Simultaneous Home-Based Pediatric Hospice and Palliative Care: Characterizing the Population

Title

Simultaneous Home-Based Pediatric Hospice and Palliative Care: Characterizing the Population

Creator

Grossoehme DH; Smith S; Cicozi K; Jenkins R; Richner G; Hiltunen A; Friebert S

Publisher

Journal of Palliative Medicine

Date

2023

Subject

community-based; concurrent care; home-based; Hospice; Hospice; Palliative Care; Palliative Care; Pediatric

Description

Background: Children and adolescents with serious conditions may benefit from simultaneous hospice and palliative care. Although the Affordable Care Act covers concurrent care, uptake has been limited. Limited descriptive data exist on receiving simultaneous community hospice and pediatric palliative care. Objective: Characterize a population of children and adolescents receiving simultaneous pediatric home-based hospice and palliative care (HBHPC). Design/Setting/Subjects: Post hoc analysis of retrospective study of N = 31 patients enrolled in pediatric HBHPC, with comparison to larger two-site sample receiving either hospice or palliative care at home. Measurement: Demographic and clinical data extracted from the electronic medical record. Results: Data characterizing the population receiving simultaneous care are presented; compared with those receiving either hospice or palliative care at home, the only significant differences were a greater proportion of decedent children and greater billable hours. Conclusions: Findings support the lack of meaningful distinction between hospice and palliative care in pediatrics.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

March List 2023

Collection

Citation

Grossoehme DH; Smith S; Cicozi K; Jenkins R; Richner G; Hiltunen A; Friebert S, “Simultaneous Home-Based Pediatric Hospice and Palliative Care: Characterizing the Population,” Pediatric Palliative Care Library, accessed May 30, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18676.