Regional Paediatric Palliative Care Network Model Improves The Quality Of Life Of Children On Long-term Ventilation At Home
Title
Regional Paediatric Palliative Care Network Model Improves The Quality Of Life Of Children On Long-term Ventilation At Home
Creator
Rusalen F; Agosto C; Brugnaro L; Benini F
Identifier
10.1111/apa.13769
Publisher
Acta Paediatrica
Date
2017
Description
In the last 20 years, the prevalence of children on domiciliary long-term ventilation (LTV) has increased in many countries, and in Italy it is now 4.3 of the 100 000. The complex management of these patients’ conditions requires highly specialised expertise that is provided by integrated multidisciplinary teams and calls for solutions from a number of institutional agencies. The global care offered to these patients by paediatric palliative care (PPC) also embraces their social needs. We present a retrospective cross-sectional analysis of the regional database of the Veneto Regional Center for PPC in north-east Italy, which organises, coordinates and supports the PCC network for the region. It guarantees 24-hours-a-day assistance by a multidisciplinary team that responds to the clinical, psychological, organisational, social and spiritual needs of the child and family.
Rights
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Citation List Month
June 2017 List
URL Address
http://www.ncbi.nlm.nih.gov/pubmed/28135759
Citation
Rusalen F; Agosto C; Brugnaro L; Benini F, “Regional Paediatric Palliative Care Network Model Improves The Quality Of Life Of Children On Long-term Ventilation At Home,” Pediatric Palliative Care Library, accessed April 26, 2024, https://pedpalascnetlibrary.omeka.net/items/show/10912.