Life is never the same: childhood cancer narratives

Title

Life is never the same: childhood cancer narratives

Creator

Woodgate RL

Publisher

European Journal Of Cancer Care

Date

2006

Subject

PedPal Lit

Description

No longer considered an inevitably fatal disease, childhood cancer nonetheless presents many challenges for children and families. Developing an understanding of the impact that childhood cancer has on the lives of children and their families is essential to being able to provide comprehensive and sensitive care to them. Hence, a longitudinal qualitative study guided by the philosophy of interpretive interactionism was conducted to arrive at an understanding of what it was like to experience childhood cancer and its symptom course from the perspectives of children and their families. Thirty-nine children with a variety of cancer diagnoses and their families participated. Data collection methods included formal and informal interviewing and participant observation. As part of the data analysis process, narratives of the children's and families' experiences were created that provided direction in comprehending how childhood cancer and its symptoms affected children and their families. The narratives helped to illuminate the reality of the children's and families' experiences. This paper focuses on describing the core narrative lived by the children and their families. The core narrative, 'life is never the same', represents the extent to which cancer truly affected the children's and their families' life stories. Three narratives embedded in the core narrative are also described: (1) losses: shared and unique; (2) moving forward, moving on; and (3) it is never over with . . . always a waiting game. The narratives in this paper are valuable to those healthcare professionals who seek to develop a greater understanding of how childhood cancer and its symptoms impacts on children's and families' ways of being in the world.
2006

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

8-18

Issue

1

Volume

15

Citation

Woodgate RL, “Life is never the same: childhood cancer narratives,” Pediatric Palliative Care Library, accessed July 7, 2022, https://pedpalascnetlibrary.omeka.net/items/show/13479.

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