Lethal Fetal Abnormalities: How To Approach Perinatal Palliative Care?

Title

Lethal Fetal Abnormalities: How To Approach Perinatal Palliative Care?

Creator

Tosello B; Haddad G; Gire C; Einaudi MA

Publisher

Journal Of Maternal, Fetal And Neonatal Medicine

Date

2016

Subject

Obstetrics & Gynecology; Anomalies; Prenatal-diagnosis; Malformations; Pregnancy; Professionals
Ethical Issue; Fetal Abnormality; Information; Palliative Care; Perinatal Medicine

Description

OBJECTIVE:
Some of the antenatally diagnosed fetal pathologies are unlikely to get compatible with life. Still some women choose to continue with pregnancy. Subsequently, perinatal palliative care (PPC) has become a constructive demarche in such situations. Our study, based on a multicentric survey, reports some cases of fetal pathologies considered as lethal according to perinatal professionals and reveals the decisional process in each case.

METHODS:
We sent by emails a questionnaire to 434 maternal-fetal medicine specialists and fetal care pediatric specialists at 48 multidisciplinary centers for prenatal diagnosis.

RESULTS:
The participation rate was 49.3%. In total, 61 obstetric-gynecologists and 68 neonatologists completed the survey. The results showed that 35.4% of the pregnant women asked for the continuation of pregnancy and 24.7% asked for the termination of pregnancy. More than half of professionals (52.9%) took the initiative of informing women about the options for birth support (including PPC), while 32.7% of obstetric gynecologists did not take this initiative versus 10.2% of neonatologists (p  < 0.01).

CONCLUSION:
This study demonstrates the absolute need to provide PPC training for professionals and to standardize its practices.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

May 2016 List

Citation

Tosello B; Haddad G; Gire C; Einaudi MA, “Lethal Fetal Abnormalities: How To Approach Perinatal Palliative Care?,” Pediatric Palliative Care Library, accessed May 16, 2022, https://pedpalascnetlibrary.omeka.net/items/show/10605.

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