Mechanical Ventilation for a Child With Quadriplegia

Title

Mechanical Ventilation for a Child With Quadriplegia

Creator

Novotny WE; Perkin RM; Mukherjee D; Lantos JD

Publisher

Pediatrics

Date

2014

Subject

quality of life; Ethics; decisional capacity; quadriplegia; right to refuse treatment; substituted judgment

Description

Parents generally have the right to make medical decisions for their children. This right can be challenged when the parents’ decision seems to go against the child’s interests. The toughest such decisions are for a child who will survive with physical and neurocognitive impairments. We discuss a case of a 5-year-old boy who suffered a spinal injury as a result of a motor vehicle accident and whose father requests discontinuation of life support. Many experts recommend a “trial of therapy” to clarify both prognosis and quality of life. The key ethical question, then, is not whether to postpone a decision to forego mechanical ventilation. Instead, the key question is how long to wait. Parents should be allowed time to see what life will be like for themselves and for their child. Most of the time, life turns out better than they might have imagined. Comments are provided by 2 pediatric intensivists, Drs William Novotny and Ronald Perkin of East Carolina University, and by a specialist in rehabilitation, Dr Debjani Mukherjee of the Rehabilitation Institute of Chicago.
2014-08

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation

Novotny WE; Perkin RM; Mukherjee D; Lantos JD, “Mechanical Ventilation for a Child With Quadriplegia,” Pediatric Palliative Care Library, accessed January 20, 2022, https://pedpalascnetlibrary.omeka.net/items/show/14820.

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