Browse Items (13 total)

Tags: 2005, Active Humans Hypnotics and Sedatives/administration & dosage Myoclonus/therapy Pain, and emotional issues they raise., and health care workers can all benefit from talking about the complex medical, as well as to the medical and nursing staff, Backlog, clinicians must understand and document which actions are consistent with an intention to relieve symptoms rather than to hasten death. The patient or family should agree with plans for palliative sedation. The attending physician needs to explain to them, Conscious Sedation Euthanasia, developed myoclonus. After other approaches proved ineffective, ethical, Extramural Research Support, Family, Intractable/therapyPalliative Care Physician-Patient Relations Research Support, JAMA, Journal Article, Lo B, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Terminal Care Unconsciousness%X Despite skilled palliative care, palliative sedation was an option of last resort. The doctrine of double effect, PedPal Lit, permits physicians to provide high doses of opioids and sedatives to relieve suffering, provided that the intention is not to cause the patient's death and that certain other conditions are met. Such high doses are permissible even if the risk of hastening death is foreseen. Because intention plays a key role in this doctrine, receiving high doses of opioids administered to relieve pain, Rubenfeld G, some dying patients experience distressing symptoms that cannot be adequately relieved. A patient with metastatic breast cancer, the details of care and the justification for palliative sedation. Because cases involving palliative sedation are emotionally stressful, the patient, the traditional justification for palliative sedation, U.S. Gov't

Tags: 2005, Advance Directives Colonic Neoplasms/secondary/therapy, Backlog, Communication, Decision Making Humans Interprofessional Relations Liver Neoplasms/secondary/therapy Male Middle Aged Palliative Care Pancreatic Neoplasms/pathology/therapy, Extramural Research Support, JAMA, Journal Article, N.I.H., Non-P.H.S. Research Support, Non-U.S. Gov't Research Support, P.H.S.Terminal Care, PedPal Lit, Physician-Patient Relations Research Support, Tulsky JA, U.S. Gov't

Tags: 2005, Adolescent ChildClinical Trials Female Health Status Humans Leukemia/drug therapy/physiopathology/psychology MalePediatricsProxy Quality of Life/psychology Research Support, Backlog, Burghen E, Cox CL, domains specific and sensitive to both disease and treatment, Extramural Research Support, Hinds P, Journal Article, Lensing S, N.I.H., Non-U.S. Gov't Research Support, P.H.S.Sickness Impact Profile%X BACKGROUND: With increased cure rates, pediatric oncology protocols increasingly seek to document the impact of treatment on patients' disease, PedPal Lit, Pui CH, Quality of Life Research, Rai SN, Symptoms, the proxy respondents evaluated the ease of use of the instrument and the data quality. RESULTS: As patients' health status declined, U.S. Gov't

Tags: 2005, Abdominal Neoplasms/complications Abdominal Pain/etiology/prevention & control Analgesics, Anghelescu DL, Backlog, Dissociative/administration & dosage Child, Extramural Research Support, Journal Article, Journal of Pain and Symptom Management, N.I.H., Non-U.S. Gov't Research Support, Oakes L, Opioid/administration & dosage Anesthetics, P.H.S. Terminal Care/methods Treatment Outcome, PedPal Lit, Preschool Drug Administration Schedule Drug Combinations Drug Tolerance Female Humans Ketamine/administration & dosage Neuroblastoma/complications Palliative Care/methods Research Support, U.S. Gov't

Tags: 2005, Adolescent Adolescent Psychology Attitude of Health Personnel Attitude to Death Attitude to Health Child Child Psychology Clinical Nursing Research/, Attitudes, Backlog, Extramural Research Support, Hinds PS, Journal Article, Lafond DA, Multi-site Ethics, N.I.H., Non-U.S. Gov't Research Support, Nursing Models, Nuss SL, organization & administration Communication Cooperative Behavior Decision Making Forecasting Health Knowledge, P.H.S. Terminal Care/organization & administration, PedPal Lit, Practice Health Priorities Humans Models, Psychological Neoplasms/nursing/psychology Oncologic Nursing/organization & administration Parents/psychology Pediatric Nursing/organization & administration Practice Guidelines Research Design Research Support, Seminars In Oncology Nursing, U.S. Gov't

Tags: 2005, Adolescent Adult Anxiety/prevention & control/psychology Child Child, Backlog, Burant C, Drotar D, Extramural Research Support, Journal Article, Journal of Pediatric Psychology, Kodish E, Miller VA, N.I.H., P.H.S.%X OBJECTIVE: To address the need to describe informed consent in pediatric settings and to identify barriers to parent understanding, parent anxiety and control as a result of the ICC, PedPal Lit, Preschool Clinical TrialsCommunication Decision Making Female Humans InfantInformed Consent Leukemia/therapy Male Parents/psychologyProfessional-Family Relations Research Support, U.S. Gov't

Tags: 2006, Adaptation, Backlog, Extramural Research Support, Journal Article, Journal of Pediatric Psychology, Larson S, Long A, N.I.H., Non-U.S. Gov't Stress Disorders, PedPal Lit, Phipps S, Post-Traumatic/epidemiology/psychology Survivors/psychology United States/epidemiology, Psychological Adolescent Adult Analysis of Variance Child Cross-Sectional Studies Defense Mechanisms Female Humans Male Neoplasms/psychology Parents/psychologyPersonality Research Support, Rai SN

Tags: 2005, Adolescent Adolescent Psychology Child Child Psychology Clinical Nursing Research/methods Humans Neoplasms/nursing/psychologyOncologic NursingPediatric Nursing Psychometrics/methods/standards Research Support, Backlog, Extramural Research Support, Journal Article, Lynn MR, Mishel MH, N.I.H., Non-U.S. Gov't, Nursing Research, PedPal Lit, Stewart JL

Tags: & Hall, 2001)., 2001). Consent processes are standardized, 2005, Adolescent Adolescent Behavior/physiology/psychologyAdolescent Development/physiologyAdolescent Psychology Adult Child Child Advocacy Cognition/physiology Decision Making Health Knowledge, adolescents often are conceptualized as children. Adolescents represent a vulnerable study population. To effectively and ethically involve adolescents in research, and federal regulations have been established to protect both adults and children. As a research population, and psychosocial developmental factors, and they must bear in mind that the voluntary and informed consent principles may be easily and inadvertently violated (Nelson & Rushton, as well as an understanding of the research processes needed to protect adolescents. Adolescents need to be active participants in the decision-making process (e.g., assent/consent, Attitudes, Backlog, cognitive, etc.). Researchers must be aware of and accountable for the power they hold in influencing adolescents' decisions to participate in research, Extramural Research Support, however, Journal Article, Journal of Neuroscience Nursing, knowledge of the risks and benefits, N.I.H., P.H.S. Vulnerable Populations/psychology%X The research establishment often has a "one size fits all" mentality with regard to the research process (Broome, PedPal Lit, PracticeHuman Experimentation Humans Informed Consent/psychology Mental Competency/psychology Minors/education/psychology Nurse's Role Parental Consent Power (Psychology) Research Subjects/psychology Research Support, researchers must understand and integrate knowledge of the variability in physical, Richards, Turner-Henson A, U.S. Gov't

Tags: 2006, Adolescent Adult Attitude to Health Child, Backlog, Child Psychology Data Collection/methods Decision Making Female Hematologic Tests Humans Informed Consent Male, Extramural Research Support, Gattuso J, Hinds P, Journal Article, Journal Of Advanced Nursing, N.I.H., Non-U.S. Gov't Sex Factors Terminal Care/psychology, Nursing Research Parents/, PedPal Lit, psychology Patient Selection Prospective Studies Questionnaires Refusal to Participate/ethnology/, psychology Research Support, Srivastava K, Tong X

Tags: 2006, Academic Emergency Medicine, Adolescent Adult African Americans/statistics & numerical data Age Distribution Chi-Square Distribution Child Child, Backlog, Extramural Research Support, Journal Article, Lee LK, Mao C, N.I.H., Newborn Logistic Models Male Massachusetts/epidemiology Multivariate Analysis Near Drowning/epidemiology Odds Ratio Outcome Assessment (Health Care) Prevalence Research Support, P.H.S. Retrospective Studies Risk Factors Sex Distribution Survival Analysis, PedPal Lit, Preschool Drowning/epidemiology Female Hispanic Americans/statistics & numerical data Humans Infant Infant, Thompson KM, U.S. Gov't

Tags: 2005, Adaptation, Backlog, Bradley JF, but it has not been examined in families whose children have both complex physical and developmental disabilities. Developmental delays compounded the effects of the children's physical chronic conditions, Extramural Research Support, Journal Article, N.I.H., Non-U.S. Gov't Research Support, P.H.S. Schools, parents recognized normal and positive aspects of their lives while acknowledging the profound challenges that their families faced. Parents concluded that it was possible to have a good life that was not necessarily normal by usual standards ., PedPal Lit, Preschool Chronic Disease Comparative Study Cost of IllnessDevelopmental DisabilitiesDisabled Children Family/psychology Humans Qualitative Research Research Support, Psychological Caregivers/psychology ChildChild Rearing Child, Qualitative Health Research, Rehm RS, severely affecting how families organized and managed their daily lives, U.S. Gov't, with the result that families did not fit currently established attributes of normalization. Instead

Tags: 2006, Adolescent Child Child, Backlog, Berry JG, Cowley CG, Extramural Research Support, Hoff CJ, Journal Article, N.I.H., NewbornPalliative Care Pulmonary Artery/surgery Research Support, P.H.S. Survival Rate United States/epidemiology, Pediatrics, PedPal Lit, Preschool Cohort Studies Comparative Study Heart Ventricles/surgeryHospital MortalityHospitals, Srivastava R, Teaching Humans Hypoplastic Left Heart Syndrome/mortality/surgery Infant Infant, U.S. Gov't