The integration of pediatric palliative care (PPC) should become a standard of care for all children with life-limiting and life-threatening illnesses. There are many barriers and misperceptions in pediatrics which hinder the early…
Tags: 2023, Article, Awareness, Bertok S, Child, Clinical Practice, doctor nurse relation, Education, employee, European Journal of Pediatrics, Female, Human, Kreft HI, Lepej D, Lesnik MP, library, Lisec A, Loboda T, Major Clinical Study, Male, March List 2023, Meglic A, Meglic J, Nurse, Ostir M, Palliative Care, Palliative Therapy, Physician, Ponjevic T, Psychologist, Questionnaire, Self Evaluation, Slovenia, University Hospital
“It’s brilliant! It’s working! It’s needed!” A Hospice Short Break Innovation for Young Adults
Tags: 2022, Adult, BMJ Supportive and Palliative Care, Child, Clinical Article, conference abstract, Drug Withdrawal, Female, Finlinson H, Health Care Delivery, Hospice, Human, Human Experiment, Interview, Learning, Male, March List 2023, outcome assessment, Palliative Therapy, positive feedback, Questionnaire, Sibling, Spathis A, Trust, Young Adult
Dying child and nurses' mourning
Tags: Child, Death, Human, Nurse, 2021, Anger, CARE, Child, conference abstract, Curriculum, Death, Demography, Dying, Education, European Psychiatry, Evangelou E, Guilt, Hospitalized Child, January List 2023, Koutelekos I, Kyritsi E, Lekas C, mourning, Nurse Care, Pediatric Hospital, pediatric nurse, Questionnaire, Sadness, theoretical study, Zartaloudi A
How Can We Measure Quality of Dying, Death, and Quality of Care at the End-of-Life for Children and Young Adults? A Scoping Literature Review
Tags: 2022, abstract, Adult, advanced, Cancer, CARE, Caregiver, Child, Conference, controlled, Cooper M, Cox V, Disease, Female, Flemming K, Fraser L, Gillman C, Heart, Human, intensive, Life, Male, Mayland CR, Mother, Pain, Palliative, Palliative Medicine, Patient, Pediatric, Powell P, Quality, Questionnaire, Review, September 2022 List, Sibling, spiritual, study, Sunderland K, systematic, Taylor P, terminal, Therapy, Turner N, Unit, young, Zeigler L
Unrealistic parental expectations for cure in poor-prognosis childhood cancer
Tags: 2020, Article, Bagatell R, Baker J N, Cancer, Cancer Palliative Therapy, Cancer Prognosis, Cancer Recurrence, cancer risk, Child, Childhood Cancer, Clinical Decision Making, Cohn S L, Cohort Analysis, confidence interval, Controlled Study, Cronin A M, Diller L R, Expectation, Female, Glade Bender J, Granger M M, High Risk Population, Human, Interpersonal Communication, Levine A, Mack J W, Major Clinical Study, Male, Marachelian A, Medical Record, Neuroblastoma, Odds Ratio, Oncology 2020 List, parental behavior, Park J, Patient Care, pediatric patient, Priority Journal, Prospective Study, Quality Of Life, Questionnaire, Rosenberg A, Shusterman S, Taddei S, theoretical model, Twist C J, Uno H
Compassion fatigue, burnout, and compassion satisfaction in pediatric palliative care (PC) providers in the U.S
Tags: 2018, April 2020 List, Awareness, Burnout, Child, Compassion Fatigue, conference abstract, coworker, Distress Syndrome, Education, Exhaustion, friend, Health Care Personnel, Human, injury, Kase S M, Life Sustaining Treatment, linear regression analysis, Palliative Therapy, Pediatrics, Prevalence, Questionnaire, risk factor, satisfaction with care, Self Care, Social Isolation, Waldman E D, Weintraub A S, Wellbeing
Palliative care in 9 children with neurodegeneration with brain iron accumulation
Tags: 2020, April 2020 List, Article, body mass, Bone Density, bone strength, botulinum toxin, Child, Clinical Article, contracture, Controlled Study, Dangel T, Densitometry, Dystonia, facilitation, Female, femur, Home Care, Hospice And Palliative Care Nursing, Human, hypersalivation, iron, Januszaniec A, ketogenic diet, Kmiec T, Male, Multidisciplinary team, neurodegeneration with brain iron accumulation, Neurological Sciences, Pain, Palliative Therapy, pathologic fracture, Prevention, Questionnaire, School Child, skeleton, Spasticity, Spine, Thorax, Wazny B
Grief and Bereavement Support for Families and Healthcare Professionals as Part of Integrated Care in Pediatric/Neonatal Intensive Care Units around the World (TH340A)
Tags: 2020, Bereavement Support, Bustamante G, Child, conference abstract, Controlled Study, Convenience Sample, Demography, Female, financial management, Gender, Grunauer M, Health Care Personnel, high income country, Human, Journal of Pain and Symptom Management, Male, March 2020 List, Neonatal Intensive Care Unit, Newborn, Newborn Death, Palliative Therapy, patient coding, Pediatric Intensive Care Unit, Perception, Prospective Study, Questionnaire, Statistical Significance, World Bank, Zambrano K
Pediatric Palliative Telehealth Care from Hospital to Hospital: A Pilot Project (QI653)
Tags: 2020, Child, Clinical Article, Comfort, community hospital, conference abstract, Consensus, Education, Evan E, Feasibility Study, Female, Follow Up, Human, Human Experiment, Journal of Pain and Symptom Management, Likert scale, Male, March 2020 List, Mock K O, Palliative Therapy, Primary Health Care, program feasibility, Questionnaire, Sandesara A, Satisfaction, Telehealth, tertiary care center, Total Quality Management
Legacy Artwork in Pediatric Oncology: The Impact on Bereaved Caregivers' Psychological Functioning and Grief
Tags: 2019, Adolescent, Adult, Article, Barnett M, Bereavement, Brief Symptom Inventory, Caregiver, Child, Childhood Cancer, Clinical Article, Complicated Grief, Controlled Study, Female, Grief, Health Care Personnel, Human, Infant, Journal of Palliative Medicine, Madan-Swain A, Male, mental function, Oncology 2019 List, Perception, prolonged grief, Questionnaire, Reynolds N C, Schaefer M R, Spencer S K, support group, time of death
Palliative radiotherapy for pediatric patients: Parental perceptions of indication, intent, and outcomes
Tags: 2020, Analgesia, Article, Boyle P J, Child, Clinical Article, Comfort, Controlled Study, Expectation, Female, Human, Lee B K, Male, Marcus K J, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pediatric patient, Perception, Prospective Study, Quality Of Life, Questionnaire, radiation oncology, Radiotherapy, Side Effect, Wolfe J, Zaslowe-Dude C
Perceptions on good death among parents of pediatric patients with hematology-oncology disease in advance
Tags: 2019, Cancer Patient, Child, conference abstract, Controlled Study, Female, Health Status, Hematology, Human, interdisciplinary education, Journal Of Clinical Oncology, Kim J Y, Leukemia, living will, Lymphoma, middle school, Oncology 2019 List, outpatient department, Park B K, pediatric patient, Perception, Quality Of Life, Questionnaire, Stress, Terminal Care
Preferences regarding end-of-life care among adolescents and young adults with cancer: results from a comprehensive multicenter survey in Japan
Tags: 2019, adolescent and young adult, Adult, Adverse Drug Reaction, anxiety, Article, Cancer, Cancer Prognosis, Cancer Survival, cancer survivor, Cancer Therapy, Chemotherapy, Child, Controlled Study, End-of-life Care, Female, Health Care Personnel, Higuchi A, Hirano H, Horibe K, Human, Japan, Journal of Pain and Symptom Management, Kawachi A, Major Clinical Study, Male, Multicenter Study, Oncology 2019 List, Ozawa M, Palliative Therapy, patient history of chemotherapy, preference, Prognostic Disclosure, Questionnaire, Shimizu C, Shimizu K, Side Effect, Tatara R, Terminal Care, Yoshida S, Young Adult
The Nesting Dolls Design: A Methodology for the Recruitment of Bereaved Parents for Partnership Activities Related to Palliative Care and Bereavement Support in Paediatric Psycho-Oncology
Tags: 2018, 52315-07-8 (cypermethrin), 65731-84-2 (cypermethrin), 66841-24-5 (cypermethrin), 67375-30-8 (cypermethrin), Bereavement Support, Bourque C J, Cardinal G, Child, Clinical Article, Clinician, conference abstract, Confidentiality, Content Analysis, Controlled Study, cypermethrin, Death, Dumont E, evaluation research, Female, filter, Follow Up, Human, information center, Intensive Care, Interview, Journal of Pain and Symptom Management, Male, Neonatology, nesting, Oncology 2019 List, Palliative Therapy, Pediatrics, Psycho-Oncology, Questionnaire, research ethics, Sultan S, writing
Withholding and withdrawal of life-sustaining treatments for neonate in Japan: Are hospital practices associated with physicians' beliefs, practices, or perceived barriers?
Tags: 2019, Advance Care Planning, Article, Early Human Development, February 2020 List, Female, Feudtner C, Honda J, hospital policy, Human, Human Experiment, Iijima K, institutional care, Intensive Care, Japan, Kizawa Y, Life Sustaining Treatment, Male, Nabetani M, Neonatologist, Newborn, Questionnaire, Yotani N
Assessment of a Mobile App by Adolescents and Young Adults With Cystic Fibrosis: Pilot Evaluation
Tags: 2019, Adolescence, Adolescent, Adult, Albrecht U V, Anthropometry, Article, Breathing, Child, chronic lung disease, Clinical Article, Controlled Study, Cystic Fibrosis, Disability, Dittrich A M, Dopfer C, February 2020 List, Female, Fuge J, Hansen G, Human, JMIR mHealth and uHealth, Junge S, Life Expectancy, life satisfaction, lung function, Male, mobile application, mobile phone, Nolte H, Pieper K, Quality Of Life, Questionnaire, responsibility, Ringshausen F C, Rudolf I, Sauer-Heilborn A, Self Care, Tummler B, von Jan U, Young Adult
Psychological support in end-of-life decision-making in neonatal intensive care units: Full population survey among neonatologists and neonatal nurses
Tags: 2019, Article, Beernaert K, Belgium, Burnout, Chambaere K, Cohen J, Controlled Study, Cools F, Cornette L, Counseling, Decision Making, Deliens L, Dombrecht L, Goossens L, Human, January 2020 List, Laroche S, Likert scale, Naulaers G, Neonatal Intensive Care Unit, Neonatal Nurse, Neonatologist, Newborn, Palliative Medicine, Perinatal Death, Questionnaire, Terminal Care, Theyskens C, Van de Broek H, Vandeputte C
The Rett Syndrome Behaviour Questionnaire (RSBQ): refining the behavioural phenotype of Rett syndrome
Tags: 2002, Adolescents, behavioral problems, behavioural phenotype, breathing difficulties, Cass H, Charman T, Children, cpg-binding protein-2, Diagnosis, Epidemiology, Hastings R P, Intellectual Disability, Journal Of Child Psychology And Psychiatry, mecp2, mecp2 mutations, Mental Retardation, mental-retardation, Mount R H, population prevalence, Psychiatry, Psychology, psychopathology, Questionnaire, Reilly S, Rett syndrome, RSBQ, scale development, sleep disturbance, tone and motor problems, tool development, x-chromosome inactivation
Autonomic breathing abnormalities in Rett syndrome: Caregiver perspectives in an international database study
Tags: 2017, abdominal bloating, Adult, Article, autonomic dysfunction, bloating, breath holding, breath-holding, breathing difficulties, breathing disorder, Breathing disorders, breathing pattern, Caregiver, characteristics, Child, Data Base, Developmental Disability, Downs J, Epstein A, Female, Genotype, Heyworth J, Human, hyperventilation, International database, Journal of Neurodevelopmental Disorders, Leonard H, MacKay J, Male, mecp2, Mutation, Noninvasive Ventilation, onset age, oxygen, Priority Journal, Questionnaire, Rare disorder, rebreathing, Rett syndrome, School Child, Trajectory, Wong K
Sleep problems in individuals with 11q terminal deletion disorder (Jacobsen syndrome)
Tags: 11q terminal deletion disorder, 2008, Behavior, Biotechnology & Applied Microbiology, Braam W J, characteristics, Children, Curfs L M G, Didden R, Disabilities, disturbance, Ethics, Genetic Counseling, Genetics & Heredity, Grossfeld P D, Jacobsen syndrome, Korzilius H, Maas A, Medical, Questionnaire, Research & Experimental Medicine, Sleep, sleep disturbance/disorders, sleep problems, Smits M G, Trajectory
Pediatric leukodystrophies: The role of the otolaryngologist
Tags: 1309378-01-5 (botulinum toxin A), 1638949-86-6 (botulinum toxin A), 1800016-51-6 (botulinum toxin A), 2017, 93384-43-1 (botulinum toxin A), Adolescent, Adult, Aicardi-Goutières syndrome, anamnesis, Article, aspiration pneumonia, Assessment, Bernard G, botulinum toxin A/dt [Drug Therapy], breathing difficulties, characteristics, Child, Clinical Article, Cohort Analysis, Comorbidity, Daniel S J, Drool, drooling, Dysphagia, feeding difficulties, head and neck disease, hearing impairment, Human, hypersalivation/su [Surgery], International Journal of Pediatric Otorhinolaryngology, Kay-Rivest E, Khendek L, Krabbe disease, Leukodystrophy, leukodystrophy/dt [Drug Therapy], nose feeding, otolaryngologist, Pelizaeus-Merzbacher disease, physical examination, Physician Attitude, Priority Journal, Quality Of Life, quality of life assessment, Questionnaire, sleep disturbance, stomach tube, Trajectory, x-linked adreno-leukodystrophy