Browse Items (332 total)
- Tags: 2006
Standardized assessment of behavior and adaptive living skills in juvenile neuronal ceroid lipofuscinosis
Tags: 2006, Adams H, batten-disease, behavioral problems, characteristics, childhood, Children, De Blieck E A, Developmental Medicine and Child Neurology, Dure L, Epilepsy, impairments, Kwon J, Marshall F J, Mink J W, NCL3, NCL6, Neurosciences & Neurology, Pearce D A, Pediatrics, psychiatric problems, Ramirez-Montealegre D, Rothberg P G, Scale, Symptoms, Trajectory, Validity
Esophageal strictures in children with recessive dystrophic epidermolysis bullosa: an 11-year experience with fluoroscopically guided balloon dilatation
Tags: 2006, 24GP945V5T (Barium), Adolescent, Azizkhan R G, barium, Catheterization, Child, Cohen A P, Dystrophica/co [Complications], epidermolysis bullosa, Esophageal Stenosis/et [Etiology], Esophageal Stenosis/th [Therapy], Farrell M K, feeding difficulties, Female, fluoroscopically guided balloon dilatation, Hammelman B D, Humans, Johnson N D, Journal Of Pediatric Surgery, Lucky A W, Male, Preschool, Racadio J M, Retrospective Studies, Stehr W, surgical intervention, Treatment Outcome, Wittkugel E
Effects of social context on social interaction and self-injurious behavior in Cornelia de Lange syndrome
Tags: 2006, American Journal on Mental Retardation, Arron K, assessments, behavioral problems, brachmann-delange syndrome, Children, Communication, De Lange syndrome, Education & Educational Research, evaluate aberrant behavior, Forman D, functional-analysis, Hall S, McClintock K, mutilative behavior, Oliver C, Phenotype, Rehabilitation, self injurious behavior, self-injury, skills, Sloneem J, trajectory characteristics
Experiences of stigma and access to HAART in children and adolescents living with HIV/AIDS in Brazil
PaedPalLit
Tags: 2006, ACT, Backlog, Journal Article
Care of adolescents with chronic conditions
A review of instruments measuring resilience
Use of family management styles in family intervention research
Tags: 2006, Adaptation, Alderfer MA, Backlog, Intervention, Interventions, Journal Article, Journal Of Pediatric Oncology Nursing, PedPal Lit, Post-Traumatic/prevention & control, Psychological Child Chronic Disease/nursing/psychology Clinical Nursing Research/methods Family Nursing Humans Models, Psychological Neoplasms/nursing/psychology Nuclear Family/psychology Randomized Controlled Trials Stress Disorders
Summary proceedings from the neonatal pain-control group
Tags: 2006, Analgesia, Anand KJ, Anesthesia, Aranda JV, Artificial/adverse effects, Backlog, Berde CB, Buckman S, Capparelli EV, Carlo W, Clinical Trials/ethics/legislation & jurisprudence, Extramural, General, Government Regulation, Humans, Hummel P, Infant, Johnston CC, Journal Article, Lantos J, Lynn AM, Maxwell LG, N.I.H., Newborn, Non-P.H.S., Oberlander T, Outcome Assessment (Health Care)/methods, Pain, Pain Measurement, Pain/drug therapy/etiology, Pediatrics, Postoperative/drug therapy, Raju TN, Research Support, Respiration, Soriano SG, Taddio A, Tutag-Lehr V, U.S. Gov't, United States, Walco GA
Palliative care and pediatrics
ESPEN Guidelines on Enteral Nutrition: Cardiology and pulmonology
Tags: 2006, Anker SD, Backlog, Becker HF, Bohm M, Brunkhorst FM, Cardiology/standards, Chronic Obstructive/therapy, Cicoira M, Clinical Nutrition (edinburgh, Scotland), Congestive/therapy, Dardai E, DGEM(German Society for Nutritional Medicine), Enteral Nutrition, Enteral Nutrition/standards, Europe, European Society for Parenteral (ESPEN), Heart Failure, Humans, John M, Journal Article, Laviano A, Pedersen PU, Physician's Practice Patterns, Ponikowski P, Pulmonary Disease, Pulmonary Disease (Specialty)/standards, Raguso C, Schols AM, Vogelmeier C
The ocular features of the mucopolysaccharidoses
Tags: 2006, Adolescent, Adult, Ashworth JL, Backlog, Biswas S, Child, Corneal Opacity/etiology, Eye (london, England), Eye Diseases/etiology, Female, Follow-up Studies, Humans, Infant, Journal Article, Lloyd IC, Male, Mucopolysaccharidoses/complications, Mucopolysaccharidosis I/complications, Mucopolysaccharidosis VI/complications, Ocular Hypertension/etiology, Optic Atrophy/etiology, Papilledema/etiology, Preschool, Q3 Scoping Review Results, Retrospective Studies, Vision Disorders/etiology, Visual Acuity, Wraith E
[How to discuss death with a dying child: a story can help?]
Flow cytometry and FISH to measure the average length of telomeres (flow FISH)
Nonheart failure-associated elevation of amino terminal pro-brain natriuretic peptide in the setting of sepsis
Tags: 2006, 80 And Over, Aged, Backlog, Bar SL, Biological Markers/blood, Brain/blood, Congestive/blood/drug therapy, Fatal Outcome, Female, Heart Failure, Humans, Ignaszewski A, Journal Article, Male, Natriuretic Peptide, Peptide Fragments/blood, Protein Precursors/blood, Sepsis/blood/drug therapy, Straatman L, Swiggum E, Telemeres, The Canadian Journal Of Cardiology
Cancer-associated cachexia and underlying biological mechanisms
Tags: 2006, Annual Review Of Nutrition, Appetite, Backlog, Baracos VE, Cachexia/me [Metabolism], Cachexia/th [Therapy], Energy Intake/ph [Physiology], Energy Metabolism/ph [Physiology], Humans, IM, Journal Article, Neoplasms/co [complications], Neoplasms/me [Metabolism], Nutritional Support, Palliative Care, Weight Loss
The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.
Tags: 2006, Adaptation, Backlog, Barlow JH, Child, Child: Care, Health and Development, Children W/SNI, Chronic Disease/psychology/rehabilitation, Ellard DR, Evidence-based Medicine, Family Health, Humans, Journal Article, Literature review, Longitudinal Studies, Mental Disorders/etiology, Meta-Analysis, Parents/psychology, Psychological, Siblings/psychology
Clinical and MRI correlates of cerebral palsy: the European Cerebral Palsy Study
Tags: 2006, Backlog, Bax M, Brain/pathology, Cerebral Palsy/epidemiology/etiology/physiopathology, Child, Cross-sectional Studies, Delivery, Female, Flodmark O, Humans, Infant, Infectious, JAMA, Journal Article, Magnetic Resonance Imaging, Male, Multiple, Newborn, Obstetric, Pregnancy, Pregnancy Complications, Premature, Preschool, Risk Factors, Tydeman C
Scholarly Literature Review: Efficacy of Psychological Interventions for Pediatric Chronic Illnesses
Controlled clinical trials in cancer pain. How controlled should they be? A qualitative systematic review
Risk taking, depression, adherence, and symptom control in adolescents and young adults with asthma
A prospective evaluation of opioid weaning in opioid-dependent pediatric critical care patients
Tags: 2006, Analgesics, Anesthesia & Analgesia, Backlog, Berens RJ, Child, Colpaert KD, Comparative Study, Critical Care/methods/statistics & numerical data, Czarnecki ML, Double-Blind Method, Female, Ghanayem NS, Hoffman GM, Humans, Infant, Journal Article, Male, Meyer MT, Mikhailov TA, Nelson TJ, Non-U.S. Gov't, Opioid-Related Disorders/epidemiology, Opioid/therapeutic use, Pain/drug therapy/epidemiology, PedPal Lit, Preschool, Prospective Studies, Research Support, Soetenga DJ, Substance Withdrawal Syndrome/epidemiology, Weisman SJ
In-hospital mortality for children with hypoplastic left heart syndrome after stage I surgical palliation: teaching versus nonteaching hospitals
Tags: 2006, Adolescent Child Child, Backlog, Berry JG, Cowley CG, Extramural Research Support, Hoff CJ, Journal Article, N.I.H., NewbornPalliative Care Pulmonary Artery/surgery Research Support, P.H.S. Survival Rate United States/epidemiology, Pediatrics, PedPal Lit, Preschool Cohort Studies Comparative Study Heart Ventricles/surgeryHospital MortalityHospitals, Srivastava R, Teaching Humans Hypoplastic Left Heart Syndrome/mortality/surgery Infant Infant, U.S. Gov't
Palliative care in the fetus and newborn
Long-term benefits of deflazacort treatment for boys with Duchenne muscular dystrophy in their second decade
Noninvasive ventilation during gastrostomy tube placement in patients with severe duchenne muscular dystrophy: case reports and review of the literature
Tags: 2006, Adult Follow-Up StudiesGastrostomy Humans Laryngeal Masks Male Muscular Dystrophy, Backlog, Birnkrant DJ, Duchenne/therapy Positive-Pressure Respiration/methods Retrospective Studies Severity of Illness Index, Ferguson RD, Gordon GJ, Journal Article, Martin JE, Pediatric Pulmonology, PedPal Lit
Missing data: prevalence and reporting practices
Tags: 2006, Backlog, Behavioral Sciences/statistics & numerical data, Bias (Epidemiology), Bibliographic, Bodner TE, Data Collection/statistics & numerical data, Data Interpretation, Databases, Humans, Journal Article, Missing Data Articles, Psychological Reports, Publishing/statistics & numerical data, Research Design/statistics & numerical data, Social Sciences/statistics & numerical data, statistical, United States
Retrospective, multicentric study of 180 children with cytochrome C oxidase deficiency
Tags: 2006, Adolescent, Backlog, Bohm M, Carrier Proteins, Child, Cytochrome-c Oxidase Deficiency/diagnosis/genetics/mortality, Czech Republic, DNA, Female, Hansikova H, Houstek J, Houstkova H, Humans, Infant, Journal Article, Karczmarewicz E, Male, Membrane Proteins, Mierzewska H, Mitochondrial Proteins, Mitochondrial/genetics, Mutation, Newborn, Pediatric Research, Piekutowska-Abramczuk D, Poland, Preschool, Prognosis, Pronicka E, Pronicki M, Proteins/genetics, Q3 Scoping Review Results, Sequence Deletion, Slovakia, Sykut-Cegielska J, Tesarova M, Vesela K, Zeman J
Perceptions of the term palliative care
Adolescent psychopharmacology: drugs for mood disorders
Tags: 2006, Adolescent, Adolescent Medicine Clinics, Antidepressive Agents/adverse effects/therapeutic use, Antimanic Agents/adverse effects/therapeutic use, Attention Deficit Disorder with Hyperactivity/epidemiology, Backlog, Bolfek A, Comorbidity, Diagnostic and Statistical Manual of Mental Disorders, Humans, Jankowski JJ, Journal Article, Mood Disorders/diagnosis/drug therapy/epidemiology, Primary Health Care, Safety, Suicide/prevention & control, Summergrad P, Waslick B
Integrating POLST into palliative care guidelines: a paradigm shift in advance care planning in oncology.
Tags: 2006, Advance Care Planning, Advance Directives, Backlog, Bomba Patricia A, Decision Making, DNAR, Humans, Journal Article, Journal Of The National Comprehensive Cancer Network, Life Support Care/st [Standards], Medical Oncology, Neoplasms/px [psychology], Neoplasms/th [therapy], Palliative Care, Physician's Practice Patterns/og [Organization & Administration], Vermilyea D
Carrier testing in minors: a systematic review of guidelines and position papers
[Management of cancer pain in children]
Tags: 2006, Analgesics/therapeutic use, Annales pharmaceutiques françaises, Antineoplastic Agents/adverse effects, Backlog, Bourdon O, Brion F, Chemistry, Child, English Abstract, Humans, Iatrogenic Disease, Journal Article, Neoplasms/complications, Pain Measurement, Pain/drug therapy/etiology, PedPal Lit, Pharmaceutical
Emerging strategies for the treatment of hereditary metabolic storage disorders.
Tags: 1-Deoxynojirimycin/analogs & derivatives/therapeutic use, 2006, Backlog, Bone Marrow Transplantation, Brady RO, Enzyme Inhibitors/therapeutic use, Fabry Disease/therapy, Gangliosidosis, Gaucher Disease/therapy, Gene Therapy, GM1/therapy, Humans, Imino Sugars/therapeutic use, Journal Article, Longitudinal Studies, Piperidines/therapeutic use, Rejuvenation Research
An evaluation of two subcutaneous infusion devices in children receiving palliative care
Tags: 2006, Backlog, Breen M, Journal Article, Paediatric Nursing, PedPal Lit