Pediatric Goals of Care Communication: A Socioecological Model to Guide Conversations

Title

Pediatric Goals of Care Communication: A Socioecological Model to Guide Conversations

Creator

Grier K; Koch A; Docherty S

Publisher

Journal of Hospice and Palliative Care

Date

2023

Subject

Palliative Care; Quality of Life; Advance Directives; Child; Communication; Human; Parents; Patient Care Planning; United States

Description

The purpose of this article is to explore factors that influence pediatric patients and their parents during provider-led goals-of-care conversations. Our framework can help providers enhance holistic communication by approaching difficult topics (ie, quality of life, end of life) with an understanding of the multilayered external influences that affect patient/parent decision making. A 5-layer model is presented that describes facilitators to conversations about quality goals of care and advance directives. Each year, complex health conditions (a) affect approximately 500 000 children in the United States, 8600 of whom meet current palliative care criteria, and (b) account for over 7 million child deaths globally. Nurses can use knowledge of the unique values and culture of families with children who have complex health conditions to support them by providing high quality, ongoing goals-of-care conversations, especially if their access to pediatric palliative care is limited.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

March List 2023

Collection

Citation

Grier K; Koch A; Docherty S, “Pediatric Goals of Care Communication: A Socioecological Model to Guide Conversations,” Pediatric Palliative Care Library, accessed May 30, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18675.