Browse Items (111 total)
- Tags: Cross-sectional Studies
Provision Of Services In Perinatal Palliative Care: A Multicenter Survey In The United States.
Congenital anomalies account for 20% of neonatal and infant deaths in the United States. Perinatal palliative care is a recent addition to palliative care and is meant to meet the needs of families who choose to continue a pregnancy…
Tags: 2016, Bereavement, Côté-Arsenault D, Critical Care/organization & Administration, Cross-sectional Studies, Denney-Koelsch E, Female, Fetal Mortality, Humans, Infant Newborn, Journal of Palliative Medicine, Kavanaugh K, Kim S, March 2016 List, Palliative Care/organization & Administration, Parents/psychology, Perinatal Care/organization & Administration, Perry Black B, Pregnancy, Professional-family Relations, Surveys And Questionnaires, United States, Wool C
When Parents Face The Death Of Their Child: A Nationwide Cross-sectional Survey Of Parental Perspectives On Their Child’s End- Of Life Care.
Parents facing the death of their child have a strong need for compassionate professional support. Care services should be based on empirical evidence, be sensitive to the needs of the families concerned, take into account the…
Tags:
2016, Attitude Of Health Personnel, Attitude To Death, Bergstraesser E, BMC Palliative Care, Chantal Grandjean, Cross-sectional Studies, Death, Decision Making, End Of Life, Engberg S, Eva Cignacco
K, Female, Humans, Infant Newborn, Male, Marfurt-Russenberger, May 2016 List, Nicolas Von der Weid, Parental Perspectives, Parents/psychology, Patricia Fahrni-Nater, Pediatrics, Pediatrics/standards, Perception, Questionnaire Survey, Ramelet AS, Resuscitation Orders/psychology, Surveys And Questionnaires, Switzerland, Terminal Care, Terminal Care/standards, Von der Weid N, Zimmermann K
Listening To Parents: The Role Of Symptom Perception In Pediatric Palliative Home Care
This study analyzes symptom perception by parents and healthcare professionals and the quality of symptom management in a pediatric palliative home care setting and identifies which factors contribute to a high quality of palliative and…
Tags: 2016, Adult, Borasio GD, Brandstatter M, Cross-sectional Studies, Death, Duroux A, Dyspnea/diagnosis, Dyspnea/psychology, End-of-life Symptoms, Female, Führer M, Grasser M, Home Care Services/standards, Humans, Male, November 2016 List, Pain/diagnosis, Pain/psychology, Palliative & Supportive Care, Palliative Care/methods, Palliative Care/psychology, Parents/psychology, Pediatric Palliative Home Care, Pediatrics/methods, Perception, Quality Of Life/psychology, Retrospective Studies, Surveys And Questionnaires, Symptom Assessment/psychology, Symptom Perception, Vollenbroich R
Mechanical Ventilation In Children With Life-limiting Conditions
Tags: 2016, Adult, Artificial Ventilation, Cancer Epidemiology, Cantero EQ, Carro CC, Cerebral Palsy, Child, Chromosome Disorder, Cognitive Defect, Controlled Study, Cross-sectional Studies, Cross-sectional Study, Death, European Respiratory Journal, Follow Up, Gaboli M, Garrido MM, Human, Lung Disease, Major Clinical Study, May 2017 List, Mucopolysaccharidosis, Neuromuscular Disease, Only Child, Palliative Care, Palliative Therapy, Pecellin ID, Quality Of Life, Respiration Artificial, Respiratory Insufficiency, Rodriguez LMR, Spain, University Hospital, Valencia JPG, Ventilators Mechanical, Young Adult
Retrospective cross-sectional review of survival rates in critically ill children admitted to a combined paediatric/neonatal intensive care unit in Johannesburg, South Africa, 2013-2015
Tags: 2016, Argent A, Ballot DE, Birth Weight, Bmj Open, Cause Of Death, Child, Chirwa T, Cooper PA, Critical Illness/ Mortality, Cross-sectional Studies, Davies VA, Female, Health services administration & management, Hospitalization/ statistics & numerical data, Humans, Infant, Infant Newborn, Infant Newborn Diseases/ mortality, Infant Very Low Birth Weight, Intensive Care Units Neonatal, January 2018 List, Male, Mer M, Neonatology, Patient Discharge/ statistics & numerical data, Population Surveillance, Retrospective Studies, Risk Factors, South Africa/epidemiology, Survival Rate/ trends
To explore the neonatal nurses' beliefs and attitudes towards caring for dying neonates in Taiwan
Tags: 2013, Adult, Attitude Of Health Personnel, Attitude To Death, Chang YC, Chen CH, Cross-sectional Studies, Culture, Female, Huang LC, Humans, Infant Newborn, Intensive Care Units Neonatal, January 2018 List, Lee HY, Liu HL, Maternal & Child Health Journal, Neonatal Nursing, Neonatology, Peng NH, Surveys And Questionnaires, Taiwan, Terminal Care/px [psychology], Wu SY, Young Adult
Spirituality in patients with advanced illness: The role of symptom control, resilience and social network
Tags: 2016, Adolescent, Adult, Aged, Barreto P, Clinical Trial, Cross Sectional Study, Cross-sectional Studies, Emotion, February 2018 List, Female, Fombuena M, Galiana L, Human, Journal Of Health Psychology, Male, Middle Aged, Multicenter Study, Oliver A, Palliative Therapy, Pascual A, Psychological Resilience, Psychology, Religion, Social Support, Soto-Rubio A, Terminal Care, terminally Ill Patient, Very Elderly, Young Adult
Impact of holding the baby following stillbirth on maternal mental health and well-being: findings from a national survey
Tags: 2016, Adolescent, Adult, Anxiety/epidemiology, Bereavement, Bmj Open, care practice, Cross-sectional Studies, Depression/epidemiology, England, Family Conflict/psychology, February 2018 List, Female, Gestational Age, Health Surveys, Henderson J, Hennegan JM, hold, Humans, Infant, infant contact, Mother-Child Relations/ psychology, Mothers/ Psychology, Newborn, Post-traumatic, Post-Traumatic/epidemiology, Postpartum Period/ psychology, Pregnancy, Qualitative Research, Redshaw M, Self Report, Self-Fertilization, Stillbirth, Stillbirth/ psychology, Stress Disorders, touch, Young Adult
Changes in siblings after the death of a child from cancer.
Tags: 2012, Adaptation, Adolescent, Adult, Backlog, Barrera M, Bereavement, Cancer Nursing, Child, Cross-sectional Studies, Davies B, Death, Dietrich MS, Fairclough DL, Female, Foster TL, Gerhardt CA, Gilmer MJ, Humans, IM, Journal Article, Male, Middle Aged, N, Neoplasms, Nursing Methodology Research, Parents, Psychological, Qualitative Research, sibling bereavement, Siblings, Time Factors, Vannatta K
Parent reports of quality of life for pediatric patients with cancer with no realistic chance of cure
Pediatric nurses' individual and group assessments of palliative, end-of-life, and bereavement care
Tags: 2011, Attitude Of Health Personnel, Backlog, Bereavement, Cross-sectional Studies, Feinstein JA, Female, Feudtner C, Hexem KR, Hospital/psychology, Hospitals, Humans, Journal Article, Journal of Palliative Medicine, Kang T, Male, Nurses/psychology, Nursing Staff, Palliative Care, Pediatric, Santucci G, Terminal Care, Tubbs-Cooley HL
Prevalence and morbidity associated with non-malignant, life-threatening conditions in childhood
Tags: 2001, Adolescent, Adult, Backlog, Child, Child Welfare/statistics & numerical data, Child: Care, Health and Development, Chronic Disease/epidemiology/psychology, Cross-sectional Studies, Disabled Children/psychology/statistics & numerical data, Family, Great Britain/epidemiology, Human, Infant, Journal Article, Lenton S, Lewis M, Mastroyannopoulou K, Mental Health, Newborn, Non-U.S. Gov't, Parent-child Relations, Preschool, Prevalence, Stallard P, Support
Variability in physician opinion on limiting pediatric life support
Tags: 1999, Backlog, Child, Cross-sectional Studies, Death and Euthanasia, Decision Making, Egger MJ, Empirical Approach, Euthanasia, Fellowships And Scholarships, Female, Guyatt GH, Hospital/psychology/statistics & numerical data, Humans, ICU Decision Making, Intensive Care Units, Intensive Care/psychology, Journal Article, Male, Medical Oncology/statistics & numerical data, Medical Staff, Nelson RM, Neoplasms/therapy, Passive/psychology, Pediatric, Pediatrics, Pediatrics/statistics & numerical data, Prognosis, Questionnaires, Randolph AG, Regression Analysis, Stidham GL, Terminal Care/psychology, Zollo MB
Switching from morphine to oral methadone in treating cancer pain: what is the equianalgesic dose ratio?
Tags: 1998, Administration, Aged, Analgesia, Analgesics, Backlog, Brunelli C, Cross-sectional Studies, De Conno F, Dose-Response Relationship, Drug, Female, Groff L, Humans, Journal Article, Journal Of Clinical Oncology, Male, Methadone/administration & Dosage, Middle Aged, Morphine/administration & dosage, Neoplasms/complications, Non-U.S. Gov't, Opioid/administration & dosage, Oral, Pain/drug Therapy, Polastri D, Prospective Studies, Research Support, Ripamonti C, Stavrakis A, Therapeutic Equivalency, Time Factors
Child psychiatric epidemiology: current status and future prospects
Tags: 1995, Adolescent, Backlog, Canada/epidemiology, Canadian Journal Of Psychiatry, Causality, Child, Child Behavior Disorders/epidemiology/prevention & control, Cross-sectional Studies, Forecasting, Humans, Incidence, Journal Article, Mental Disorders/epidemiology/prevention & control, Offord DR, Patient Care Team/trends, Psychiatric Status Rating Scales/statistics & numerical data
WeeFIM: Normative sample of an instrument for tracking functional independence in children.
Tags: 1994, Adaptation, Age Factors, Backlog, Braun S, Child, Clinical Pediatrics, Cross-sectional Studies, DiGaudio K, Disability Evaluation, Duffy LC, Female, Granger CV, Humans, Infant, Journal Article, LaForest S, Longitudinal Studies, Male, Msall ME, Neuropsychological Tests, Preschool, Psychological, Self Care
Continuity of care: influence of general practitioners' knowledge about their patients on use of resources in consultations.
Tags: 1991, Adolescent, Adult, Aged, Backlog, Borchgrevink CF, British Medical Journal, Child, Continuity Of Patient Care, Cross-sectional Studies, Drug Prescriptions, Family/psychology, Female, Health Resources/utilization, Hjortdahl P, Humans, Infant, Journal Article, Male, Middle Aged, Norway, Physician-patient Relations, Physicians, Preschool, Referral And Consultation, Time Factors
Forgoing life-sustaining treatments: how the decision is made in French pediatric intensive care units
Tags: 2001, Adolescent, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Female, France, Groupe Francophone de Reanimationet d'Urgences Pediatriques, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Life Support Care, Male, Newborn, Nguyen DT, Patient Care Team, Pediatric, Practice Guidelines, Preschool, Professional Patient Relationship, Professional-family Relations, Prospective Studies
End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses
Tags: 2001, Adult, Analysis of Variance, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Burns JP, Child, Child Advocacy, Critical Care Medicine, Critical Care/organization & administration/psychology, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Ethics, Griffith JL, Health Knowledge, Hospital/education/psychology, Hospitals, Humans, ICU Decision Making, Intensive Care Units, Journal Article, Medical, Medical Staff, Middle Aged, Mitchell C, Multivariate Analysis, Nursing, Nursing Staff, Pediatric, Pediatrics/methods, Physician's Practice Patterns/organization & administration, Practice, Questionnaires, Terminal Care/organization & administration/psychology, Truog RD, United States
Reasons for dissatisfaction: A survey of relatives of intensive care patients who died
Tags: 1998, Adult, Age Distribution, Aged, Backlog, Badia F, Bettelini CM, Cause Of Death, Communication, Consumer Satisfaction/statistics & numerical data, Critical Care Medicine, Cross-sectional Studies, Death, Degrate A, Family/psychology, Female, Hospital, Humans, Intensive Care Units/standards, Journal Article, Malacrida R, Male, Martinez M, Medical Staff, Middle Aged, Non-U.S. Gov't, Piazza J, Professional-family Relations, Questionnaires, Rapin CH, Research Support, Switzerland, Terminal Care/psychology/standards, Vizzardi N, Wullschleger R
Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit
Tags: 1997, Activities of Daily Living, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Death and Euthanasia, Decision Making, Empirical Approach, Euthanasia, Family/psychology, Hospital/psychology, Humans, ICU Decision Making, Intensive Care Units, Intervention, Interventions, Journal Article, Life Support Care, Linear Models, Medical Staff, Nursing Staff, Passive, Pediatric, Professional Patient Relationship, Prognosis, Questionnaires, Randolph AG, Wigton RS, Yeh TS, Zollo MB
Opioid switch to oral methadone in cancer pain
Tags: 2000, Administration, Analgesics, Backlog, Body JJ, Combined Modality Therapy, Cross-sectional Studies, Current Opinion In Oncology, Dose-Response Relationship, Drug, Humans, Journal Article, Lossignol DA, Mancini I, Methadone/administration & dosage/therapeutic use, Morphine/administration & dosage/therapeutic use, N-Methyl-D-Aspartate/antagonists & inhibitors, Neoplasms/complications, Opioid/administration & dosage/therapeutic use, Oral, Pain/drug therapy/etiology, Receptors
Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes
Tags: 1995, 80 And Over, Activities of Daily Living/classification/psychology, Adult, Aged, Anxiety Disorders/epidemiology/psychology, Backlog, Bookwala J, Caregivers/statistics & numerical data, Cost Of Illness, Cross-sectional Studies, Dementia/epidemiology/psychology, Depressive Disorder/epidemiology/psychology, Female, Fleissner K, Humans, Incidence, Journal Article, Male, Middle Aged, O'Brien AT, P.H.S., Psychophysiologic Disorders/epidemiology/psychology, Research Support, Risk Factors, Schulz R, The Gerontologist, U.S. Gov't, United States/epidemiology
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Transition from paediatric to adult care for persons with cystic fibrosis: patient and parent perspectives
Tags: 1999, Adolescent, Adolescent Transitions, Adult, Backlog, Child, Child Health Services/organization & administration, Cross-sectional Studies, Cystic Fibrosis/rehabilitation, Female, Health Promotion, Health Transition, Henley L, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Parents, Patient Satisfaction, Preschool, Questionnaires, Westwood A, Willcox P
Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study
Tags: 2000, Adolescent, Backlog, Child, Cross-sectional Studies, Developmental Medicine and Child Neurology, Disabled Children, Feeding and Eating Disorders of Childhood/epidemiology/etiology, Female, Ford-Adams ME, Griffiths P, Humans, Johnson A, Journal Article, Lambert B, Male, Nervous System Diseases/complications, Non-U.S. Gov't, Nutrition Disorders/epidemiology/etiology, Parent-child Relations, Preschool, Prevalence, Research Support, Rose M, Severity Of Illness Index, Sullivan P
Task force 1: the changing profile of congenital heart disease in adult life
Tags: 2001, Adolescent, Adolescent Transitions, Adult, Aged, Backlog, Child, Congenital/mortality/rehabilitation, Cross-sectional Studies, Danielson GK, Dore A, Female, Great Britain/epidemiology, Harris L, Heart Defects, Hoffman JI, Humans, Incidence, Infant, Journal Article, Journal of the American College of Cardiology, Liberthson R, Male, Middle Aged, Newborn, Patient Care Team, Preschool, Prognosis, Somerville J, Survival Rate, United States/epidemiology, Warnes CA, Webb GD, Williams RG
Protecting adolescents from harm. Findings from the National Longitudinal Study on Adolescent Health
Tags: 1997, Adolescent, Adolescent Behavior, Adolescent Transitions, Backlog, Bauman KE, Bearinger LH, Bearman PS, Beuhring T, Blum RW, Cross-sectional Studies, Female, Harris KM, Health Behavior, Health Surveys, Humans, Ireland M, JAMA, Jones J, Journal Article, Longitudinal Studies, Male, Mental Health, Multivariate Analysis, Pregnancy, Pregnancy in Adolescence, Regression Analysis, Resnick MD, Risk-Taking, Sexuality, Shew M, Sieving RE, Substance-Related Disorders/epidemiology, Tabor J, Udry JR, United States/epidemiology, Violence/statistics & numerical data
Advice seeking and appropriate use of a pediatric emergency department
Tags: 1993, Adolescent, Age Factors, algorithms, American Journal Of Diseases Of Children, Backlog, Birth Order, Child, Counseling/statistics & numerical data, Cross-sectional Studies, Dougherty GE, Emergency Service, Female, Health Services Misuse/statistics & numerical data, Health Services Research, Hospital/utilization, Hospitals, Humans, Infant, Journal Article, Male, Newborn, Oberlander T, Parents/education/psychology, Patient Acceptance Of Health Care/statistics & Numerical Data, Pediatric/utilization, Pless IB, Preschool, Quebec, Questionnaires, Severity Of Illness Index, Sex Factors, Teaching/utilization
The effect of continuity of care on emergency department use
Tags: 2000, Adolescent, Adult, Aid to Families with Dependent Children/statistics & numerical data, Archives Of Family Medicine, Backlog, Child, Continuity Of Patient Care, Cross-sectional Studies, Delaware, Emergency Service, Female, Gill J, Hospital/utilization, Humans, Journal Article, Mainous A, Male, Medicaid/statistics & numerical data, Middle Aged, Multivariate Analysis, Nsereko M, Office Visits/statistics & numerical data, Preschool, United States
Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects
Tags: 2004, Adolescent, Adolescent Transitions, Adult, Attitudes, Backlog, Canada, Cardiology/statistics & numerical data, Congenital/therapy, Continuity Of Patient Care/statistics & Numerical Data, Cross-sectional Studies, Disabled Children, Female, Health Knowledge, Heart Defects, Humans, Irvine MJ, Journal Article, Male, McCrindle BW, Patient Transfer/statistics & numerical data, Pediatrics, Pediatrics/statistics & numerical data, Practice, Ritvo PG, Sananes R, Siu SC, Webb GD
The effect of inpatient hospice units on hospice use post-admission
Tags: 2002, 80 And Over, Aftercare/organization & administration/utilization, Aged, Backlog, Bradley EH, Cherlin E, Community/organization & administration, Connecticut, Cross-sectional Studies, Erickson SE, Female, Fried TR, Health Services Research, Home Health Care Services Quarterly, Horwitz SM, Hospice Care/organization & administration/utilization, Hospital Units/organization & administration/utilization, Hospitals, Humans, Johnson-Hurzeler R, Journal Article, Male, Non-U.S. Gov't, Palliative Care/organization & administration/utilization, Patient Admission/statistics & numerical data, Research Support, Terminally Ill/statistics & numerical data
Frequency and determinants of formal respite service use among caregivers of children with cerebral palsy in Ontario
Tags: 2004, Adult, Attitude To Health, Backlog, Caregivers, Cerebral Palsy/complications/rehabilitation, Child, Child: Care, Health and Development, Cross-sectional Studies, Damiani G, Female, Health Services Accessibility, Humans, Journal Article, Male, Non-U.S. Gov't, Patient Acceptance of Health Care, Quality Of Health Care, Research Support, Respite Care, Rosenbaum P, Russell D, Sex Factors, Social Support, Socioeconomic Factors, Swinton M
Family satisfaction with family conferences about end-of-life care in the intensive care unit: increased proportion of family speech is associated with increased satisfaction
Tags: 2004, Backlog, Communication, Consumer Satisfaction, Critical Care, Critical Care Medicine, Cross-sectional Studies, Curtis JR, Elliott TB, Engelberg RA, Family/psychology, Female, Hospital Mortality, Humans, Intensive Care Units, Journal Article, Male, McDonagh JR, Middle Aged, Patrick DL, Questionnaires, Rubenfeld GD, Shannon SE, Terminal Care/psychology, Treece PD, Washington
Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
Tags: 2003, Adult, Attitude Of Health Personnel, Backlog, Child, Critical Care Medicine, Cross-sectional Studies, Data Collection, Decision Making, Ethics, Euthanasia, Female, Hardart GE, Hospitals, Humans, ICU Decision Making, Infant, Intensive Care, Journal Article, Legal Guardians, Male, Medical, Mental Competency, Middle Aged, Morals, Newborn, Passive, Professional-family Relations, Religion and Medicine, Teaching, Truog RD, United States
Recruiting for research in hospice: feasibility of a research screening protocol
Tags: 2004, 80 And Over, Adolescent, Adult, Aged, Attitude To Health, Backlog, Casarett D, Community Health Services/utilization, Cross-sectional Studies, Eligibility Determination, Feasibility Studies, Female, Health Services Research/methods, Hospice Care/utilization, Humans, Journal Article, Journal of Palliative Medicine, Kassner CT, Kutner JS, Male, Middle Aged, Multi-site Ethics, Palliative Care, Patient Selection, Research Subjects/psychology
A randomized comparison of patients' understanding of number needed to treat and other common risk reduction formats
Chronic illness, life style and emotional health in adolescence: results of a cross-sectional survey on the health of 15-20-year-olds in Switzerland
Gender differences in burden and depression among informal caregivers of demented elders in the community
Tags: 2002, Adult, Aged, Alzheimer Disease/psychology, Backlog, Baumgarten M, Canada, Caregivers/psychology, Cost Of Illness, Cross-sectional Studies, Depressive Disorder/diagnosis/epidemiology/psychology, Female, Gallicchio L, Gender Identity, Humans, International Journal Of Geriatric Psychiatry, Journal Article, Langenberg P, Male, Middle Aged, Non-U.S. Gov't, Research Support, Siddiqi N
Physical functioning in female caregivers of children with physical disabilities compared with female caregivers of children with a chronic medical condition
Tags: 2002, Adult, Aged, Archives Of Pediatrics & Adolescent Medicine, Back Pain/etiology, Backlog, Caregivers/psychology, Child, Chronic Disease, Cross-sectional Studies, Depression/etiology, Disabled Persons, Female, Haig AJ, Humans, Journal Article, Kandala G, Middle Aged, Mothers/psychology, Nelson VS, Physical Fitness, Regression Analysis, Shin KY, Tong HC, Yamakawa KS