Browse Items (58 total)
- Tags: Needs Assessment
Children with medical complexity and paediatric palliative care: a retrospective cross-sectional survey of prevalence and needs
Tags: 2021, Amarri S, Bertelli S, Bertolini P, Bianchi E, Caldarelli V, Campagna A, Children With Medical Complexity, Cortina I, De Panfilis L, Fornaro M, Gabriele C, Gulmini L, Hospices, Italian Journal of Pediatrics, Locatelli C, Magistà A, Mazzoni E, Melchionda F, Mondardini MC, Needs Assessment, Ottaviani A, Paediatrics, Palliative Care, Poggi G, Prevalence, Riva M, Sani E, September 2021 List, Serra L, Soffritti S
Healthcare Satisfaction and Unmet Needs Among Bereaved Parents in the NICU
Tags: 2020, 2022 Special Edition 1 - Parent Perspectives, Advances in Neonatal Care, Baughcum AE, Bereavement, Delivery of Health Care, Dunnells ZDO, Fortney CA, Gerhardt CA, Humphrey LM, Infant, Needs Assessment, neonatal intensive care, Newborn Infant, Palliative Care, Parents, Personal Satisfaction, Prospective Studies, Terminal Care, Winning AM
Challenges experienced by paediatricians providing palliative care to children; A thematic analysis
Tags: 2019, Archives of Disease in Childhood, Australia, Balfe J, Child, conference abstract, Controlled Study, Death, Devins M, E-mail, Expectation, Female, Health Care System, Holistic Care, Human, Human Experiment, Learning, Major Clinical Study, Male, Molloy E, Needs Assessment, O'Reilly M, October 2019 List, Palliative Therapy, Pediatrician, Pediatrics, Questionnaire, Social Welfare, specialist registrar, Thematic Analysis, Twomey M, Whitla L
Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity
Tags: 2017, Academic Pediatrics, Attitude Of Health Personnel, Barnert ES, Chan V, Child, Child Health Services/organization & administration, Chung P J, Coller R J, Disabled Children/psychology, Female, Health Personnel/psychology, Humans, Interviews As Topic, July 2018 List, Klitzner TS, Male, Needs Assessment, Nelson BB, Padilla C, Patient-centered Care, Population Health, Preschool, Szilagyi M, Thompson LR, Treatment Outcome
Adolescents in transition of adult care: why the concern?
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Betz CL, Congenital/nursing/rehabilitation/therapy, Continuity Of Patient Care/organization & Administration, Health, Heart Defects, Humans, Insurance, Journal Article, Needs Assessment, Patient Care Planning/organization & administration, Planning Techniques, Self Care, The Nursing Clinics Of North America, United States
Enabling the transition to hospice through effective palliative care
Tags: 2005, Attitude To Death/ethnology, Backlog, Bomba PA, Case Management/organization & administration, Chronic Disease, Continuity of Patient Care/organization & Disease Progression, Hospice Care/organization & administration/psychology, Humans, Journal Article, Life Expectancy, Models, Needs Assessment, Organizational, Organizational Objectives, Palliative Care/organization & Professional Role, Prognosis, Quality Of Life, Referral and Consultation/organization & United States, The Case Manager
Transition to a Primary Palliative Care Model in the NICU (FR441B)
Tags: 2020, Baxter R, Brown H, Bruner A, Comfort, conference abstract, Controlled Study, Documentation, Education, Female, Hospice, Human, Human Experiment, Infant, Journal of Pain and Symptom Management, Male, March 2020 List, Needs Assessment, Neonatologist, Nurse, Palliative Therapy, Satisfaction
Situational analysis and needs assessment regarding the availability and extent of pediatric palliative care services in the philippines
Tags: 2019, Awareness, behavior change, Cajucom L A N, care behavior, Caregiver, Child, Childhood Cancer, conference abstract, Controlled Study, Counseling, Developing World 2019 List, financial management, Fuentes R K T, Garcia P G, Health Care Delivery, Health Care Personnel, health care planning, Human, Interview, JNCCN Journal of the National Comprehensive Cancer Network, long term survival, Manago R K B, Needs Assessment, Nutrition, Oruga M D P, Palliative Therapy, Philippines, psychosocial care, Ramos R C, Ridulme Q R, travel, Vinas M J G
Access to health care for young adults with disabling chronic conditions
Tags: 2006, Adolescent Transitions, Adult, Archives Of Pediatrics & Adolescent Medicine, Backlog, Callahan ST, Chronic Disease/economics, Cooper WO, Disabled Persons, Female, Health, Health Services Accessibility/economics/statistics & numerical data, Humans, Insurance, Journal Article, Male, Medically Uninsured/statistics & numerical data, Needs Assessment, United States
Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease
Tags: 2001, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Callahan ST, Chronic Disease/therapy, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Disabled Children, Humans, Internet, Journal Article, Keenan P, Models, Needs Assessment, Organizational, Professional-patient Relations, Self Care, United States, Winitzer RF
Who needs and continues to need paediatric palliative care? An evaluation of utility and feasibility of the Paediatric Palliative Screening scale (PaPaS)
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Estimating The Global Need For Palliative Care For Children: A Cross-sectional Analysis
The need for children's palliative care (CPC) globally is unknown. To understand the scope of the need and to advocate to meet it, more accurate estimates are needed.
OBJECTIVES:
The objective of this study was to create an accurate global…
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
Addressing spirituality in pediatric hospice and palliative care
Tags: 2002, Adult, Backlog, Brenner P, Child, Child Psychology, Davies B, Family/psychology, Holistic Health, Human, Journal Article, Journal Of Palliative Care, Needs Assessment, Nursing Assessment, Orloff S, Palliative Care/methods/psychology/standards, Pastoral Care/methods/standards, Pediatrics/methods, Practice Guidelines, Religion and Medicine, Religion and Psychology, Spirituality, Sumner L, Worden W
Development and Assessment of a Measure of Parent and Child Needs in Pediatric Palliative Care
Exploring the Palliative Care Needs of Children in Refugee Settlements in Uganda
Tags: 2023, 2023 SE5 - Low Resource Setting, Adult, Bagasha P, Child, Chronic Disease, conference abstract, Data Analysis, Distress Syndrome, Downing J, Grant L, Howarth K, Human, Ikong H, Leng M, Maku S, McGeough K, mentor, Nabirye L, Nalutaaya F, Namukwaya E, Needs Assessment, Only Child, Opia V, Oziti G, Palliative Care, Palliative Medicine, Palliative Therapy, refugee, refugee camp, Santiago T, Smith C, Thermometer, uganda, Venkatesh C
Exploring The Spiritual Needs Of Families With Seriously Ill Children
Tags: 2016, Adolescent, August 2016 List, Child, Cultural Characteristics, Family/psychology, Female, Ferrell B, Humans, International Journal of Palliative Nursing, Male, Needs Assessment, Nursing, Nursing Assessment, Palliative Care, Pediatrics, Professional-family Relations, Qualitative, Qualitative Research, Spirituality
Assessing the suitability of the Carer Support Needs Assessment Tool (CSNAT-Paediatric) for use with parents of children with a life-limiting condition: A qualitative secondary analysis
Tags: 2023, Article, Atkin K, care behavior, Caregiver, Child, Clinical Article, Content Analysis, Diagnosis, Ewing G, Father, February List 2024, Female, Fisher V, Fraser LK, Grande G, Human, Male, Needs Assessment, Palliative Medicine, Palliative Therapy, Parent, School Child, Secondary Analysis, social media, special situation for pharmacovigilance
Developing a process to support perinatal nurses after a critical event
Tags: 2014, Adaptation, Attitude To Death, Backlog, Clinical Competence, Crisis Intervention, Emergencies, Family Nursing, Foreman S, Grief, Humans, Journal Article, Models, Needs Assessment, Neonatal Nursing, Nursing For Women's Health, Nursing Methodology Research, Perinatal Care, Program Development, Psychological, Risk Management, Self Care, Social Support, Staff Development, Stress, Terminal Care
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
Toward youth friendly services: a survey of young people in primary care
Tags: 2007, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adult, Age Factors, Backlog, Cross-sectional Studies, Female, Haller DM, Health Care Surveys, Health Services Needs and Demand/classification/statistics & numerical data, Humans, Journal Article, Journal Of General Internal Medicine, Male, Needs Assessment, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Satisfaction, Patton GC, Physician-patient Relations, Primary Health Care/utilization, Sanci LA, Sawyer SM
The Development And Evaluation Of A Holistic Needs Assessment Within Children’s Palliative Care.
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
The Long-Term Care Experiences and Care Needs of Parents Caring for Children With Adrenoleukodystrophy
Tags: 2019, Descriptive Research, Guilt, Helplessness Learned, Hospice Care, Human, Individualized Medicine, Interviews, Journal of Nursing, Jui-Chun F, Long Term Care, March 2019 List, Miao-Ju C, Needs Assessment, Parental Attitudes, Peroxisomal Disorders -- Psychosocial Factors, Psychosocial Aspects of Illness, Qualitative Studies, Shu-Yuan L, Su-Fen C, Wei-Wen W U
Palliative communication skills training for pediatric nurse practitioners: A novel program with booster sessions
Pain in children with cerebral palsy: a review.
Tags: 2004, Activities of Daily Living, Backlog, Cerebral Palsy/co [Complications], Child, Child welfare, Engel Joyce M, Humans, Jensen MP, Journal Article, Kieckhefer GM, Labyak S, Motor Skills, Needs Assessment, Nurse's Role, Nursing Assessment, Pain, Pain Management, Pain Measurement, Pain/di [diagnosis], Pain/et [Etiology], Risk Factors, Severity Of Illness Index, The Journal Of Neuroscience Nursing : Journal Of The American Association Of Neuroscience Nurses
Preparation for oncology settings: what hospice social workers say they need
Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education
Hospital inpatient use in mainland Portugal by children with complex chronic conditions (2011 - 2015). [Portuguese]
Tags: 2019, Acta Médica Portuguesa, Adolescent, Article, Cancelinha C, cancer radiotherapy, Child, Controlled Study, Death, developed country, Female, Hospital Patient, Hospitalization, Human, Lacerda A F, Length Of Stay, Lopes S, Male, Mortality, national health service, Needs Assessment, Newborn, nonparametric test, October 2019 List, Oliveira G, Outpatient, Palliative Care, Palliative Therapy, pediatric patient, Portugal, Radiotherapy, Retrospective Study
Differing needs of mothers and fathers during their child's end-of-life care: secondary analysis of the "Paediatric end-of-life care needs" (PELICAN) study
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
interRAI Pediatric Home Care (PEDS-HC) Assessment Tool: Evaluating Ontario Healthcare Workers’ Experience
Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care
Tags: 2008, Attitude Of Health Personnel, Backlog, Family/psychology, Focus Groups, Forbat L, Health Services Accessibility, Health Services Needs And Demand, Hospice Care/organization & administration/standards, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & administration/standards, Palliative Medicine, Qualitative Research, Research/organization & administration, Respite Care, Scotland, Terminal Care/organization & administration/psychology/standards
Prioritization of future research topics for children's hospice care by its key stakeholders: a Delphi study
Tags: 2009, Adolescent, Attitude Of Health Personnel, Backlog, Child, Delphi Technique, Family, Focus Groups, Forbat L, Hospice Care/organization & administration, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & Administration, Palliative Medicine, Research/organization & administration, Scotland, Terminally Ill
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D
Development of a Global Palliative Care Program
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Improving pediatric palliative care in a community-based setting through an ongoing education series
Tags: 2019, administrative personnel, Checklist, Child, Clergy, Comfort, community hospital, conference abstract, Conversation, do not resuscitate order, Dying, Education, Female, Hospice Care, Human, Likert scale, Major Clinical Study, Male, Moonat H, Needs Assessment, Nguyen L, Nurse, Oncology 2019 List, Palliative Therapy, Pediatric Blood and Cancer, pharmacist, Simulation, Social Worker, Texas