Caring for a child with cancer: a longitudinal perspective

Caring for a child with cancer: a longitudinal perspective

Svavarsdottir EK

Journal Of Advanced Nursing

2005

PedPal Lit; Adolescent Adult Caregivers/psychology Child Child; 12 and 18 months. RESULTS: The most time-consuming and difficult caregiving activities for both mothe rs and fathers were giving emotional support to the child with cancer; and fathers' caregiving demands and health perceptions changed statistically significantly over the 18 months of the study. CONCLUSION: These findings u(TRUNCATED); and how the parents perceive the health status of their child over a period of 18 months. BACKGROUND: Cancer among children has psychological impact on all family members. Most previous research has focused on distress; and less is known about how parents are dealing with the illness experience over time. No study was found that evaluated caregiving on a daily basis; and to give their partner emotional support. When evaluated over time; coping patterns and social support; general wellbeing and health perceptions. Descriptive statistics and Repeated Analyses of Variance were conducted at baseline; mothers' caregiving demands differed statistically significantly from fathers'; Newborn Longitudinal Studies Male Middle Aged Neoplasms/nursing/psychology Parent-Child Relations Parenting/psychology Parents/psychology Research Support; Non-U.S. Gov't%X AIMS: This paper reports a study to evaluate caregiving demands among mothers and fathers of children with cancer; or the impact of the cancer on wellbeing and perceptions of health within families. METHODS: Data were collected between 1999 and 2001. Parents of 26 Icelandic children under 18 years with cancer completed questionnaires about caregiving activities; parents' well-being; Preschool Cost of Illness Emotions Family Health Female Home Nursing/psychology Humans Infant Infant

2005

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