Browse Items (73 total)
- Tags: Psychology
'In Palliative Care We Help Children Make Memories'
"It's not about treatment, it's how to improve your life": The lived experience of occupational therapy in palliative care
Tags: 2016, Adolescent, Adult, Aged, Australia, Badger S, December 2017 List, Female, Honey A, Human, Macleod R, Male, Middle Aged, Occupational Therapy, Palliative & Supportive Care, Palliative Therapy, Procedures, Professional-patient Relationship, Psychology, Qualitative Research, Quality Of Life, Standards, Very Elderly
"you Don't Know Until You Get There": The Positive And Negative "lived" Experience Of Parenting An Adult Child With 22q11.2 Deletion Syndrome.
22q11.2 deletion syndrome (22q11DS), a complex genetic syndrome associated with more than 180 features, presents complex challenges for parents including gaining a diagnosis. This phenomenological study sought the "lived" interpretations…
Tags: 2016, 22q11.2 Deletion Syndrome, Campbell LE, Developmental-disabilities, Disorders, Families, Goodwin J, Health Psychology, Interpretative Phenomenological Analysis, Ipa, McCormack L, Mothers, Prevalence, Psychological Growth, Psychology, Psychology Clinical, September 2016 List, Stress, Symptoms, Trauma, Traumatic Distress, Velo-cardio-facial Syndrome
A difference in perception of quality of life in chronically ill children was found between parents and pediatricians
Tags: [95% CI 2.00-11.22]), [95% CI 2.88-18.97], 2005, Acute, Adolescent Arthritis, and asthma (2.3, Backlog, Gemke RJ, Janse AJ, Journal Article, Journal Of Clinical Epidemiology, juvenile idiopathic arthritis (4.7, Juvenile Rheumatoid/physiopathology/psychology/rehabilitation Asthma/physiopathology/psychology/rehabilitation Child Child, Kimpen JL, Lymphocytic, Pediatrics, PedPal Lit, physiology Male Pain, physiopathology, physiopathology Parents, Preschool Chronic Disease/psychology/, Psychology, Quality Of Life, rehabilitation Cognition Cross-Sectional Studies Cystic Fibrosis, rehabilitation Emotions Female Health Status Indicators Humans Infant Leukemia, rehabilitation Locomotion, Sinnema G, Social Perception Speech/physiology, Uiterwaal CS
A review of subjective impact measures for use with children and adolescents with epilepsy
Tags: 2004, Adolescent Child Child, Backlog, Baker GA, Cowan J, instrumentation Quality of Life, Journal Article, PedPal Lit, physiopathology/psychology Female Great Britain Humans Male Outcome Assessment (Health Care) Psychometrics/, Preschool Epilepsy/, Psychology, Quality of Life Research, Sickness Impact Profile
Adaptive and maladaptive behaviour in children with Cri-du-chat syndrome
Awareness of pediatric palliative care among health care workers
Barriers of Palliative Care in Neonatal Intensive Care Units
Tags: 2017, Adult, Ahmadi JS, Azzizadeh Forouzi M, Banazadeh M, Clinical Competence, Cross Sectional Study, December 2017 List, Female, Health Personnel Attitude, Human, Iran, Islam, Male, Middle Aged, Neonatal Intensive Care Unit, Newborn, Nursing Staff, Organization, Organization And Management, Palliative Therapy, Psychology, Razban F, Reproducibility, Socioeconomics, Terminal Care, The American Journal of Hospice & Palliative Care
Bereaved Caregivers Perspectives of Negative Communication Experiences Near the End of Life for Adolescents and Young Adults with Cancer
Tags: 2022, 2022 Special Edition 3 - Oncology List, Adolescent, adolescent and young adult, Bakitas M, Cancer, Caregiver, Communication, Currie ER, Death, End Of Life, Female, Gilbertson-White S, Human, interpersonal, Journal Of Adolescent And Young Adult Oncology, Keenan MA, Lindley LC, Mack JW, Neoplasm, Palliative Care, Physician-patient relationship, Psychology, Roeland EJ, Schulz GL, Sisk BA, Terminal Care, Young Adult
Bereavement outcomes for parents who lose a child to cancer: are place of death and sex of parent associated with differences in psychological functioning?
Tags: 2004, Adaptation, Adult, Anxiety/diagnosis/epidemiology/psychology, Attitude To Death, Backlog, Bereavement, Child, Depression/diagnosis/epidemiology/psychology, Drew D, Female, Goodenough B, Higgins S, Humans, Journal Article, Location Of Death, Longitudinal Studies, Male, Outcome Assessment (health Care), Parents/psychology, Psycho-Oncology, Psychological, Psychology, Questionnaires, Sex Factors, Trethewie S
Brief report: psychosocial functioning of fathers as primary caregivers of pediatric oncology patients
Tags: 2007, Adult, Backlog, Bonner MJ, Caregivers/statistics & numerical data, Child, Disabled Children/statistics & numerical data, father experience, Fathers/psychology/statistics & numerical data, Hardy KK, Humans, Hutchinson KC, Journal Article, Journal of Pediatric Psychology, Male, Neoplasms/epidemiology, Psychological/diagnosis/epidemiology/psychology, Psychology, Questionnaires, Social Adjustment, Social Behavior, Stress, Willard VW
Changing geographies of care: employing the concept of therapeutic landscapes as a framework in examining home space
Tags: 2002, Aged, Backlog, Caregivers/psychology, Cost-Benefit Analysis, Delivery of Health Care/trends, Female, Geography, Home Nursing/economics/psychology, Hospitalization, Humans, Journal Article, Non-U.S. Gov't, Patient-centered Care, Psychology, Research Support, Self Concept, Social, Social Change, Social Environment, Social Responsibility, Social science & medicine, Williams A, Women/psychology
Chinese Neonatal Nurses' Lived Experiences of Providing End-of-Life Care in the NICU: A Descriptive Phenomenological Study
Chronic abdominal pain in children: an update
Tags: 2006, Abdominal Pain/diagnosis/epidemiology/therapy, Adolescent, Backlog, Child, Chronic Disease, Combined Modality Therapy, Continuing, Education, Female, Friesen CA, Gastrointestinal Diseases/diagnosis/epidemiology/therapy, Humans, Journal Article, Male, Medical, Missouri Medicine, Missouri/epidemiology, Pain Measurement, PedPal Lit, Preschool, Prevalence, Prognosis, Psychology, Risk Assessment, Schurman JV, Severity Of Illness Index, Socioeconomic Factors
Comparing PECS and VOCA to promote communication opportunities and to reduce stereotyped behaviors by three girls with Rett syndrome
Tags: 2 boys, 2014, Albano V, Augmentative and alternative communication, Autism, contact, Damiani R, De Pace C, DEVELOPMENTAL, Developmental-disabilities, Di Leone A, Disabilities, Education & Educational Research, environmental stimuli, Indices of happiness, keyboard emulator, microswitch-based programs, motor disabilities, Perilli V, physical intervention, Picture exchange communication systems, profound multiple disabilities, Psychiatry, Psychology, Quality Of Life, quality-of-life, Rehabilitation, Research In Autism Spectrum Disorders, Rett syndrome, Social, spectrum disorders, Stasolla F, stereotypies, tone and motor problems, Vocal output communication aid
Content specificity of attention bias to threat in anxiety disorders: A meta-analysis
Tags: 2015, anxiety, Anxiety Disorders - psychology, Attention, Attention bias modification, Backlog, Bakermans-Kranenburg MJ, Bar-Haim Y, Clinical, Clinical Psychology Review, CONSCIOUS AWARENESS, EMOTIONAL STROOP, GENERALIZED SOCIAL PHOBIA, Journal Article, Naim R, OBSESSIVE-COMPULSIVE DISORDER, PANIC DISORDER, Pergamin-HL, PHYSICAL THREAT, Post-Traumatic Stress Disorder, PREATTENTIVE BIAS, PREFRONTAL CORTEX ACTIVATION, Psychology, SELECTIVE ATTENTION, THREAT, van Lizendoorn MH
Depression and anxiety symptoms in children and adolescents with autism spectrum disorders without intellectual disability
Tags: 2012, Adolescents, anxiety, ASPERGER-SYNDROME, At Risk Persons, Autism, Backlog, Case L, Children, Comorbidity, Daniolos P, Depression, Depression/psychology, DEVELOPMENTAL, DIAGNOSTIC INTERVIEW, Education, FRIENDSHIP, Intelligence Quotient, Journal Article, Kenworthy L, Martin A, Parent, People, PERVASIVE DEVELOPMENTAL DISORDERS, Prevalence, PSYCHIATRIC-DISORDERS, Psychiatry, Psychology, Rehabilitation, Research In Autism Spectrum Disorders, Special, Strang JF, Symptoms (Individual Disorders), VERSION, Wallace GL, Wills MC
Discussing Death as a Possible Outcome of PICU Care
Tags: 2018, Attitude To Death, Child, Critical Illness, Death, Decision Making, doctor patient relationship, Family, Female, Gilleland JC, Human, Interpersonal Communication, Male, March List 2024, Parshuram CS, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Physician, Psychology, Risk Assessment, Terminal Care, Uncertainty
Discussing Serious News
Tags: 2017, Adult, Bereavement, December 2017 List, Doctor Patient Relation, Education, Emotion, Empathy, Female, Flint H, Hospital, Hossain M, Human, Interpersonal Communication, Klein M, Male, Medical Education, Meyer M, Palliative Therapy, Parent, Pediatrics, Procedures, Psychology, The American Journal of Hospice & Palliative Care
Diversity of Parent Emotions and Physician Responses During End-of-Life Conversations
Tags: 2023, Akkermans AA, Child, Child Parent Relation, Critical Illness, de Hoog M, de Vos MA, Death, Dijk PH, Emotion, Human, Kneyber MCJ, Linn AJ, Newborn, October List 2039, Pediatrics, Physician, Prins S, Psychology, Simons SHP, Smets EMA, van de Loo M, van Heerde M, van Kaam AHLC, van Woensel JBM
Do specialist palliative care teams improve outcomes for cancer patients? A systematic literature review
Tags: 1998, Backlog, Developed Countries, Hearn J, Higginson IJ, Human, Journal Article, Neoplasms/therapy, Non-U.S. Gov't, Outcome Assessment (health Care), Palliative Care/economics/organization & administration/utilization, Palliative Medicine, Patient Care Team, Patient Satisfaction, Psychology, Quality Of Life, Social, Support
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Ethical, Cultural, Social, and Individual Considerations Prior to Transition to Limitation or Withdrawal of Life-Sustaining Therapies
Tags: 2018, Balit CR, Carnevale FA, Child, Child Parent Relation, Critical Illness/th [therapy], Decision Making, Ethics, Female, Human, Kirsch RE, Larcher V, Latour JM, Male, March List 2024, Patient Participation, Pediatric Critical Care Medicine, Pediatric Intensive Care Unit, Psychology, social media, Terminal Care, transcultural care, Treatment Withdrawal
Experiences Of Healthcare Professionals In The Community Dealing With The Spiritual Needs Of Children And Young People With Life-threatening And Life-limiting Conditions And Their Families: Report Of A Workshop
Tags: 2015, Adolescent, Adult, Barnes J, Bluebond-Langner M, BMJ Supportive & Palliative Care, Child, Craig F, Health Care Personnel, Health Personnel Attitude, Human, Human Relation, Jones L, Kelly P, Llewellyn H, O'Gorman B, Palliative Therapy, Psychology, Religion, September 2017 List, Young Adult
Exploring NICU Nurses' Affective Responses to End-of-Life Care
Tags: 2017, Adult, Advances In Neonatal Care : Official Journal Of The National Association Of Neonatal Nurses, Affect, Aged, Anger, Coping Behavior, December 2017 List, Female, Guilt, Human, Identity, Lewis SL, Mental Stress, Middle Aged, Neonatal Intensive Care Unit, Neonatal Nurse, Newborn Intensive Care, Psychology, Qualitative Research, Terminal Care, Verbal Communication
Factors related to the quality of life in adolescents with chronic pain
Tags: 2006, Adolescent, Backlog, Child, Chronic Disease, Cross-sectional Studies, Female, Hazebroek-Kampschreur AA, Humans, Hunfeld JA, Journal Article, Koes BW, Male, Merlijn VP, Netherlands/epidemiology, Pain Measurement, Pain/diagnosis/epidemiology/psychology, Passchier J, PedPal Lit, Prognosis, Psychology, Quality Of Life, Questionnaires, Risk Assessment/methods, Risk Factors, The Clinical Journal Of Pain, van der Wouden JC
Family-Centered Culture Care: Touched by an Angel
Tags: 2019, Attitude To Death, Child, cultural anthropology, Empathy, Ethics, ethnology, Family Nursing, Hernandez JA, Hinduism, Human, Human Relation, Impatiens, Infant, Journal of Clinical Ethics, March List 2024, Mental Stress, Morality, Newborn, Nursing Staff, Psychology, Religion, touch, Treatment Refusal
Fifteen-minute consultation: How to approach the withdrawal of neonatal intensive care
Fifteen-minute consultation: How to communicate with parents who have a child on life support with no hope of recovery
Human suffering: the need for relationship-based research in pediatric end-of-life care
Tags: 2004, Adaptation, Child, Coldsmith A, Health Services Needs And Demand, Hellsten MB, Humans, Interpersonal Relations, Journal Of Pediatric Oncology Nursing, Kane JR, Neoplasms/co [complications], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Psychological, Psychological/et [etiology], Psychological/nu [nursing], Psychological/px [psychology], Psychology, Quality Of Life, Sick Role, Social Support, Spirituality, Stress, Terminal Care, Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Impact of child death on paediatric trainees
Tags: 2018, Acute/ epidemiology, Adult, Archives of Disease in Childhood, Attitude To Death, Child, Death, February 2018 List, Female, Finn GM, Griksaitis MJ, Hollingsworth CE, Huckridge J, Humans, Intensive Care, Internship And Residency, Male, Middle Aged, Occupational Health, Only Child, Palliative Care, Pediatrics, Physicians/ psychology, Post-traumatic, Post-Traumatic/ epidemiology, Prevalence, Psychology, Stress Disorders, Surveys And Questionnaires, Traumatic, United Kingdom, Wesley C
Incompatible with Care: Examining Trisomy 18 Medical Discourse and Families' Counter-discourse for Recuperative Ethos
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross Sectional Study, Death, Duroux A, Dyspnea/di [diagnosis], Female, Führer M, Grasser M, Home Care, Human, January 2017 List, Male, Pain/di [diagnosis], Palliative & Supportive Care, Palliative Therapy, Parent, Pediatrics, Perception, Procedures, Psychology, Quality Of Life, Questionnaire, Retrospective Study, Standards, Symptom Assessment, Vollenbroich R
Longitudinal Perinatal Palliative Care for Severe Fetal Neurologic Diagnoses
Loss and meaning: How do people make sense of loss
Medical, surgical, and health outcomes of gastrostomy feeding
Tags: 2006, Adolescent, Anthropometry, Backlog, Carr LJ, Cass H, Child, Cognition Disorders/epidemiology, Craig GM, Developmental Medicine and Child Neurology, Diet Records, Disabled Children, Female, Gastrostomy/statistics & numerical data, Hastings RP, Health Status, Humans, Infant, Journal Article, Lawson M, Male, Motor Skills Disorders/epidemiology, Nutritional Failure, Nutritional Status, Postoperative Complications/epidemiology, Preschool, Prospective Studies, Psychology, Reilly S, Ryan M, Spitz L, Townsend J
Palliative Care for Infants in the Neonatal Intensive Care Unit: A Scoping Review
Palliative care management of a child with juvenile onset Huntington's disease
Tags: 2005, Adolescent Adolescent Psychology Attitude to Death Attitude to Health Conscious Sedation, Backlog, complications, etiology, International Journal of Palliative Nursing, Journal Article, King N, Methods, methods England Family, methods Grief Helping Behavior Hospices, organization & administration, organization & administration Humans Huntington Disease, Organizational Nursing Assessment Pain, PedPal Lit, prevention & control Palliative Care, Psychology, psychology Female Gastrostomy, psychology Patient Care Planning Patient Care Team, the issues around terminal care management are very similar to those for any neuro-degenerative disorder, therapy Models
Parent Priorities in End-of-Life Care for Children With Cancer
Tags: 2023, 2023 SE3 - Oncology, Ananth P, Bayes Theorem, Boyden JY, Child, Child Parent Relation, Cross-sectional Study, de Oliveira S, Death, Female, Feudtner C, Gross CP, Human, JAMA Network Open, Kirch R, Lindsay M, Ma X, McCollum S, Middle Aged, Mun S, neoplasm/th [Therapy], Pitafi S, Psychology, Shabanova V, Terminal Care, Wolfe J