Snake: the development and validation of a questionnaire on sleep disturbances in children with severe psychomotor impairment

Title

Snake: the development and validation of a questionnaire on sleep disturbances in children with severe psychomotor impairment

Creator

Blankenburg M; Tietze A L; Hechler T; Hirschfeld G; Michel E; Koh M; Zernikow B

Publisher

Sleep Medicine

Date

2013

Subject

Validity; Screening; Neurosciences & Neurology; psychometric properties; behaviors; scale; disabilities; Children with severe psychomotor impairment; Daytime restlessness; instrument; Parent questionnaire; school-aged children; Sleep disturbance/disorders; sleep disturbance; Q3 conditions; tool development; scale development; SNAKE

Description

Objective: Sleep disturbance and daytime restlessness are present in 50% to 80% of children with severe psychomotor impairment due to neurologic or other complex diseases. Although these issues severely impair the quality of life of the children and their families, they are not well addressed or managed by professionals. The lack of validated assessment tools prevents further research and the development of adequate therapies. Our aim is to develop and validate a sleep questionnaire for these children that could be used both for clinical management and systematic research. Methods: The sleep questionnaire for children with severe psychomotor impairment (Schlaffragebogen fur Kinder mit Neurologischen und Anderen Komplexen Erkrankungen, SNAKE) is based on expert opinion and consultation with parents. The psychometric quality of the questionnaire was assessed in a sample of 224 children with severe psychomotor impairment. Results: Confirmative factor analysis showed that SNAKE comprises of five factors (based on ICSD-2). Fit indices, analysis of item characteristics and convergent validity (coherence with measures of sleep [i.e., sleep efficiency]) and correlation with selected subscales of the Sleep Disturbance Scale for Children (SDSC) were good. Re-test analysis (n = 62) depicted high stability and good replication of validity. Conclusions: SNAKE is a reliable and valid tool for the diagnosis of sleep disturbances in children with severe psychomotor impairment. The SNAKE questionnaire is the first tool that addresses the specific relationship between sleep disturbance and severe disability in children. (c) 2013 Elsevier B.V. All rights reserved.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation

Blankenburg M; Tietze A L; Hechler T; Hirschfeld G; Michel E; Koh M; Zernikow B, “Snake: the development and validation of a questionnaire on sleep disturbances in children with severe psychomotor impairment,” Pediatric Palliative Care Library, accessed September 23, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16589.

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