Browse Items (75 total)
- Tags: Support
Helping Families Cope With The Severe Stress Of Dravet Syndrome.
A child with Dravet syndrome shakes family life to the core. Dravet syndrome usually has three phases: (1) up to 1-1½ years: with episodes of febrile status epilepticus but normal development; (2) age 1½ to ~6-10 years: with frequent…
Tags: 2016, Camfield C, Camfield P, Canadian Journal of Neurological Sciences, Dravet Syndrome, Epilepsies, Epilepsies Myoclonic/physiopathology, Epilepsies Myoclonic/psychology, Family, Family Health, Female, Help, Humans, June 2016 List, Male, Management, Myoclonic/nursing, Nolan K, Stress Psychological/etiology, Support, Transition To Adult Care
Compassionate Extubation For A Peaceful Death In The Setting Of A Community Hospital: A Case-series Study
The use of compassionate extubation (CE) to alleviate suffering by terminating mechanical ventilation and withdrawing the endotracheal tube requires professional adherence and efficiency. The Hospice Palliative Care Act, amended on…
Tags: 2016, Airway Extubation - Methods, Clinical Interventions in Aging, Community - Organization & Administration, Compassionate Extubation, End, Euthanasia, Geriatrics, Geriatrics & Gerontology, Good Death, Hospice Care, Hospitals, Intensive-care-unit, Life, March 2016 List, Mechanical Ventilation, Murder, Palliative Care, Palliative Extubation, Quality Of Death, Rc952-954.6, Support, Terminal Care/methods, Victor C Kok, Withdrawal
Lived Experiences Of Parents Caring For A Child With A Life-limiting Condition In Australia: A Qualitative Study.
Experiential studies in paediatric palliative care are needed to enable an ongoing international agenda which supports the development of responsive family supports.
AIM:
To provide an in-depth exploration of the prevalent lived…
Tags: 2016, Cancer, Caregiver, Caregivers, Collins A, Experiences, Families, Health Care Sciences & Services, Hennessy-Anderson N, Hosking S, Hynson J, Illness, Impact, Journal of Palliative Medicine, Life-limiting Conditions, March 2016 List, Medicine General & Internal, Of-life, Pediatric Palliative Care, Public, Public Environmental & Occupational Health, Qualitative, Remedios C, Services, Support, Thomas K, Threatening Conditions
The Needs Of Siblings Of Children With A Life-threatening Illness, Part 2: Psychometric Validation Of The Ibesfems.
Tags: 2016, Adjustment, Childhood-cancer, Cohen SR, Dumont S, Families, Health Policy & Services, Instrument Scni, May 2016 List, Needs, Olivier d’avignon M, Palliative & Supportive Care, Palliative Care, Pediatric Palliative Care, Pediatrics, Quality Of Life, Questionnaire Development, Siblings., Support, Unmet Needs, Valois P, Young-people
Relationships between symptom relief, quality of life, and satisfaction with hospice care
Tags: 1998, Aged, Australia, Backlog, Cohort Studies, Female, Hannan TJ, Horton SM, Hospice Care/standards, Human, Journal Article, Male, Non-U.S. Gov't, Outcome Assessment (health Care), P.H.S., Pain Measurement, Palliative Medicine, Patient Care, Patient Satisfaction, Prospective Studies, Quality Of Life, Support, Tierney RM, Tierney WM, U.S. Gov't
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
Tags: 1998, Backlog, Developed Countries, Hearn J, Higginson IJ, Human, Journal Article, Neoplasms/therapy, Non-U.S. Gov't, Outcome Assessment (health Care), Palliative Care/economics/organization & administration/utilization, Palliative Medicine, Patient Care Team, Patient Satisfaction, Psychology, Quality Of Life, Social, Support
Implementation and evaluation of a quality improvement process to improve pain management in a hospice setting
Tags: 1998, Administration, Alden C, American Journal of Hospice & Palliative Medicine, Backlog, Duggleby W, Hospice Care/standards, Human, Journal Article, Non-U.S. Gov't, Nursing Audit, Outcome and Process Assessment (Health Care)/organization &, Pain/nursing, Program Development, Program Evaluation, Retrospective Studies, Support, Total Quality Management/organization & administration
Identifying potential need for cancer palliation in Nova Scotia
Tags: 1998, 80 And Over, Adult, Aged, Backlog, Burge FI, Canadian Medical Association Journal, Comprehensive Health Care/utilization, Cummings I, Dewar RA, Female, Gibbons L, Health Services Needs and Demand/statistics & numerical data, Human, Johnston GM, Journal Article, Levy IG, Male, Middle Age, Neoplasms/mortality/radiotherapy, Non-U.S. Gov't, Nova Scotia/epidemiology, Odds Ratio, Palliative Care/utilization, Referral And Consultation/statistics & Numerical Data, Retrospective Studies, Support, Survival Analysis
Prognosis for survival and improvement in function in children with severe developmental disabilities
Tags: 1997, Age Distribution, Ashwal S, Backlog, California/epidemiology, Child, Cohort Studies, Developmental Disabilities/mortality, Eyman RK, Follow-up Studies, Human, Infant, Journal Article, Journal of Pediatrics, Newborn, P.H.S., Preschool, Prognosis, Severity Of Illness Index, Shavelle R, Strauss D, Support, Survival Rate, U.S. Gov't
Outcome evaluation in a home palliative care service
Tags: 1997, 80 And Over, Adult, Aged, Backlog, Female, Franceschi P, home care services, Human, Journal Article, Journal of Pain and Symptom Management, Legori T, Male, Mannucci F, Middle Age, Non-U.S. Gov't, Outcome Assessment (health Care), Paci E, Palliative Care, Peruselli C, Prospective Studies, Quality Of Life, Support
The McGill Quality of Life Questionnaire: a measure of quality of life appropriate for people with advanced disease. A preliminary study of validity and acceptability
Tags: 1995, 80 And Over, Adult, Aged, Backlog, Bui F, Cohen SR, Comparative Study, Female, Human, Journal Article, Karnofsky Performance Status, Male, Middle Age, Mount BM, Neoplasms/psychology/therapy, Non-U.S. Gov't, Palliative Care, Palliative Medicine, Predictive Value of Tests, Quality Of Life, Questionnaires, Reproducibility of Results, Strobel MG, Support
The WHO objectives for palliative care: to what extent are we achieving them?
Tags: 1995, Abraham C, Backlog, Health Priorities, Health Services Research, Holistic Health, Hospices/standards, Human, Johnston G, Journal Article, Non-U.S. Gov't, Organizational Objectives, Outcome Assessment (health Care), Palliative Care/standards, Palliative Medicine, Pastoral Care, Professional-family Relations, Social Support, Support, Terminal Care/methods, World Health Organization
Comparison of morphine and methadone for prevention of postoperative pain in 3- to 7-year-old children
Tags: 1991, algorithms, Analysis of Variance, Backlog, Berde CB, Beyer JE, Bournaki MC, Child, Comparative Study, Double-Blind Method, Drug Evaluation, Female, Human, Intraoperative Care, Journal Article, Journal of Pediatrics, Levin CR, Male, Methadone/adverse effects/pharmacokinetics/therapeutic use, Morphine/adverse effects/therapeutic use, Non-U.S. Gov't, Pain, Pain Measurement, Postoperative/prevention & control, Preschool, Prospective Studies, Sethna NF, Support
An update on the leukodsytrophies
Tags: 2001, Adult, Backlog, Boespflug-Tanguy O, Brain Diseases, Child, Current Opinion in Neurology, Diagnosis, Differential, Diseases/diagnosis/genetics, Glial Fibrillary Acidic Protein/genetics, Hereditary Central Nervous System Demyelinating, Human, Inborn/diagnosis/genetics, Journal Article, Metabolic, Myelin Proteolipid Protein/genetics, P.H.S., Schiffmann R, Support, U.S. Gov't
Transdermal fentanyl for pain relief in a paediatric palliative care population
Tags: 2001, Administration, Adolescent, Analgesics, Backlog, Child, Cutaneous, Devine T, Female, Fentanyl/administration & dosage, Goldman A, Human, Hunt A, Journal Article, Male, Non-U.S. Gov't, Opioid/administration & dosage, Pain Measurement, Pain/drug Therapy, Palliative Care, Palliative Medicine, Parents, Patient Satisfaction, Phillips M, Preschool, Support, Terminally Ill, Treatment Outcome
Prevalence and morbidity associated with non-malignant, life-threatening conditions in childhood
Tags: 2001, Adolescent, Adult, Backlog, Child, Child Welfare/statistics & numerical data, Child: Care, Health and Development, Chronic Disease/epidemiology/psychology, Cross-sectional Studies, Disabled Children/psychology/statistics & numerical data, Family, Great Britain/epidemiology, Human, Infant, Journal Article, Lenton S, Lewis M, Mastroyannopoulou K, Mental Health, Newborn, Non-U.S. Gov't, Parent-child Relations, Preschool, Prevalence, Stallard P, Support
Effect of severity of disability on survival in north east England cerebral palsy cohort
Tags: 2000, Archives of Disease in Childhood, Backlog, Birth Weight, Cause Of Death, Cerebral Palsy/mortality, Cohort Studies, Colver AF, Disability Evaluation, England/epidemiology, Female, Human, Hutton JL, Infant, Journal Article, Life Expectancy, Life Style, Mackie PC, Male, Newborn, Non-U.S. Gov't, Prognosis, Risk Factors, Sex Distribution, Support, Survival Rate
Life expectancy of children in vegetative and minimally conscious states
Tags: 2000, Adolescent, Ashwal S, Backlog, Brain Injuries/mortality, Child, Day SM, Enteral Nutrition/mortality, Female, Gastrostomy/mortality, Human, Journal Article, Life Expectancy, Logistic Models, Male, Multivariate Analysis, Non-U.S. Gov't, Odds Ratio, Pediatric Neurology, Persistent Vegetative State/mortality, Preschool, Risk Factors, Shavelle RM, Strauss DJ, Support, Survival Analysis
Reviewing audit: barriers and facilitating factors for effective clinical audit
Tags: 2000, Alder EM, Attitude Of Health Personnel, Backlog, Bibliographic, Comparative Study, Crombie IK, Databases, Davies HT, Evaluation Studies, Family Practice, General, Great Britain, Hospital, Hospitals, Interprofessional Relations, Job Satisfaction, Johnston G, Journal Article, Leadership, Medical Audit/standards, Medical Records/standards, Medical Staff, Medline, Millard A, Non-U.S. Gov't, Nursing Audit, Partnership Practice, Patient Satisfaction, Physician-patient Relations, Physician's Role, Primary Health Care, Quality In Health Care, Quality Of Health Care, Retrospective Studies, Support
Extent and determinants of error in doctors' prognoses in terminally ill patients: prospective cohort study
Population pharmacokinetics of oral morphine and its glucuronides in children receiving morphine as immediate-release liquid or sustained-release tablets for cancer pain
Tags: 1999, Adolescent, Age Factors, Analgesics, Backlog, Case-Control Studies, Child, Comparative Study, Delayed-Action Preparations, Dick G, Dose-Response Relationship, Drug, Goldman A, Human, Hunt A, Infant, Joel S, Journal Article, Journal of Pediatrics, Linear Models, Morphine Derivatives/administration & dosage/blood/pharmacokinetics, Morphine/administration & dosage/blood/pharmacokinetics, Neoplasms/complications, Non-U.S. Gov't, Nonparametric, Opioid/administration & dosage/blood/pharmacokinetics, Pain/drug therapy/etiology, Preschool, Statistics, Support
Audit of deaths in general practice: pilot study of the critical incident technique
Tags: 1992, Backlog, Berlin A, Bhopal RS, Cause Of Death, Data Collection, England, Family Practice/standards, Health Services Research/methods, Human, Journal Article, Medical Audit/methods, Non-U.S. Gov't, Pilot Projects, Primary Health Care/standards, Quality In Health Care, Spencer JA, Support, Urban Population, van Zwanenberg TD
Self-concept of siblings of children with cancer
Tags: 2001, Backlog, Child, Childhood Neoplasms -- Psychosocial Factors, Data Analysis Software, Descriptive Research, Exploratory Research, Female, Human, Issues In Comprehensive Pediatric Nursing, Journal Article, Male, Murray Js, psychosocial, Purposive Sample, Questionnaires, Self Concept -- Evaluation, Self Concept -- In Infancy and Childhood, sibling bereavement, Siblings -- Psychosocial Factors, Southwestern United States, Support, T-Tests
Efficacy of psychotropic drugs for reducing self-injurious behavior in the developmental disabilities
Tags: 1993, Adrenergic beta-Antagonists/tu [Therapeutic Use], Aman MG, Annals Of Clinical Psychiatry : Official Journal Of The American Academy Of Clinical Psychiatrists, Anti-Anxiety Agents/tu [Therapeutic Use], Antidepressive Agents/cl [Classification], Antidepressive Agents/tu [Therapeutic Use], Antipsychotic Agents/ad [Administration & Dosage], Antipsychotic Agents/pd [Pharmacology], Antipsychotic Agents/tu [Therapeutic Use], Backlog, Comparative Study, Dopamine/me [Metabolism], Female, Human, Journal Article, Lithium Carbonate/tu [Therapeutic Use], Male, Mental Retardation/co [Complications], Mental Retardation/di [Diagnosis], Naloxone/tu [Therapeutic Use], Naltrexone/tu [Therapeutic Use], P.H.S., Receptors, Self-Injurious Behavior/co [Complications], Self-Injurious Behavior/dt [Drug Therapy], Support, Treatment Outcome, U.S. Gov't
Loss and meaning: How do people make sense of loss
Gastric antral dysrhythmias in children with chronic idiopathic intestinal pseudoobstruction
Tags: 1992, Adolescence, Backlog, Bisset WM, Child, Devane SP, Electrophysiology, Gastrointestinal Motility/ph [Physiology], Gut, Human, Ileum/pa [Pathology], Infant, Intestinal Pseudo-Obstruction/di [Diagnosis], Intestinal Pseudo-Obstruction/pa [Pathology], Intestinal Pseudo-Obstruction/pp [Physiopathology], Intestine, Journal Article, Lake BD, Large/pa [Pathology], Manometry, Milla PJ, Non-U.S. Gov't, Preschool, Pyloric Antrum/pp [Physiopathology], Ravelli AM, Smith VV, Support
Anticonvulsant drugs for management of pain: a systematic review
Tags: 1995, Anticonvulsants/ae [Adverse Effects], Anticonvulsants/tu [Therapeutic Use], Backlog, British Medical Journal, Carbamazepine/ae [Adverse Effects], Carbamazepine/tu [Therapeutic Use], Carroll D, Clonazepam/ae [Adverse Effects], Clonazepam/tu [Therapeutic Use], Diabetic Neuropathies/dt [Drug Therapy], Human, Jadad AR, Journal Article, McQuay H, Moore A, Non-U.S. Gov't, Pain/dt [drug Therapy], Phenytoin/ae [Adverse Effects], Phenytoin/tu [Therapeutic Use], Support, Treatment Outcome, Trigeminal Neuralgia/dt [Drug Therapy], Valproic Acid/ae [Adverse Effects], Valproic Acid/tu [Therapeutic Use], Wiffen P
Status epilepticus in children: aetiology, treatment, and outcome
Tags: 1997, Adolescence, Age Distribution, Anesthetics, Anticonvulsants, Backlog, Barbiturates/ad [Administration & Dosage], Chi-Square Distribution, Child, Developmental Medicine & Child Neurology, Diazepam/ad [Administration & Dosage], Drug Administration Schedule, Electroencephalography, Encephalitis/co [Complications], Eriksson KJ, Female, Follow-up Studies, Human, Infant, Intravenous/ad [Administration & Dosage], Journal Article, Koivikko MJ, Male, Meningitis, Nervous System Diseases/ep [Epidemiology], Neuropsychological Tests, Non-U.S. Gov't, Preschool, Prevalence, Retrospective Studies, Risk Factors, Septic/co [Complications], Sex Distribution, Shock, Status Epilepticus/di [Diagnosis], Status Epilepticus/dt [Drug Therapy], Status Epilepticus/ep [Epidemiology], Status Epilepticus/et [Etiology], Streptococcal Infections/co [Complications], Support, Time Factors, Treatment Outcome, Viral/co [Complications]
Comparison of different bolus doses of morphine for patient-controlled analgesia in children
Tags: 1994, Adolescence, Analgesia, Appendectomy, Backlog, British Journal Of Anaesthesia, Child, Comparative Study, Doyle E, Female, Human, Journal Article, Male, Marshall C, Morphine/administration & dosage/adverse effects, Morton NS, Mottart KJ, Nausea/chemically induced, Non-U.S. Gov't, Pain, Pain Measurement, Patient-Controlled, Postoperative/prevention & control, Sleep/drug effects, Support, Time Factors, Vomiting/chemically induced
Treatment of pain in pediatric oncology: a Swedish nationwide survey
Tags: 1996, Adolescence, Antineoplastic Agents/adverse effects, Backlog, Berg T, Child, Combined Modality Therapy, Continuing, Drug Administration Routes, Education, Female, Gordh T, Hospital Departments, Human, Infant, Journal Article, Kreuger A, Ljungman G, Male, Medical, Morphine/adverse effects, Neoplasms/complications, Newborn, Non-U.S. Gov't, Nursing, Pain, Pain Measurement, Pain/etiology/therapy, Physician's Practice Patterns, Preschool, Questionnaires, Radiotherapy/adverse effects, Rawal N, Sorensen S, Support, Sweden
Control of severe pain in children with terminal malignancy
Tags: 1995, Adolescence, Analgesia/methods, Backlog, Berde CB, Child, Collins J J, Female, Grier HE, Human, Infant, Infusions, Journal Article, Journal of Pediatrics, Kinney HC, Male, Morphine/administration & dosage/therapeutic use, Neoplasms/physiopathology, Non-U.S. Gov't, Pain/drug Therapy, Palliative Care/methods, Parenteral, Preschool, Retrospective Studies, Support, Terminal Care
High-dose oral morphine in cancer pain management: a report of twelve cases
Tags: 1996, Aged, Analgesics, Backlog, Bischoff A, Case Report, Fatal Outcome, Female, Grond S, Human, Intractable/drug therapy/etiology, Journal Article, Journal of Clinical Anesthesia, Male, Middle Age, Morphine/administration & dosage/adverse effects/therapeutic use, Neoplasms/complications, Non-U.S. Gov't, Opioid/administration & dosage/adverse effects/therapeutic, Pain, Radbruch L, Support, use, Zech DJ
Massive opioid resistance in an infant with a localized metastasis to the midbrain periaqueductal gray
Tags: 1995, Analgesics, Backlog, Berde CB, Brain Neoplasms/congenital/drug therapy/pathology/secondary, Case Report, Collins J J, Dose-Response Relationship, Drug, Drug Resistance, Grier HE, Human, Hypnotics and Sedatives/therapeutic use, Infant, Journal Article, Kinney HC, Male, Mesencephalon, Morphine/therapeutic Use, Nachmanoff DB, Newborn, Non-U.S. Gov't, Opioid/therapeutic use, Pain, Palliative Care, Periaqueductal Gray, Rhabdoid Tumor/congenital/drug therapy/pathology/secondary, Support
National hospice study analysis plan
Tags: 1983, Backlog, Birnbaum H, Costs And Cost Analysis, Evaluation Studies/methods, Family, Greer DS, Health Services Research/methods, Hospices/economics, Human, Journal Article, Journal Of Chronic Diseases, Models, Mor V, Morris JN, Non-U.S. Gov't, P.H.S., Research Design, Sherwood S, Support, Theoretical, U.S. Gov't, United States
An alternative in terminal care: results of the National Hospice Study
Tags: 1986, Adult, Aged, Backlog, Birnbaum H, Cancer Care Facilities, Comparative Study, Costs And Cost Analysis, Female, Greer DS, Health, Health Services Research, home care services, Hospices/classification/economics/organization & administration, Hospitalization, Human, Insurance, Journal Article, Journal Of Chronic Diseases, Kidder D, Male, Medicare/economics, Middle Age, Models, Mor V, Morris JN, Neoplasms/physiopathology/psychology/therapy, Non-P.H.S., Non-U.S. Gov't, Outcome And Process Assessment (health Care), Pain/epidemiology, Quality Of Life, Reimbursement/economics, Sherwood S, Support, Terminal Care/economics/organization & administration, Theoretical, U.S. Gov't, United States
An overview of National Hospice Study findings
Tags: 1986, Backlog, Comparative Study, Costs And Cost Analysis, Greer DS, Home Nursing, Hospices/economics, Human, Journal Article, Journal Of Chronic Diseases, Mor V, Non-P.H.S., Non-U.S. Gov't, Palliative Care, Psychological, Public Policy, Quality Of Life, Stress, Support, Terminal Care/economics, U.S. Gov't, United States