The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer

Title

The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer

Creator

Dos Santos M R; Szylit R; Deatrick J A; Mooney-Doyle K; Wiegand D L

Publisher

Journal of family nursing

Date

2020

Subject

grief; cancer; end-of-life care; parents; bereavement; family nursing; child care; professional family relations

Description

Relationship strains between families and providers can have intense repercussions on the bereavement experience. Little is known about how to define and differentiate relationships within various interpersonal contexts and how those families manifest their bereavement. Therefore, the purpose of this study was to understand parental experiences about their relationships with providers at their child's end of life with cancer and describe the manifestations of their grief. In this hermeneutic study, data were collected through interviews with bereaved parents and observation of families and health care providers in the hospital setting. Parents variously experienced complex relationships characterized by support, collaboration, trust, silence, deterioration, hierarchy, and tolerating, which were interchangeable and varied overtime, as new meanings were incorporated into their experiences. Through better understanding of the nature of these relationships, nurses can provide leadership in research and practice for identifying consequences of their care.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

Oncology 2020 List

Collection

Citation

Dos Santos M R; Szylit R; Deatrick J A; Mooney-Doyle K; Wiegand D L, “The Evolutionary Nature of Parent-Provider Relationships at Child's End of Life With Cancer,” Pediatric Palliative Care Library, accessed July 29, 2021, https://pedpalascnetlibrary.omeka.net/items/show/17364.

Social Bookmarking