A survey demonstrates limited palliative care structures in paediatric nephrology from the perspective of a multidisciplinary healthcare team

Title

A survey demonstrates limited palliative care structures in paediatric nephrology from the perspective of a multidisciplinary healthcare team

Creator

Thumfart J; Bethe D; Wagner S; Pommer W; Rheinlander C; Muller D

Identifier

Publisher

Acta Paediatr

Date

2018

Subject

Children; palliative care; dialysis; chronic kidney disease; end stage renal disease

Description

AIM: Children and adolescents with end stage renal disease face a high morbidity and mortality. Palliative care provides a multidisciplinary approach to reduce disease burden and improve quality of life. This study evaluated concepts and current structures of palliative care from the perspective of a multidisciplinary paediatric nephrology team including physicians, nurses and psychosocial health professionals. METHODS: Evaluation was done by an online survey sent to the members of the German Society of Nephrology and to the nurse managers of German paediatric dialysis centres between April 9th 2018 and May 31th 2018. RESULTS: Out of the 52 respondents, 54% were physicians, 21% nurses and 25% psychosocial health professionals. The quality of actual palliative care service was rated as moderate (3.3 on a scale from one to six). Specialised palliative care teams (54%) and the caring paediatric nephrologist (50%) were considered as primarily responsible for palliative care. Two-thirds wished for training in palliative care. In only 15% of the respondents' centres, palliative care specialisation existed. CONCLUSION: Palliative care structures in paediatric nephrology were not sufficient in the view of the multidisciplinary healthcare team. Therefore, efforts should be taken to integrate palliative care into the routine treatment of children and adolescents with chronic kidney diseases. This article is protected by copyright. All rights reserved.

Citation List Month

February 2019 List

Collection

Citation

Thumfart J; Bethe D; Wagner S; Pommer W; Rheinlander C; Muller D, “A survey demonstrates limited palliative care structures in paediatric nephrology from the perspective of a multidisciplinary healthcare team,” Pediatric Palliative Care Library, accessed July 27, 2021, https://pedpalascnetlibrary.omeka.net/items/show/16038.

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