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Tags: Pallative care

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The Design of a Data Management System for a Multicenter Palliative Care Cohort Study

CONTEXT: Prospective cohort studies of individuals with serious illness and their family members, such as children receiving palliative care and their parents, pose challenges regarding data management. OBJECTIVE: To describe the design and lessons…

Tags: 2022, August 2022 List, Boyden JY, Campos D, Carroll KW, cohort study, Data Management, Feudtner C, Griffis H, Hall M, Hill DL, Journal of Pain and Symptom Management, Katcoff H, Nye RT, Pallative care, Pediatric, Wolfe J

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