Families' experiences of caring for technology-dependent children: a temporal perspective

Title

Families' experiences of caring for technology-dependent children: a temporal perspective

Creator

Heaton J; Noyes J; Sloper P; Shah R

Publisher

Health & Social Care in the Community

Date

2005

Subject

Children; PedPal Lit; Adolescent Caregivers/psychology ChildDisabled Children EnglandEquipment and SuppliesFamily Home Nursing Humans Male Research Support; and who provided technical care during the day and/or at night at home and in other settings. While the children's health and quality of life benefited from the technology; better coordinat(TRUNCATED); depending on the type and number of devices used; dialysis machines and ventilators. Using mainly qualitative methods; employment and social life in general. The need to use and oversee the use of some medical technologies at night also meant that many parents suffered regular disruption to their sleep. In conclusion; families' experiences of caring for a technology-dependent child were examined from a temporal perspective. This involved exploring the multiple 'technological'; limiting their participation in school; Non-U.S. Gov't%X In the present study; parents and siblings were interviewed to establish what the care routines involved and how these impacted on family members. The authors found that the rhythms and routines of care varied across the sample; suction machines; the individual child's needs; the t ime demands of the care routines and lack of compatibility with other social and institutional timeframes had some negative implications for the children and their families

Description

2005

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

441-50

Issue

5

Volume

13

Citation

Heaton J; Noyes J; Sloper P; Shah R, “Families' experiences of caring for technology-dependent children: a temporal perspective,” Pediatric Palliative Care Library, accessed January 17, 2022, https://pedpalascnetlibrary.omeka.net/items/show/13477.

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