Location of end-of-life care of children with cancer: A systematic review of parent experiences

Title

Location of end-of-life care of children with cancer: A systematic review of parent experiences

Creator

Noyes M; Herbert A; Moloney S; Irving H; Bradford N

Publisher

Pediatric Blood and Cancer

Date

2022

Description

Objective: To synthesize existing qualitative research exploring the experiences of parents caring for children with cancer during the end-of-life phase, and the factors that influence parental decision-making when choosing the location of end-of-life care and death for their child. Result(s): This review included 15 studies of 460 parents of 333 children and adolescents who died from progressive cancer. Where reported, the majority (58%) of children died at home or in a hospital (39%), with only a small fraction dying in a hospice. Factors impacting decision-making for the location of care included the quality of communication and the quality of care available. Themes related to choosing home for end-of-life care and death included honoring the child's wishes, the familiarity of home, and parents' desire to be their child's primary carer. Preference for the location of death in the hospital included trust in hospital staff, practical logistics, and the safety of the hospital environment. Copyright © 2022 Wiley Periodicals LLC.

Rights

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Citation List Month

2022 Special Edition 3 - Oncology List

Citation

Noyes M; Herbert A; Moloney S; Irving H; Bradford N, “Location of end-of-life care of children with cancer: A systematic review of parent experiences,” Pediatric Palliative Care Library, accessed May 21, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18633.