Browse Items (134 total)
- Tags: Parents/psychology
Metasynthesis of Factors That Influence Parents' Participation in Pain Management for Their Infants in the NICU
Tags: 2020, August 2021 List, Burry L, Chinian N, Franck LS, Journal of Obstetric, Gynecologic, & Neonatal Nursing, McAllister M, McNair C, Neonatal Intensive Care Unit Standards, Newborn Infant, Nicu, Pain Management, Pain Management/methods/standards/trends, Parenting/psychology/trends, parents’ participation, Parents/psychology, Patient Participation/methods/psychology, Patient Satisfaction, Professional-patient Relations, Qualitative Research, Quality of Health Care/standards, Shah V, Stevens B, Taddio A
Navigator-Based Intervention to Support Communication in the Pediatric Intensive Care Unit: A Pilot Study
Tags: 2020, Adolescent, American Journal of Critical Care, Aniciete DY, Attitude Of Health Personnel, August 2021 List, Brown M, Charleston E, Child, Ciolino JD, Clayman ML, Communication, Decision Making, Emotions, Family/psychology, Fragen P, Infant, Intensive Care Units Pediatric/organization & administration/standards, Jones V A, Malakooti M, Michelson KN, Parents/psychology, Patient Discharge, Persell SD, Pilot Projects, Preschool Child, Professional-family Relations, Rychlik K, Socioeconomic Factors, Sorce LR, Spadino P, White D
Parent Empowerment in Pediatric Healthcare Settings: A Systematic Review of Observational Studies
The psychosocial well-being of children with chronic disease, their parents and siblings: an overview of the research evidence base.
Tags: 2006, Adaptation, Backlog, Barlow JH, Child, Child: Care, Health and Development, Children W/SNI, Chronic Disease/psychology/rehabilitation, Ellard DR, Evidence-based Medicine, Family Health, Humans, Journal Article, Literature review, Longitudinal Studies, Mental Disorders/etiology, Meta-Analysis, Parents/psychology, Psychological, Siblings/psychology
Using videotelephony to support paediatric oncology-related palliative care in the home: from abandoned RCT to acceptability study
Tags: 2009, Adolescent, Adult, Armfield NR, Australia, Backlog, Barnett AG, Bensink ME, Child, Computer Communication Networks/economics, Computer Security, Continuity Of Patient Care, Cost-Benefit Analysis, Early Termination of Clinical Trials, Female, Hallahan A, Health Services Accessibility/economics, Home Care Services/economics, Humans, Irving H, Journal Article, Male, Neoplasms/therapy, Palliative Care, Palliative Medicine, Parents/psychology, Patient Acceptance of Health Care, Patient Satisfaction, Pinkerton R, PPC Book Chapter 2011 (Kim Widger), Preschool, Rural Health Services/economics, Russell T, Scuffham P, Telemedicine/economics/instrumentation/methods, Theodoros DG, Videoconferencing/economics/instrumentation, Wootton R
Health status of bereaved parents
Tags: 1996, Adolescent, Adult, Backlog, Bereavement, Birenbaum LK, Case-Control Studies, Child, Death, Female, Health Status, Humans, Infant, Journal Article, Longitudinal Studies, Male, Neoplasms/psychology, Nursing Research, Parent caregivers, Parents/psychology, Phillips DS, Preschool, Questionnaires, Stewart BJ, Time Factors
Understanding parents' approaches to care and treatment of children with cancer when standard therapy has failed
Tags: 2007, Adolescent, Adult, Backlog, Belasco C, Belasco JB, Bluebond-Langner M, Caregivers/psychology, Child, Decision Making, Goldman A, Great Britain, Humans, Infant, Journal Article, Journal Of Clinical Oncology, Neoplasms/therapy, Parents/psychology, Preschool, Prospective Studies, Terminally Ill, United States
Do parents want to be present during invasive procedures performed on their children in the emergency department? A survey of 400 parents
Tags: 1999, Adolescent, Adult, Aged, Annals Of Emergency Medicine, Attitude To Health, Backlog, Boie ET, Brummett C, Cardiopulmonary Resuscitation/psychology, Child, Choice Behavior, Emergency Treatment/psychology, Female, Hospitalized/psychology, Humans, ICU Decision Making, Intratracheal/psychology, Intubation, Journal Article, Middle Aged, Moore GP, Nelson DR, Parents/psychology, Patients' Rooms, Penetrating/therapy, Phlebotomy/psychology, Questionnaires, Spinal Puncture/psychology, Wounds
Defining Legacy: The Perceptions of Pediatric Health Care Providers
Tags: 2020, Adaptation Psychological, Attitude To Death, Boles J, Child, Child Hospitalized/psychology, Clinical Pediatrics, Cook J, Dunbar J, February 2021 List, Female, Health Care, Humans, Jones M, legacy, Male, Parents/psychology, Pediatrics, Pediatrics/standards, perceptions, Physician's Role, Providers, Social Support, Terminal Care/psychology, Terminally Ill/psychology
Resilience to loss in bereaved spouses, bereaved parents, and bereaved gay men
Tags: 2005, Affect, Backlog, Bereavement, Bonanno GA, Extramural, Folkman S, Homosexuality, Humans, Interview, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, Moskowitz JT, N.I.H., P.H.S., Papa A, Parents/psychology, Psychological, Research Support, Social Behavior, Spouses/psychology, U.S. Gov't
Family Conferences In The Neonatal Icu: Observation Of Communication Dynamics And Contributions.
OBJECTIVES:
Clinicians in the neonatal ICU must engage in clear and compassionate communication with families. Empirical, observational studies of neonatal ICU family conferences are needed to develop counseling best practices and to train…
Tags: 2016, Arnold RM, Boss RD, Communication, Critical Illness/psychology, December 2016 List, Decision Making, Donohue PK, Empathy, Female, Humans, Infant Newborn, Intensive Care Units Neonatal, Larson SM, Male, Parents/psychology, Pediatric Critical Care Medicine, Professional-family Relations, Qualitative Research, Roter DL, Terminal Care/psychology
Looking back: Identifying supportive care and unmet needs of parents of children receiving specialist paediatric palliative care from the bereavement perspective
Tags: 2022, August 2022 List, Bereavement, BMC Palliative Care, Bokemeyer C, Bronsema A, Cancer, Child, Children, Escherich G, Fin-ped ii, Grief, Humans, Neoplasms/psychology, Oechsle K, Palliative Care, Palliative Care/psychology, Parents, Parents/psychology, Rutkowski S, Support services, Supportive care needs, Theißen T, Ullrich A, Wikert J
Predicting death in children
Gender differences in parenting a child with cancer
Tags: 1996, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Barbarin OA, Brown KA, Child, Female, Gender Identity, Humans, Journal Article, Male, Models, Neoplasms/psychology, Parent caregivers, Parent-child Relations, Parenting/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Social Work in Health Care, Socialization
Parental assessment of pain coping in individuals with intellectual and developmental disabilities
Tags: 2011, Adaptation, Adolescent, Adult, Backlog, Breau LM, Burkitt CC, Child, Developmental Disabilities/complications/psychology, Female, Humans, Intellectual Disability/complications/psychology, Journal Article, Male, Pain Measurement, Pain/complications/psychology, Parents/psychology, Preschool, Psychological, Questionnaires, Research in Developmental Disabilities, Social Support, Young Adult, Zabalia M
End-of-life care in the pediatric intensive care unit: research review and recommendations
Tags: 2004, Adult, Analgesia/ethics/standards, Attitude Of Health Personnel, Attitude To Death, Attitudes, Backlog, Bereavement, Burns JP, Child, Conscious Sedation/ethics/standards, Critical Care Clinics, Decision Making, Evidence-based Medicine, Forecasting, Health Care/organization & administration, Health Knowledge, Humans, ICU Decision Making, Infant, Infant Mortality, Intensive Care Units, Intensive Care/ethics/organization & administration/psychology, Journal Article, Parents/psychology, Pediatric/ethics/organization & administration, Practice, Practice Guidelines, Quality Assurance, Resuscitation/ethics/standards, Rushton CH, Terminal Care/ethics/organization & administration/psychology, United States/epidemiology, Withholding Treatment/ethics/standards
Posttraumatic growth in parents caring for a child with a life-limiting illness: A structural equation model.
Tags: 2014, Adult, Aged, Cadell S, Caregivers/psychology, Child, Davies E, Disabled Children/psychology, Hemsworth D, Human Development, Humans, Liben S, Male, Middle Aged, Models Psychological, Palliative Care/psychology, Parents/psychology, Siden H, Smit QT, Steele R, Straatman L, The American Journal Of Orthopsychiatry, Young Adult
Helping a child to live whilst dying
Tags: 1980, Attitude Of Health Personnel, Attitude To Death, Backlog, Brachial Plexus, Case Report, Chapman JA, Child, Child Psychology, Female, Goodall J, Grief, Hospital Units/standards, Hospitalized/psychology, Human, Journal Article, Lancet, Neoplasm Metastasis, Pain/drug Therapy, Palliative Care/psychology, Parents/psychology, Sarcoma/drug therapy/radiotherapy, Terminal Care/psychology
Family function in families of children with Duchenne muscular dystrophy
Tags: 2007, Adaptation, Adult, Age Factors, Backlog, Caregivers/psychology, Chen JY, Child, Clark MJ, Cost Of Illness, Cross-sectional Studies, Disabled Children, Duchenne/economics/physiopathology, Family & Community Health, Family Health, Family Relations, Female, Humans, Journal Article, Male, Middle Aged, Muscular Dystrophy, Parents/psychology, Preschool, Psychological, Questionnaires, Sickness Impact Profile, Social Support, Socioeconomic Factors, Stress, Taiwan
Emotionally focused interventions for couples with chronically ill children: a 2-year follow-up
Tags: 2002, Adaptation, Analysis of Variance, Backlog, Child, Chronic Disease/psychology, Cloutier PF, Cost Of Illness, Family Characteristics, Female, Follow-up Studies, Humans, Intervention, Interventions, Johnson SM, Journal Article, Journal Of Marital And Family Therapy, Male, Manion IG, Marital Therapy/methods, Marriage/psychology, Ontario, Parents/psychology, Preschool, Psychological, Psychological/etiology, Spouses/psychology, Stress, Time Factors, Treatment Outcome, Walker JG
Constructing a prospective model of psychosocial adaptation in young adolescents with spina bifida: an application of optimal data analysis
Tags: 2006, Adaptation, Adolescent, Adolescent Transitions, Backlog, Body Image, Bryant FB, Child, Coakley RM, Conflict (Psychology), Educational Status, Family/psychology, Female, Holmbeck GN, Humans, Individuation, Intelligence, Journal Article, Journal of Pediatric Psychology, Longitudinal Studies, Male, Models, Motivation, Parents/psychology, Prospective Studies, Psychological, Psychological/complications, Self Concept, Sick Role, Social Adjustment, Social Behavior, Spinal Dysraphism/psychology, statistical, Stress
"The worst journey of our lives": parents' experiences of a specialised paediatric retrieval service
Tags: 2003, Backlog, Child, Colville G, Consumer Satisfaction/statistics & numerical data, Gracey D, Humans, ICU Decision Making, Intensive and Critical Care Nursing, Intensive Care Units, Journal Article, London, Nonparametric, Orr F, Parents/psychology, Pediatric, Retrospective Studies, Statistics, Transportation of Patients/standards
Achieving Child-Centred Care for Children and Young People with Life-Limiting and Life-Threatening Conditions-A Qualitative Interview Study
Tags: Adolescent, Child, Child Care, End of Life Care, Paediatrics, Palliative Care, Qualitative Research, 2022, Bluebond-Langner M, Braybrook D, Bristowe K, Children, Coombes L, Downing J, Ellis-Smith C, European Journal of Pediatrics, Family/psychology, Farsides B, Fraser LK, Harding R, Harðardóttir D, Humans, Murtagh FEM, Normality, November 2022 List, Parents/psychology, Roach A, Scott H, Social Support, Symptom Assessment
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
Consultation with children in hospital: children, parents' and nurses' perspectives
Tags: 2006, Attitude Of Health Personnel, Backlog, Child, Communication, Comprehension, Coyne I, Decision Making, England, Hospital/psychology, Hospitalized/psychology, Hospitals, Humans, Interviews, Journal Article, Journal of Clinical Nursing, Nurse-patient Relations, Nurse's Role, Nursing Staff, Parent-child Relations, Parents/psychology, Patient Participation, Pediatric, PedPal Lit, Questionnaires
Home management of the dying NICU patient
Tags: 2003, Attitude Of Health Personnel, Backlog, Caregivers/standards, Craig F, Female, Goldman A, Holistic Health, Home Nursing, Humans, Infant, Intensive Care, Journal Article, Male, Neonatal/standards, Newborn, Palliative Care/organization & Administration, Parents/psychology, Patient Care Team/standards, Professional-family Relations, Seminars In Neonatology
Death of adolescents: parental grief and coping strategies
New understandings of parental grief: literature review
A Time to Live and a Time to Die: Heterotopian Spatialities and Temporalities in a Pediatric Palliative Care Team
Tags: 2019, Anthropology, Attitude To Death, Child, Communication, Davis C S, Death, Health Communication, Hicks L, Humans, Irvin L, King L, Palliative Care, Parents/psychology, Patient Care Team, pediatric hospitals, Pediatrics, September 2020 List, Shukraft A, Snider M J, Sonda J D, spatial analysis, Time Factors, Uncertainty
Children's outcomes at 2-year follow-up after 4 years of structured multi-professional medical-ethical decision-making in a neonatal intensive care unit
Tags: 2017, Child, Clinical Decision-Making/ethics, Critical Illness/mortality/therapy, de Boer JC, Female, Follow-up Studies, Gennissen L, Humans, Infant, Intensive Care Units, Journal Of Perinatology, July 2018 List, Male, Naghib S, Neonatal, Netherlands, Newborn, Palliative Care, Parents/psychology, Preschool, Prospective Studies, Reiss I, Sol J, Survival Analysis, Tibboel D, van Dijk M, Williams M, Withholding Treatment/ethics/standards
Bereavement support for families following the death of a child from cancer: experience of bereaved parents
Tags: 2006, Aoun S, Backlog, Bereavement, Child, Dadd G, Death, deCinque N, Hospital, Humans, Intensive Care Units, Journal Article, Journal Of Psychosocial Oncology, Macpherson R, Monterosso L, Neoplasms, Parents, Parents/psychology, Pediatric, Personnel, Professional-family Relations, sibling bereavement, Siblings, Siblings/psychology, Sidhu R, Social Support, SSHRC CURA
Forgoing life-sustaining treatments in children: a comparison between Northern and Southern European pediatric intensive care units
Tags: 2004, Adolescent, Adult, Backlog, Child, Death and Euthanasia, Decision Making, Devictor DJ, Empirical Approach, Europe, Euthanasia, Female, Hospital Mortality, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Newborn, Nguyen DT, Organizational, Parents/psychology, Passive/psychology, Patient Participation, Pediatric, Pediatric Critical Care Medicine, Preschool, Prospective Studies
Focus group interview with parents of children with medically complex needs: an intimate look at their perceptions and feelings.
Tags: 1991, Backlog, Children's Health Care, Counseling, Diehl SF, Family Health, Female, Florida, Health Services Needs And Demand, Home Nursing/psychology, Humans, Interviews, Journal Article, Longitudinal Studies, Male, Moffitt KA, Parents/psychology, Patient Care Planning/standards, Respite Care, Self-Help Groups, Wade SM
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Maintaining family life balance while facing a child's imminent death-A mixed methods study
Your child is dead
Tags: 1991, Attitude Of Health Personnel, Attitude To Death, Backlog, Bereavement, Bmj (clinical Research Ed.), Cause Of Death, Child, Communication, Dallimore D, Female, Finlay I, France, Great Britain, Humans, Infant, Interviews As Topic, Journal Article, Male, Newborn, Nurses, Parents/psychology, Physicians, Police, Preschool, Professional-family Relations, Questionnaires, Tissue and Organ Procurement, Tissue Donors
Longitudinal Understanding of Prognosis among Adolescents with Cancer
Tags: 2021, 2021 Special Edition - Oncology, Adolescent, Child, Communication, Compas BE, Desjardins L, Female, Fisher RS, Follow-up Studies, Fults MZ, Gerhardt CA, Humans, Kenney AE, Longitudinal Studies, Male, Manring S, Neoplasms/pathology/psychology/therapy, Oncologists/psychology, Oncology, Palliative Care, Parents/psychology, Pediatric Blood & Cancer, Prognosis, Psycho-Oncology, psychosocial, Ranalli MA, Rausch JR, Rodriguez EM, Surveys And Questionnaires, Vannatta K, Young-Saleme T
Dying At Lifes Beginning: Experiences Of Parents And Health Professionals In Switzerland When An ’in Utero' Diagnosis Incompatible With Life Is Made.
The disclosure of a diagnosis during pregnancy of a fetal malformation, which is incompatible with life, normally comes completely unexpectedly to the parents. Although a body of international literature has considered the topic, most of…
Tags: 2016, Attitude Of Health Personnel, Decision Making, Female, Fetal Congenital Malformation, Fetus/abnormalities, Fleming V, Gaps, Genetic Counseling/psychology, Humans, Iljuschin I, Interviews As Topic, Male, March 2016 List, Maurer F, Midwifery, Parents/psychology, Parpan F, Pehlke-Milde J, Pregnancy, Prenatal-diagnosis, Surveys And Questionnaires, Switzerland, Temporality, Thematic Analysis