Health-Care Workers' Understanding of and Barriers to Palliative Care Services to Aboriginal Children with Cancer

Title

Health-Care Workers' Understanding of and Barriers to Palliative Care Services to Aboriginal Children with Cancer

Creator

Jessop S; Phelan C

Identifier

Publisher

Journal of Paediatrics and Child Health

Date

2022

Description

AIM: To identify barriers in the understanding and provision of optimal palliative care to Aboriginal children with cancer by health-care staff, with the aim to support education and training that highlights the importance of cultural, physical and spiritual needs at end-of-life. METHODS: Medical and nursing staff working in Departments of Palliative Care, Metabolic Medicine and Haematology/Oncology at the Women's and Children's Hospital in Adelaide, South Australia, were asked to complete a survey regarding their experience in treating Aboriginal children receiving palliative care. The survey addressed the understanding of cultural and spiritual needs, barriers encountered and opinions for improved services. RESULTS: The survey was completed by 34 participants. 91.2% (n = 31) had provided care to Aboriginal children who were receiving care during palliative and end-of-life phases for a diagnosis of cancer, 58.8% (n = 20) of which had supported children returning home. Only 23.5% of participants reported comfort in communicating about spiritual/cultural needs with patients and families. There was minimal previous exposure to education (17.6%), yet all participants were interested in future education opportunities. CONCLUSION: This study highlights a paucity in understanding and comfort among health-care workers in treating Aboriginal children at end-of-life. New models, including the training of staff, educational resources and involvement of Aboriginal health-care workers, may improve care.

Rights

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Citation List Month

2022 Special Edition 3 - Oncology List

Citation

Jessop S; Phelan C, “Health-Care Workers' Understanding of and Barriers to Palliative Care Services to Aboriginal Children with Cancer,” Pediatric Palliative Care Library, accessed April 26, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18630.