Impact of Pediatric Primary Palliative Care Education and Mentoring in Practice

Title

Impact of Pediatric Primary Palliative Care Education and Mentoring in Practice

Creator

Lafond D; Perko K; Fisher D; Mahmood LA; Hinds PS

Publisher

Journal of Hospice & Palliative Nursing

Date

2021

Subject

education; mentoring; moral distress; palliative care; pediatrics; primary palliative care

Description

Primary palliative care education and mentoring strengthens frontline clinicians' confidence and competence in pediatric palliative care, and potentially mitigates their moral distress. The project aims were to improve the knowledge, attitudes, and skills of frontline intradisciplinary clinicians in caring for children with serious conditions and their families. We undertook an intensive educational initiative consisting of didactic and mentoring sessions, and mentored quality improvement projects. Outcomes included the following: 93.3% of participants reported comfort in discussing death, suffering, spirituality, and hope with families, and increased comfort in end-of-life care (89.5%), increased knowledge (94.7%) and skills (100%), improved communication (100%), and being better prepared to discuss and access palliative care resources (100%). Secondary outcomes included 33% increase in specialty pediatric palliative care consults and 98% increase in the integration of specialty palliative care for patients with high-risk cancers. Specialty pediatric palliative care referral became standard for patients with cystic fibrosis, high-risk solid and brain tumors, heart failure, and patients receiving a stem cell transplant. Clinician self-reported moral distress decreased by 30%. This project improved primary palliative care knowledge, attitudes, and confidence in skills, access to care, and family satisfaction, and decreased clinician self-reported moral distress. We report on the 4-year period of project implementation and sustainability.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2021 List

Collection

Citation

Lafond D; Perko K; Fisher D; Mahmood LA; Hinds PS, “Impact of Pediatric Primary Palliative Care Education and Mentoring in Practice,” Pediatric Palliative Care Library, accessed June 18, 2024, https://pedpalascnetlibrary.omeka.net/items/show/17719.