Looking back to move forward: Reflections and lessons learned about transitions to adulthood for youth with disabilities.

Title

Looking back to move forward: Reflections and lessons learned about transitions to adulthood for youth with disabilities.

Creator

Nguyen T; Stewart D; Gorter JW

Identifier

Publisher

Child: Care, Health And Development

Date

2017

Subject

Adolescence; Child Development; Disability; Health Services Research; Transition

Description

BACKGROUND: Transition to adulthood is a significant development process experienced by all youth. Since the mid 1990s, researchers at the CanChild Centre for Childhood Disability Research have been studying this process to assist transitioning youth with disabilities and their families. The objective of this narrative review is to reflect on the work conducted by CanChild researchers, in collaboration with stakeholders, about transitions to adulthood for youth and young adults with disabilities since the publication of the best practice guidelines in 2009. METHODS: A narrative review was undertaken through a reflective approach to critically review and summarize all the transition studies completed at CanChild since 2009. The following data were systematically extracted from articles and research reports: study (authors and year of publication), purpose, methods, sample, and lessons learned. RESULTS: Five studies were identified. An analysis of the findings revealed five key themes that represented lessons learned since the publication of the Ontario-based best practice guidelines: promoting a noncategorical and lifecourse approach to care; active collaboration among stakeholders involved in transition; capacity building through peer mentorship; greater understanding of the significance of opportunities and experiences; as well as the significance of information, education, and research. CONCLUSIONS: This is the first review to provide perspective on trends in transition research since the publication of the best practice guidelines in 2009. It is hoped that this reflection will assist in the ongoing work of researchers, service providers, policy makers, communities, and families in the area of adult transitions for youth with disabilities.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

December 2017 List

PMID

PMID: 29082531

Notes

(c) 2017 John Wiley & Sons Ltd.

Citation

Nguyen T; Stewart D; Gorter JW, “Looking back to move forward: Reflections and lessons learned about transitions to adulthood for youth with disabilities.,” Pediatric Palliative Care Library, accessed July 26, 2021, https://pedpalascnetlibrary.omeka.net/items/show/11124.

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