[How to discuss death with a dying child: a story can help?]

Title

[How to discuss death with a dying child: a story can help?]

Creator

Auvrignon A; Fasola S; Loedec C; Aumont C; Nomdedeu S; Landman-Parker J; Gervaise S; Vaudre G; Renolleau S; Leverger G

Publisher

Archives De Pediatrie

Date

2006

Subject

PedPal Lit

Description

Is it necessary - and possible - to discuss death with a child in palliative phase? How should one approach the subject? A recent Swedish study demonstrated the benefits for parents who discussed with their child his or her imminent death, and raised the question of the role nursing can play to help parents. The mother of one child treated in our unit recently wrote a story 48 hours before the child's death. The story served to broach a number of recurrent questions often raised by dying children and their families: fear of the unknown, of being replaced, the inevitability of death, grief, and fear of being forgotten... The story was given to 13 families with dying children. In order to evaluate the story's impact on families and to determine whether a document which stimulates dialogue should continue to be given to parents, we asked that they fill out a questionnaire. Fifty-five percent of parents answered, and confirmed that the story was experienced as a positive thing and helped parents to talk with their children. This study raises many questions and should be part of a global accompaniment strategy. A review of medical, general and children's literature, as well the results of our study, lead us to conclude that the medical body should lend its full support to families who wish to engage in this dialogue with their children.
2006

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Type

Journal Article

Citation List Month

Backlog

Pages

488-500

Issue

5

Volume

13

Citation

Auvrignon A; Fasola S; Loedec C; Aumont C; Nomdedeu S; Landman-Parker J; Gervaise S; Vaudre G; Renolleau S; Leverger G, “[How to discuss death with a dying child: a story can help?],” Pediatric Palliative Care Library, accessed January 17, 2022, https://pedpalascnetlibrary.omeka.net/items/show/13150.

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