Browse Items (58 total)
- Tags: Needs Assessment
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
[Validation of the European Portuguese Version of a Pediatric Palliative Needs Assessment Tool: The Pediatric Palliative Screening Scale]
A qualitative approach to community and provider needs assessment in a telehealth project
Access to health care for young adults with disabling chronic conditions
Tags: 2006, Adolescent Transitions, Adult, Archives Of Pediatrics & Adolescent Medicine, Backlog, Callahan ST, Chronic Disease/economics, Cooper WO, Disabled Persons, Female, Health, Health Services Accessibility/economics/statistics & numerical data, Humans, Insurance, Journal Article, Male, Medically Uninsured/statistics & numerical data, Needs Assessment, United States
Adaptation and Feasibility of the interRAI Family Carer Needs Assessment in a Pediatric Setting
Addressing spirituality in pediatric hospice and palliative care
Tags: 2002, Adult, Backlog, Brenner P, Child, Child Psychology, Davies B, Family/psychology, Holistic Health, Human, Journal Article, Journal Of Palliative Care, Needs Assessment, Nursing Assessment, Orloff S, Palliative Care/methods/psychology/standards, Pastoral Care/methods/standards, Pediatrics/methods, Practice Guidelines, Religion and Medicine, Religion and Psychology, Spirituality, Sumner L, Worden W
Adolescents in transition of adult care: why the concern?
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Betz CL, Congenital/nursing/rehabilitation/therapy, Continuity Of Patient Care/organization & Administration, Health, Heart Defects, Humans, Insurance, Journal Article, Needs Assessment, Patient Care Planning/organization & administration, Planning Techniques, Self Care, The Nursing Clinics Of North America, United States
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needs
Tags: 2021, Amarri S, Bertelli S, Bertolini P, Bianchi E, Caldarelli V, Campagna A, Children With Medical Complexity, Cortina I, De Panfilis L, Fornaro M, Gabriele C, Gulmini L, Hospices, Italian Journal of Pediatrics, Locatelli C, Magistà A, Mazzoni E, Melchionda F, Mondardini MC, Needs Assessment, Ottaviani A, Paediatrics, Palliative Care, Poggi G, Prevalence, Riva M, Sani E, September 2021 List, Serra L, Soffritti S
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Developing a nursing dependency scoring tool for children's palliative care: the impact on hospice care
Tags: 2021, Allocation, Bed Occupancy, Complex health needs, England, Hospice And Palliative Care Nursing, Hospice Care/organization & administration, Hospices, Humans, International Journal of Palliative Nursing, Leadership, Martin C, May 2021 List, Moore C, Needs Assessment, Nursing Models, Palliative Care/organization & Administration, Resource Allocation, Respite Care/organization & administration, Tatterton M, Technology dependence, Walker C
Developing a process to support perinatal nurses after a critical event
Tags: 2014, Adaptation, Attitude To Death, Backlog, Clinical Competence, Crisis Intervention, Emergencies, Family Nursing, Foreman S, Grief, Humans, Journal Article, Models, Needs Assessment, Neonatal Nursing, Nursing For Women's Health, Nursing Methodology Research, Perinatal Care, Program Development, Psychological, Risk Management, Self Care, Social Support, Staff Development, Stress, Terminal Care
Development and Assessment of a Measure of Parent and Child Needs in Pediatric Palliative Care
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
Development of a Global Palliative Care Program
Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study
Enabling the transition to hospice through effective palliative care
Tags: 2005, Attitude To Death/ethnology, Backlog, Bomba PA, Case Management/organization & administration, Chronic Disease, Continuity of Patient Care/organization & Disease Progression, Hospice Care/organization & administration/psychology, Humans, Journal Article, Life Expectancy, Models, Needs Assessment, Organizational, Organizational Objectives, Palliative Care/organization & Professional Role, Prognosis, Quality Of Life, Referral and Consultation/organization & United States, The Case Manager
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Estimating The Global Need For Palliative Care For Children: A Cross-sectional Analysis
The need for children's palliative care (CPC) globally is unknown. To understand the scope of the need and to advocate to meet it, more accurate estimates are needed.
OBJECTIVES:
The objective of this study was to create an accurate global…
Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity
Tags: 2017, Academic Pediatrics, Attitude Of Health Personnel, Barnert ES, Chan V, Child, Child Health Services/organization & administration, Chung P J, Coller R J, Disabled Children/psychology, Female, Health Personnel/psychology, Humans, Interviews As Topic, July 2018 List, Klitzner TS, Male, Needs Assessment, Nelson BB, Padilla C, Patient-centered Care, Population Health, Preschool, Szilagyi M, Thompson LR, Treatment Outcome
Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care
Tags: 2008, Attitude Of Health Personnel, Backlog, Family/psychology, Focus Groups, Forbat L, Health Services Accessibility, Health Services Needs And Demand, Hospice Care/organization & administration/standards, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & administration/standards, Palliative Medicine, Qualitative Research, Research/organization & administration, Respite Care, Scotland, Terminal Care/organization & administration/psychology/standards
Exploring the Palliative Care Needs of Children in Refugee Settlements in Uganda
Tags: 2023, 2023 SE5 - Low Resource Setting, Adult, Bagasha P, Child, Chronic Disease, conference abstract, Data Analysis, Distress Syndrome, Downing J, Grant L, Howarth K, Human, Ikong H, Leng M, Maku S, McGeough K, mentor, Nabirye L, Nalutaaya F, Namukwaya E, Needs Assessment, Only Child, Opia V, Oziti G, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, refugee camp, Santiago T, Smith C, Thermometer, uganda, Venkatesh C
Exploring The Spiritual Needs Of Families With Seriously Ill Children
Tags: 2016, Adolescent, August 2016 List, Child, Cultural Characteristics, Family/psychology, Female, Ferrell B, Humans, International Journal of Palliative Nursing, Male, Needs Assessment, Nursing, Nursing Assessment, Palliative Care, Pediatrics, Professional-family Relations, Qualitative, Qualitative Research, Spirituality
Family, maternal, and child health through photovoice
Tags: 2004, Adolescent, Adult, Backlog, California, Child, Child welfare, Community Networks, Family Health, Female, Health Planning, Humans, Journal Article, Male, Maternal And Child Health Journal, Maternal Welfare, Middle Aged, Needs Assessment, Non-U.S. Gov't, Photography, Pies CA, Policy Making, Research Support, Wang CC
Healthcare Satisfaction and Unmet Needs Among Bereaved Parents in the NICU
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Advances in Neonatal Care, Baughcum AE, Bereavement, Delivery of Health Care, Dunnells ZDO, Fortney CA, Gerhardt CA, Humphrey LM, Infant, Needs Assessment, neonatal intensive care, Newborn Infant, Palliative Care, Parents, Personal Satisfaction, Prospective Studies, Terminal Care, Winning AM
Hospital inpatient use in mainland Portugal by children with complex chronic conditions (2011 - 2015). [Portuguese]
Tags: 2019, Acta Médica Portuguesa, Adolescent, Article, Cancelinha C, cancer radiotherapy, Child, Controlled Study, Death, developed country, Female, Hospital Patient, Hospitalization, Human, Lacerda A F, Length Of Stay, Lopes S, Male, Mortality, national health service, Needs Assessment, Newborn, nonparametric test, October 2019 List, Oliveira G, Outpatient, Palliative Care, Palliative Therapy, pediatric patient, Portugal, Radiotherapy, Retrospective Study
Improving pediatric palliative care in a community-based setting through an ongoing education series
Tags: 2019, administrative personnel, Checklist, Child, Clergy, Comfort, community hospital, conference abstract, Conversation, do not resuscitate order, Dying, Education, Female, Hospice Care, Human, Likert scale, Major Clinical Study, Male, Moonat H, Needs Assessment, Nguyen L, Nurse, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pharmacist, Simulation, Social Worker, Texas
interRAI Pediatric Home Care (PEDS-HC) Assessment Tool: Evaluating Ontario Healthcare Workers’ Experience
Introduction of triggers for palliative care consultation improve utilization and and satisfaction within a level 4 NICU
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Pain in children with cerebral palsy: a review.
Tags: 2004, Activities of Daily Living, Backlog, Cerebral Palsy/co [Complications], Child, Child welfare, Engel Joyce M, Humans, Jensen MP, Journal Article, Kieckhefer GM, Labyak S, Motor Skills, Needs Assessment, Nurse's Role, Nursing Assessment, Pain, Pain Management, Pain Measurement, Pain/di [diagnosis], Pain/et [Etiology], Risk Factors, Severity Of Illness Index, The Journal Of Neuroscience Nursing : Journal Of The American Association Of Neuroscience Nurses
Pain therapy, pediatric palliative care and end-of-life care: training, experience, and reactions of pediatric residents in Italy
Tags: 2014, Adult, Agosto C, Benini F, Child, European Journal of Pediatrics, Female, Ferrante A, Humans, Internship And Residency, Italy, January 2018 List, Male, Middle Aged, Needs Assessment, Pain/dt [drug Therapy], Palliative Care, Palliative Care/st [standards], Palliative Care/td [trends], Pediatrics/ed [education], Po C, Rusalen F, Salata M, Surveys And Questionnaires, Terminal Care, Terminal Care/st [standards], Terminal Care/td [trends]
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
Palliative communication skills training for pediatric nurse practitioners: A novel program with booster sessions
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends