Neuropalliative Care for Neonates

Title

Neuropalliative Care for Neonates

Creator

Rent SM; Bidegain M; Bost MH; Hornik C; Lemmon ME

Publisher

Journal of Child Neurology

Date

2021

Subject

infant; neonate; neuropalliative care; pediatric; preterm; quality of life

Description

Many childhood neurologic conditions are first diagnosed in the perinatal period and shorten or seriously alter the lives of affected infants. Neonatal neuropalliative care incorporates core practices and teachings of both neurology and palliative care and is directed toward patients and families affected by serious neurologic conditions in the antenatal and immediate newborn period. This review outlines key considerations for neurologists hoping to provide a neuropalliative care approach antenatally, in the neonatal intensive care unit, and around hospital discharge. We explore 4 core domains of neuropalliative care: (1) family-centered communication, (2) prognostication, (3) decision making, and (4) pain and symptom management. We address special considerations in care at the end of life and in varied cultural and practice contexts.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

December 2021 List

Collection

Citation

Rent SM; Bidegain M; Bost MH; Hornik C; Lemmon ME, “Neuropalliative Care for Neonates,” Pediatric Palliative Care Library, accessed May 23, 2022, https://pedpalascnetlibrary.omeka.net/items/show/17754.

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