Browse Items (247 total)
- Tags: Infant, Newborn
Lasting Legacy: Maternal Perspectives of Perinatal Palliative Care
Tags: 2019, 2022 Special Edition 1 - Parent Perspectives, Female, Fetal Mortality, George T, Hospice, Infant, Journal of Palliative Medicine, Kamrath HJ, Mothers, Needle J, Newborn, O'Connor-Von S, Osterholm E, Palliative Care, Perinatal, Perinatal Care organization & administration, prenatal, Prenatal Diagnosis, Retrospective Studies, Stover-Haney R
Experience of Perinatal Death From the Father's Perspective
Perinatal palliative care
Tags: 2022, Anales de Pediatría (English Edition), Bereavement, Boix H, Cernada M, Child, Couce ML, Espinosa Fernández MG, González-Pacheco N, Infant, Life-limiting Condition, Life-threatening Condition, March 2022 List, Martín-Ancel A, Neonatal Death, Newborn, Palliative Care, Pérez-Muñuzuri A, Perinatal Care, Perinatal Palliative Care, Pregnancy, Quality Of Life, Sánchez-Redondo MD
Parental assessment of comfort in newborns affected by life-limiting conditions treated by a standardized neonatal comfort care program
Tags: 2018, Adult, Byrne M, Daho M, Female, Foe G, Humans, Infant, Intensive Care, Journal Of Perinatology, Male, Neonatal/og [Organization & Administration], New York, Newborn, November 2019 List, Palliative Care/mt [methods], Parents/px [psychology], Parravicini E, Patient Care Team/og [Organization & Administration], Patient Comfort/st [Standards], Practice Guidelines As Topic, Prospective Studies, Qualitative Research, Steinwurtzel R, Surveys And Questionnaires, Young Adult
Something must happen before first breath
Helping parents prepare for their child's end of life: A retrospective survey of cancer-bereaved parents
Tags: 2020, Adolescent, Adult, Aged, Article, Battles H, Bedoya S Z, Bereavement, Caregiver, Child, childhood cancer/dm [Disease Management], Content Analysis, Emotion, Female, Gerhardt C A, health care need, Human, Infant, Interpersonal Communication, Mack J, Major Clinical Study, Male, Newborn, Nurse, Oncology 2020 List, open ended questionnaire, Parent, Pediatric Blood and Cancer, pediatric oncologist, pediatric patient, Priority Journal, Psycho-Oncology, Psychologist, Quality Of Life, quantitative analysis, Retrospective Study, social media, Social Support, Social Worker, support group, Tager J, Terminal Care, Thematic Analysis, time of death, Wiener L, worker
Parent and health care provider communication and decision making in the intensive care nursery
Tags: 1989, Abel-Boone H, Attitude To Health, Backlog, Best Practices (Davies), Children's Health Care, Communication, Decision Making, Dokecki PR, Humans, ICU Decision Making, Infant, Intensive Care Units, Interviews, Journal Article, Life Support Care/psychology, Neonatal, Newborn, Parents, Professional-family Relations, Smith MS, Social Support, United States
Cultural explanations and clinical ethics: active euthanasia in neonatology
"The one thing you can never take away"
Neonatal organ donation: Retrospective audit into potential donation in a single neonatal unit
Tags: 2023, Ali F, Article, August List 2023, Brain Injury, Cause Of Death, Chant K, Conversation, cooling, Documentation, eligibility, England, Gallagher K, Human, Human Tissue, Infant, Infant, Newborn, Neonatal Intensive Care Unit, Newborn, Newborn Death, Newborn Intensive Care, Nurse, Nursing In Critical Care, organ donor, Patient Referral, Scales A, Sellwood M, Surgery, Terminal Care, Transplantation
Summary proceedings from the neonatal pain-control group
Tags: 2006, Analgesia, Anand KJ, Anesthesia, Aranda JV, Artificial/adverse effects, Backlog, Berde CB, Buckman S, Capparelli EV, Carlo W, Clinical Trials/ethics/legislation & jurisprudence, Extramural, General, Government Regulation, Humans, Hummel P, Infant, Johnston CC, Journal Article, Lantos J, Lynn AM, Maxwell LG, N.I.H., Newborn, Non-P.H.S., Oberlander T, Outcome Assessment (Health Care)/methods, Pain, Pain Measurement, Pain/drug therapy/etiology, Pediatrics, Postoperative/drug therapy, Raju TN, Research Support, Respiration, Soriano SG, Taddio A, Tutag-Lehr V, U.S. Gov't, United States, Walco GA
Development of an in-home standardized end-of-life treatment program for pediatric patients dying of brain tumors
Tags: 2013, Adolescent, Arland LC, Backlog, Brain Neoplasms, Child, Colorado, Female, Foreman NK, Health Personnel, Hendricks-Ferguson VL, home care services, Hospice Care, Hospital Mortality, Humans, Infant, Journal Article, Journal for Specialists in Pediatric Nursing, Length Of Stay, Madden JR, Male, Newborn, Palliative Care, Patient Admission, Pearson J, Pediatric Nursing, Preschool, Program Development, Program Evaluation, Retrospective Studies, Terminal Care, Young Adult
AIMP1 deficiency presents as a cortical neurodegenerative disease with infantile onset
Tags: 2014, Age Factors, Armstrong L, Backlog, Biancheri R, Brain, Cytokines, Female, Humans, Infant, Journal Article, Mutation, Neoplasm Proteins, Neurodegenerative Diseases, Neurogenetics, Newborn, RNA-Binding Proteins, Ross CJ, Rossi A, Shyr C, Sinclair G, Tarailo-Graovac M, van Karnebeek CD, Wasserman WW, White Matter
Worth a Try? Describing the Experiences of Families during the Course of Care in the Neonatal Intensive Care Unit When the Prognosis is Poor
End-of-life decisions and practices for very preterm infants in the Wallonia-Brussels Federation of Belgium
Tags: 2018, Article, Aujoulat I, Bmc Pediatrics, Broux I, Brussels Capital Region, Cavatorta E, Charon A, Clinical Practice, Debauche C, Dussart A, Female, Flausch M, Gestational Age, Haumont D, Henrard S, Henrion E, Human, Infant, Johansson AB, Kalenga M, Langhendries JP, Lecart C, Major Clinical Study, Male, Marechal Y, Maton P, Mostaert A, Muller MF, Neonatologist, Neonatology, Newborn, Palliative Therapy, perinatal period, Prematurity, Qualitative Research, Questionnaire, September 2018 List, Sepulchre B, Terminal Care, Uncertainty, Van Herreweghe I, Van Overmeire B, Vanden ES, Verellen G, Vermeylen D, Vlieghe V, Wallonia
An approach to the diagnosis of metabolic diseases
Perception of health professionals about neonatal palliative care
Tags: 2019, Attitude Of Health Personnel, Batoca Silva E M, Content Analysis, Human, Infant, Intensive Care Units, January 2020 List, Machado Silva M J, Marques Silva D, Neonatal, Newborn, Palliative Care -- In Infancy and Childhood, Phenomenological Research, Portugal, Professional-patient Relations, Qualitative Studies, Quality Of Life, Revista Brasileira de Enfermagem
Use of analgesic agents for invasive medical procedures in pediatric and neonatal intensive care units
Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study
Tags: 2006, Backlog, Bax M, Brain/pathology, Cerebral Palsy/epidemiology/etiology/physiopathology, Child, Cross-sectional Studies, Delivery, Female, Flodmark O, Humans, Infant, Infectious, JAMA, Journal Article, Magnetic Resonance Imaging, Male, Multiple, Newborn, Obstetric, Pregnancy, Pregnancy Complications, Premature, Preschool, Risk Factors, Tydeman C
Analgesics for the treatment of pain in children
Tags: 2002, Acetaminophen/therapeutic use, Analgesia, Analgesics, Analgesics/administration & dosage/therapeutic use, Anesthesia, Anesthetics, Anti-Inflammatory Agents, Aspirin/therapeutic use, Backlog, Berde CB, Child, Chronic Disease, General, Humans, Infant, Journal Article, Local, Neoplasms/complications, Newborn, Non-Steroidal/therapeutic use, Non-U.S. Gov't, Opioid/pharmacokinetics/pharmacology/therapeutic use, P.H.S., Pain/drug therapy/etiology, Patient-Controlled, Research Support, Sethna NF, The New England Journal Of Medicine, U.S. Gov't
Utilization and costs for children who have special health care needs and are enrolled in a hospital-based comprehensive primary care clinic
Tags: 2005, Adolescent, Backlog, Berman S, Child, Cohort Studies, Colorado, Costs And Cost Analysis, Disabled Children, Dryer LJ, Elias E, Exceptional, Female, Health Expenditures, Health Maintenance Organizations/economics/utilization, Health Resources/statistics & numerical data, Health Services Needs and Demand/economics, Hospital Costs, Hospital Departments/economics/utilization, Hospital/economics/utilization, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Inpatients, Jones MD, Journal Article, Laboratories, Male, Medicaid/economics/utilization, Medical/economics, Moore L, Needs Assessment/economics, Newborn, Outpatient Clinics, Outpatients, Pediatric/economics/organization & administration, Pediatrics, Preschool, Primary Health Care/economics/utilization, Rannie M, Specialties
Paediatric palliative care in the NICU: A new era of integration
Bacteraemia and antibiotic use in respiratory syncytial virus infections
Tags: 2004, Adolescent, Anti-Bacterial Agents/therapeutic use, Archives of Disease in Childhood, Backlog, Bacteremia/etiology, Bloomfield P, Child, Community-Acquired Infections/etiology, Cross Infection/etiology, Dalton D, Duncan G, Equipment Contamination, Hospitalization/statistics & numerical data, Humans, Infant, Intensive Care, Isaacs D, Journal Article, Karleka A, Kesson A, Neonatal, Newborn, Preschool, Respiratory Syncytial Virus Infections/drug therapy/microbiology
Newborn genetic screening for spinal muscular atrophy in the UK: The views of the general population
Tags: 2018, Adolescent, Adult, Aged, Attitudes, bloodspot, Boardman FK, Ethics, Family, Female, Genetic Testing utilization, Health Knowledge, Humans, Infant, Internet, Male, Middle Aged, Molecular genetics & genomic medicine, Muscular Atrophy, Neonatal Screening methods, Neuromuscular Diseases genetics, Newborn, newborn genetic screening, November 2018 List, Practice, Risk Assessment methods, Sadler C, social implications, Spinal diagnosis genetics, Spinal Muscular Atrophy, Surveys And Questionnaires, United Kingdom epidemiology, Young PJ
Retrospective, multicentric study of 180 children with cytochrome C oxidase deficiency
Tags: 2006, Adolescent, Backlog, Bohm M, Carrier Proteins, Child, Cytochrome-c Oxidase Deficiency/diagnosis/genetics/mortality, Czech Republic, DNA, Female, Hansikova H, Houstek J, Houstkova H, Humans, Infant, Journal Article, Karczmarewicz E, Male, Membrane Proteins, Mierzewska H, Mitochondrial Proteins, Mitochondrial/genetics, Mutation, Newborn, Pediatric Research, Piekutowska-Abramczuk D, Poland, Preschool, Prognosis, Pronicka E, Pronicki M, Proteins/genetics, Q3 Scoping Review Results, Sequence Deletion, Slovakia, Sykut-Cegielska J, Tesarova M, Vesela K, Zeman J
Research prioritisation exercises related to the care of children and young people with life-limiting conditions, their parents and all those who care for them: A systematic scoping review
Neonatologist training to guide family decision making for critically ill infants
Tags: 2009, Archives Of Pediatrics & Adolescent Medicine, Arnold RM, Attitude Of Health Personnel, Backlog, Boss RD, Clinical Competence, Communication, Critical Illness, Decision Making, Donohue PK, Education, Fellowships And Scholarships, Graduate, Humans, Hutton N, Infant, Internet, Journal Article, Linear Models, Medical, Neonatology/education, Newborn, Nonparametric, Premature, Professional-family Relations, Questionnaires, Statistics, United States
Survival in trisomy 13 and trisomy 18 cases ascertained from population based registers.
Tags: 2002, Backlog, Brewer CM, Carothers AD, Chromosomes, FitzPatrick DR, Holloway SH, Human, Humans, Infant, Journal Article, Journal Of Medical Genetics, Longitudinal Studies, Newborn, Pair 13/genetics, Pair 18/genetics, Registries/statistics & numerical data, Scotland, Stone DH, Survival Analysis, Trisomy
Acute and chronic paediatric intensive care patients: current trends and perspectives on resource utilization
Tags: 2004, Acute Disease/mortality/therapy, Adolescent, Analysis of Variance, Artificial/methods, Backlog, Briassoulis G, Child, Chronic Disease/mortality/therapy, Female, Filippou O, Greece, Hatzis T, Health Resources/trends/utilization, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay, Male, Mavrikiou M, Monthly Journal Of The Association Of Physicians, Natsi L, Newborn, Pediatric/utilization, Preschool, Prospective Studies, Respiration, Severity Of Illness Index
Risk factors for long intensive care unit stay after cardiopulmonary bypass in children
Tags: 2003, Backlog, Brown KL, Cardiopulmonary Bypass, Child, Congenital/surgery, Critical Care Medicine, Goldman AP, Heart Defects, Hoskote A, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Length Of Stay, Multivariate Analysis, Newborn, Pediatric, Penny DJ, Regression Analysis, Retrospective Studies, Ridout DA, Risk Factors, San Francisco, Treatment Outcome
The death of a twin
Early palliative care reduces stress in parents of neonates with congenital heart disease: validation of the "Baby, Attachment, Comfort Interventions"
Tags: 2019, anxiety, Article, Brumarie L, Callahan K, Child Parent Relation, Cohort Analysis, Comfort, Congenital Heart Disease, Controlled Study, emotional attachment, Female, Health Care Quality, Human, Infant, Journal of perinatology : official journal of the California Perinatal Association., Male, Mental Stress, Newborn, November 2019 List, Palliative Therapy, Parravicini E, Prospective Study, Schechter S, Steinwurtzel R
Evidence for healing interventions with perinatal bereavement
Tags: 2005, Adaptation, Adult, Age Factors, Attitude To Death, Backlog, Bereavement, Capitulo KL, Child, Child Psychology, Evidence-based Medicine, Female, Funeral Rites, Funeral Rites/psychology, Health Services Needs And Demand, Helping Behavior, Humans, Infant, Intervention, Interventions, Journal Article, Male, Maternal-Child Nursing, Maternal-Child Nursing/organization & administration, Newborn, Nurse's Role, Nurse's Role/psychology, Nursing Evaluation Research, Parents, Parents/education/psychology, Professional-family Relations, Psychological, Self-Help Groups, Sex Factors, sibling bereavement, Social Support, Spirituality, Symbolism, The American Journal Of Maternal Child Nursing
Circumstances surrounding the deaths of hospitalized children: opportunities for pediatric palliative care.
Tags: 2004, Academic Medical Centers, Adolescent, Backlog, Carter BS, Child, et al, Female, Gilmer MJ, Hospital Mortality, Hospitalization, Hospitalized, Howenstein M, Humans, Infant, Journal Article, Length Of Stay, Longitudinal Studies, Male, Newborn, Non-U.S. Gov't, Pain/diagnosis/drug therapy, Palliative Care, Pediatrics, Preschool, Research Support, Retrospective Studies, Terminal Care, Terminally Ill, Withholding Treatment
The ethics of withholding/withdrawing nutrition in the newborn
Thinking outside the box: prenatal care and the call for a prenatal advance directive
Tags: 2005, Advance Directives/ethics/legislation & jurisprudence/psychology, Backlog, Catlin A, Decision Making/ethics Female Feminism Fetal Viability Humans Infant, Education, Ethics, Infant, Journal Article, Journal of Perinatal & Neonatal Nursing, legislation & jurisprudence, legislation & jurisprudence Intensive Care, legislation & jurisprudence Nurse's Role, legislation & jurisprudence Parents, Neonatal, Newborn, PedPal Lit, Premature Informed Consent, Prenatal Care/ethics/legislation & jurisprudence United States, psychology Mass Media Neonatal Nursing, psychology Parental Consent, psychology Practice Guidelines Pregnancy
Creation of a neonatal end-of-life palliative care protocol
Tags: 2002, Backlog, Carter B, Catlin A, Clinical Protocols, Counseling, Culture, Delphi Technique, Empathy, Euthanasia, Family/ethnology/psychology, Humans, Infant, Internet, Journal Article, Journal Of Perinatology, Neonatology/standards, Newborn, Non-U.S. Gov't, Palliative Care/standards, Passive/psychology, Professional-family Relations, Questionnaires, Research Support, Social Support, Terminal Care/standards, Tissue and Organ Procurement, United States, Ventilator Weaning