"I Will Communicate With You, But Let Me Be In Control": Understanding How Parents Manage Private Information About Their Chronically Ill Children.

Title

"I Will Communicate With You, But Let Me Be In Control": Understanding How Parents Manage Private Information About Their Chronically Ill Children.

Creator

Rafferty KA; Hutton K; Heller S

Publisher

Health Communication

Date

2017

Description

Parents have a significant role in the management of a child's chronic condition. Parents are often the only consistent individuals managing a child's health across his or her childhood and adolescence (e.g., present for all appointments and medical procedures). Many of the responsibilities required of parents involve communication work, where parents must strategically and actively design messages as they interact with medical professionals, other family, and friends. Using communication privacy management theory, we analyzed interviews conducted with 35 parents to understand the motivations and strategies involved in their regulation of information about their child's chronic condition. These findings have important practical implications because parental involvement in a chronically ill child's care has direct effects on familial adaptation and adjustment.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

December 2017 List

PMID

PMID: 29072494

Citation

Rafferty KA; Hutton K; Heller S, “"I Will Communicate With You, But Let Me Be In Control": Understanding How Parents Manage Private Information About Their Chronically Ill Children.,” Pediatric Palliative Care Library, accessed May 23, 2022, https://pedpalascnetlibrary.omeka.net/items/show/11125.

Social Bookmarking