Browse Items (58 total)
- Tags: Needs Assessment
Exploring The Spiritual Needs Of Families With Seriously Ill Children
Tags: 2016, Adolescent, August 2016 List, Child, Cultural Characteristics, Family/psychology, Female, Ferrell B, Humans, International Journal of Palliative Nursing, Male, Needs Assessment, Nursing, Nursing Assessment, Palliative Care, Pediatrics, Professional-family Relations, Qualitative, Qualitative Research, Spirituality
“have No Regrets:” Parents’ Experiences And Developmental Tasks In Pregnancy With A Lethal Fetal Diagnosis.
Lethal fetal diagnoses are made in 2% of all pregnancies. The pregnancy experience is certainly changed for the parents who choose to continue the pregnancy with a known fetal diagnosis but little is known about how the psychological…
Tags: 2016, Adult, Choice Behavior, Côté-Arsenault D, Denney-Koelsch E, Developmental Task, Emotions, Female, Fetal Diseases/diagnosis, Fetal Diseases/mortality, Humans, Infant, Lethal Fetal Diagnosis, Longitudinal, Longitudinal Studies, Male, March 2016 List, Middle Aged, Needs Assessment, Palliative Care, Parents/psychology, Perinatal Care, Perinatal Palliative Care, Phenomenology, Pregnancy, Prenatal Diagnosis, Prenatal Diagnosis/psychology, Qualitative Research, Social science & medicine, Usa, Young Adult
Development And Evaluation Of A Palliative Care Curriculum For Cystic Fibrosis Healthcare Providers.
Primary palliative care refers to basic skills that all healthcare providers can employ to improve quality of life for patients at any stage of disease. Training in these core skills is not commonly provided to clinicians caring for…
Tags:
2016, Altstein
LL, Attitude Of Health Personnel, Buxton D, Curriculum, Cystic Fibrosis, Cystic Fibrosis/psychology, Cystic Fibrosis/therapy, Disease Management, Education, End-of-life Care, Female, Friedman D, Georgiopoulos AM, Health Personnel/education, Health Personnel/psychology, Humans, Journal of Cystic Fibrosis, Linnemann RW, Male, March 2016 List, Middle Aged, Needs Assessment, O’Malley PJ, Palliative Care, Palliative Care/methods, Palliative Care/psychology, Quality Of Life, Surveys And Questionnaires, Terminal Care/methods, Terminal Care/psychology, United States
The Development And Evaluation Of A Holistic Needs Assessment Within Children’s Palliative Care.
Estimating The Global Need For Palliative Care For Children: A Cross-sectional Analysis
The need for children's palliative care (CPC) globally is unknown. To understand the scope of the need and to advocate to meet it, more accurate estimates are needed.
OBJECTIVES:
The objective of this study was to create an accurate global…
What Information Do Parents Need When Facing End-of-life Decisions For Their Child? A Meta-synthesis Of Parental Feedback
Tags: 2015, BMC Palliative Care, Communication, Decision Making, Health Knowledge Attitudes Practice, Hope, Humans, Intensive Care Units Pediatric/organization & Administration, July 2017 List, Needs Assessment, Parents/education, Parents/psychology, Sullivan J, Terminal Care/methods, Terminal Care/psychology, Time Factors, Wilkinson D, Xafis V
End-Of-Life Research as a Priority for Pediatric Oncology
Tags: 2004, Adaptation, Attitude To Death, Child, Decision Making, Family/px [psychology], Grief, Harper J, Health Priorities/og [organization & Administration], Hinds PS, Humans, Journal Of Pediatric Oncology Nursing, Needs Assessment, Neoplasms, Neoplasms/nu [nursing], Neoplasms/px [psychology], Nursing Research/og [organization & Administration], Oncology 2017 List, Oncology Nursing/og [organization & Administration], Pediatric Nursing/og [organization & Administration], Pritchard M, Psychological, Psychology, Social Support, Survivors/px [psychology], Terminal Care/og [organization & Administration], Terminal Care/px [psychology]
Palliative communication skills training for pediatric nurse practitioners: A novel program with booster sessions
Clinical spectrum of children receiving palliative care in Malaysian Hospitals
Tags: 2017, Abdul Manaf AM, Abdul Shukor INC, Acute Lymphoblastic Leukemia, Adolescent, Adult, Alias E, Bereavement, Caregiver, Cerebral Palsy, Chieng CH, Child, Child Care, Chong LA, Chromosome, Chromosome Aberration, Clinical Trial, Congenital Malformation, Controlled Clinical Trial, Controlled Study, Cross Sectional Study, Diagnosis, Duchenne Muscular Dystrophy, Education, Female, Follow Up, Hedra ZS, Hospital, Hospital Admission, Human, Icd-10, Infant, Khalid F, Khoo TB, Kuan GL, Major Clinical Study, malaysia, Male, Malignant Neoplasm, Medical Journal Of Malaysia, Multicenter Study, Needs Assessment, Newborn, Observational Study, Ong GB, Palliative Therapy, Patient Referral, Pediatrician, Prognosis, Razali H, Review, Spinal Muscular Atrophy, Teh SH, Wang JJ
Study protocol: evaluation of specialized outpatient palliative care (SOPC) in the German state of Hesse (ELSAH study) - work package II: palliative care for pediatric patients
Palliative care for children and adolescents in Switzerland: a needs analysis across three diagnostic groups
Tags: 2011, Adolescent, Bergstraesser E, Child, Child Preschool, Communication, European Journal of Pediatrics, Health Services Needs And Demand, Hornung R, Hospice Care, Humans, Inglin S, Interviews As Topic, January 2018 List, Needs Assessment, Palliative Care, Parents/px [psychology], Professional-patient Relations, Qualitative Research, Switzerland
Pain therapy, pediatric palliative care and end-of-life care: training, experience, and reactions of pediatric residents in Italy
Tags: 2014, Adult, Agosto C, Benini F, Child, European Journal of Pediatrics, Female, Ferrante A, Humans, Internship And Residency, Italy, January 2018 List, Male, Middle Aged, Needs Assessment, Pain/dt [drug Therapy], Palliative Care, Palliative Care/st [standards], Palliative Care/td [trends], Pediatrics/ed [education], Po C, Rusalen F, Salata M, Surveys And Questionnaires, Terminal Care, Terminal Care/st [standards], Terminal Care/td [trends]
Development and Assessment of a Measure of Parent and Child Needs in Pediatric Palliative Care
Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease
Tags: 2001, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Callahan ST, Chronic Disease/therapy, Continuity Of Patient Care/organization & Administration, Current Opinion In Pediatrics, Disabled Children, Humans, Internet, Journal Article, Keenan P, Models, Needs Assessment, Organizational, Professional-patient Relations, Self Care, United States, Winitzer RF
Preparation for oncology settings: what hospice social workers say they need
Tags: 1999, Attitude Of Health Personnel, Backlog, Bronstein LR, Cooperative Behavior, Florida, Health & Social Work, Health Services Research, Hospice Care/manpower/methods, Humans, Inservice Training, Journal Article, Kovacs PJ, Needs Assessment, Neoplasms/nursing, Oncologic Nursing/education/manpower, Patient Care Team, Professional Competence, Social Work/education
A qualitative approach to community and provider needs assessment in a telehealth project
The role of palliative care in advanced muscular dystrophy and spinal muscular atrophy.
Tags: 1999, Adolescent, Adult, Advance Directives, Artificial, Backlog, Bereavement, Child, Continuity Of Patient Care, DNAR, Female, Humans, Journal Article, Journal of Paediatrics and Child Health, Maddocks I, Male, Muscular Atrophy, Muscular Dystrophies/th [Therapy], Needs Assessment, Nuclear Family, Palliative Care/og [Organization & Administration], Parents/px [psychology], Parker D, Respiration, Social Support, South Australia, Spinal/th [Therapy], Stern LM, Terminal Care/st [standards]
Addressing spirituality in pediatric hospice and palliative care
Tags: 2002, Adult, Backlog, Brenner P, Child, Child Psychology, Davies B, Family/psychology, Holistic Health, Human, Journal Article, Journal Of Palliative Care, Needs Assessment, Nursing Assessment, Orloff S, Palliative Care/methods/psychology/standards, Pastoral Care/methods/standards, Pediatrics/methods, Practice Guidelines, Religion and Medicine, Religion and Psychology, Spirituality, Sumner L, Worden W
Transition of care: health care professionals' view
Tags: 2004, Adolescent, Adolescent Health Services/standards, Adolescent Medicine/standards, Adolescent Transitions, Adult, Attitude Of Health Personnel, Backlog, Barrow J, Burr P, Child, Child Health Services/standards, Chronic Disease/psychology/therapy, Continuity of Patient Care/standards, Dennard L, Focus Groups, Golberg B, Hospital/psychology, Hospitals, Humans, Journal Article, Journal Of Nursing Management, Lennox V, London, Needs Assessment, Nursing Methodology Research, Patient Transfer/standards, Pediatrics/standards, Personnel, Por J, Questionnaires, Teaching
Pain in children with cerebral palsy: a review.
Tags: 2004, Activities of Daily Living, Backlog, Cerebral Palsy/co [Complications], Child, Child welfare, Engel Joyce M, Humans, Jensen MP, Journal Article, Kieckhefer GM, Labyak S, Motor Skills, Needs Assessment, Nurse's Role, Nursing Assessment, Pain, Pain Management, Pain Measurement, Pain/di [diagnosis], Pain/et [Etiology], Risk Factors, Severity Of Illness Index, The Journal Of Neuroscience Nursing : Journal Of The American Association Of Neuroscience Nurses
Treatment adherence of youth and young adults with and without a chronic illness
Tags: 2003, Acute Disease/psychology, Adaptation, Adolescent, Adolescent Behavior/psychology, Adolescent Psychology, Adult, Age Factors, Attitudes, Backlog, Case-Control Studies, Child, Chronic Disease/psychology, Crisp J, Female, Health Knowledge, Humans, Internal-External Control, Journal Article, Male, Mental Health, Needs Assessment, Nursing & Health Sciences, Patient Compliance/psychology, Patient Education, Practice, Predictive Value of Tests, Psychological, Questionnaires, Rosina R, Self Care/psychology, Steinbeck K
Family, maternal, and child health through photovoice
Tags: 2004, Adolescent, Adult, Backlog, California, Child, Child welfare, Community Networks, Family Health, Female, Health Planning, Humans, Journal Article, Male, Maternal And Child Health Journal, Maternal Welfare, Middle Aged, Needs Assessment, Non-U.S. Gov't, Photography, Pies CA, Policy Making, Research Support, Wang CC
Adolescents in transition of adult care: why the concern?
Tags: 2004, Adolescent, Adolescent Health Services/organization & administration, Adolescent Transitions, Adult, Backlog, Betz CL, Congenital/nursing/rehabilitation/therapy, Continuity Of Patient Care/organization & Administration, Health, Heart Defects, Humans, Insurance, Journal Article, Needs Assessment, Patient Care Planning/organization & administration, Planning Techniques, Self Care, The Nursing Clinics Of North America, United States
Perspectives of patients with cystic fibrosis on preventive counseling and transition to adult care
Tags: 2003, Adolescent, Adolescent Transitions, Adult, Aging/psychology, Attitudes, Backlog, Boston, Colin AA, Continuity Of Patient Care/organization & Administration, Counseling/organization & administration, Cystic Fibrosis/psychology/therapy, Day Care/organization & administration, Emans SJ, Female, Harney K, Health Care Surveys, Health Knowledge, Humans, Jacobs CP, Journal Article, Keenan PM, Male, Massachusetts, Needs Assessment, Pediatric Pulmonology, Practice, Preventive Medicine/organization & administration, Prospective Studies, Pulmonary Disease (Specialty)/statistics & numerical data, Woods ER, Zack J
Pediatric palliative care: the time has come.
Tags: 2002, Archives Of Pediatrics & Adolescent Medicine, Attitude To Health, Backlog, Child, Child Psychology, Chronic Disease, Communication, Family/psychology, Humans, Hutton N, Journal Article, Longitudinal Studies, Needs Assessment, Palliative Care/methods/psychology/trends, Pediatrics/methods/trends, Professional-family Relations, Quality Of Life, Terminal Care/methods/psychology/trends
Rare essentials: drugs for rare diseases as essential medicines
Tags: 2006, Backlog, Bulletin Of The World Health Organization, Cost-Benefit Analysis, Decision Making, Drugs, Essential, Health Priorities, Health Services Accessibility, Humans, Journal Article, Leufkens HGM, Needs Assessment, Organizational, Organizational Policy, Orphan Drug Production, Policy Making, Public Health Administration, Rare Diseases, Resource Allocation, Risk Assessment, Social Justice, Stolk P, Willemen Marjolein JC, World Health Organization
Seeking and using families' views to shape children's hospice services
Tags: 2005, Adolescent, Adult, Backlog, Child, Child Health Services/organization & administration, Consumer Satisfaction, Female, Focus Groups, Great Britain, Health Care, Hospice Care/organization & administration, Humans, Infant, International Journal of Palliative Nursing, Journal Article, Male, Maynard L, Needs Assessment, Newborn, Parents, Preschool, Professional-family Relations, Quality Assurance, Rennie T, Shirtliffe J, Vickers D
Parental decision making in pediatric cancer end-of-life care: Using focus group methodology as a prephase to seek participant design input
Tags: 2006, Adaptation, Attitude To Health, Backlog, Barrera M, Baruchel S, Bouffet E, Capra M, Child, Decision Making, European Journal Of Oncology Nursing, Focus Groups/methods, Focus Groups/utilization, Gammon J, Geenberg ML, Helping Behavior, Hinds PS, Humans, Journal Article, Llewellyn-Thomas HA, Morale, Needs Assessment, Neoplasms, Nurse's Role, Nursing Methodology, Oncologic Nursing, Parents/psychology, Patient Selection, Patient-centered Care, Pediatric Nursing, PedPal Lit, Professional-family Relations, Program Development, Psychological, Qualitative Research, Quality Of Life/psychology, Questionnaires, Social Support, Sung L, Terminal Care, Tomlinson D, Volpe J
Enabling the transition to hospice through effective palliative care
Tags: 2005, Attitude To Death/ethnology, Backlog, Bomba PA, Case Management/organization & administration, Chronic Disease, Continuity of Patient Care/organization & Disease Progression, Hospice Care/organization & administration/psychology, Humans, Journal Article, Life Expectancy, Models, Needs Assessment, Organizational, Organizational Objectives, Palliative Care/organization & Professional Role, Prognosis, Quality Of Life, Referral and Consultation/organization & United States, The Case Manager
Access to health care for young adults with disabling chronic conditions
Tags: 2006, Adolescent Transitions, Adult, Archives Of Pediatrics & Adolescent Medicine, Backlog, Callahan ST, Chronic Disease/economics, Cooper WO, Disabled Persons, Female, Health, Health Services Accessibility/economics/statistics & numerical data, Humans, Insurance, Journal Article, Male, Medically Uninsured/statistics & numerical data, Needs Assessment, United States
Prioritization of future research topics for children's hospice care by its key stakeholders: a Delphi study
Tags: 2009, Adolescent, Attitude Of Health Personnel, Backlog, Child, Delphi Technique, Family, Focus Groups, Forbat L, Hospice Care/organization & administration, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & Administration, Palliative Medicine, Research/organization & administration, Scotland, Terminally Ill
Exploring the experiences and perspectives of families using a children's hospice and professionals providing hospice care to identify future research priorities for children's hospice care
Tags: 2008, Attitude Of Health Personnel, Backlog, Family/psychology, Focus Groups, Forbat L, Health Services Accessibility, Health Services Needs And Demand, Hospice Care/organization & administration/standards, Humans, Journal Article, Kearney N, Knighting K, Malcolm C, Needs Assessment, Palliative Care/organization & administration/standards, Palliative Medicine, Qualitative Research, Research/organization & administration, Respite Care, Scotland, Terminal Care/organization & administration/psychology/standards
Parents' perspectives regarding a physician-parent conference after their child's death in the pediatric intensive care unit
Tags: 2007, Adult, Anand KJ, Backlog, Bereavement, Carcillo J, Communication, Critical Care, Dean JM, Death, Eggly S, Female, Humans, ICU Decision Making, Infant, Intensive Care Units, Journal Article, Male, Meert KL, Middle Aged, National Institute of Child Health and Human Development Collaborative Pediatric Critical Care Research Network, Needs Assessment, Newborn, Newth CJ, Nicholson C, Parent-child Relations, Parents/psychology, Pediatric, Physician's Role, Pollack M, Questionnaires, The Journal Of Pediatrics, Willson DF, Zimmerman J
Toward youth friendly services: a survey of young people in primary care
Tags: 2007, Adolescent, Adolescent Health Services/utilization, Adolescent Transitions, Adult, Age Factors, Backlog, Cross-sectional Studies, Female, Haller DM, Health Care Surveys, Health Services Needs and Demand/classification/statistics & numerical data, Humans, Journal Article, Journal Of General Internal Medicine, Male, Needs Assessment, Patient Acceptance Of Health Care/statistics & Numerical Data, Patient Satisfaction, Patton GC, Physician-patient Relations, Primary Health Care/utilization, Sanci LA, Sawyer SM
Developing a process to support perinatal nurses after a critical event
Tags: 2014, Adaptation, Attitude To Death, Backlog, Clinical Competence, Crisis Intervention, Emergencies, Family Nursing, Foreman S, Grief, Humans, Journal Article, Models, Needs Assessment, Neonatal Nursing, Nursing For Women's Health, Nursing Methodology Research, Perinatal Care, Program Development, Psychological, Risk Management, Self Care, Social Support, Staff Development, Stress, Terminal Care
Experts' Perspectives Toward a Population Health Approach for Children With Medical Complexity
Tags: 2017, Academic Pediatrics, Attitude Of Health Personnel, Barnert ES, Chan V, Child, Child Health Services/organization & administration, Chung P J, Coller R J, Disabled Children/psychology, Female, Health Personnel/psychology, Humans, Interviews As Topic, July 2018 List, Klitzner TS, Male, Needs Assessment, Nelson BB, Padilla C, Patient-centered Care, Population Health, Preschool, Szilagyi M, Thompson LR, Treatment Outcome
Beyond mortality: Assessing pediatric palliative needs
Tags: 2018, August 2018 List, Bone Marrow Transplantation, Child, conference abstract, Controlled Study, Diagnosis, Female, General Practitioner, Gielissen K, Hematology, heme, Hospital Patient, Human, Journal of Palliative Medicine, Major Clinical Study, Male, Marquez A, Massaro S, Morbidity, Mortality, Murtha TD, Nausea, Needs Assessment, Neonatal Intensive Care Unit, Oncology, Pain, Palliative Therapy, Patient Referral, Pediatric Intensive Care Unit, Prozora S, Questionnaire, Resident, Surgery, tertiary health care
Depressive symptoms in mothers after perinatal and early infant loss in rural Bangladesh: a population-based study
Tags: 2016, Adolescent, Adult, Ali H, Annals of Epidemiology, Bangladesh, Bangladesh/epidemiology, Christian P, Cohort Studies, Databases Factual, Depression/ epidemiology/etiology, Depressive symptoms, Developing Countries, Developing World 2018 List, Female, Humans, Incidence, Infant, Infant Newborn, Infant Mortality, Klemm R, Labrique A, Maternal Health, Mehra S, Mental Health, Mothers/ Psychology, Needs Assessment, Neonatal Death, Perinatal Mortality/trends, Postpartum Period, Pregnancy, Rashid M, Retrospective Studies, Risk Assessment, Rural Population, Sakyi K, Stillbirth, Stillbirth/ ethnology, Strobino DM, Surkan PJ, Ullah B, West KP, Wu L, Young Adult
Introduction to a Novel Palliative Care Intervention for Family Caregivers of Children and Adolescents Living with Rare Diseases (TH308)
Tags: 2019, Adolescent, Advance Care Planning, Alderfer M, Caregiver, Child, Comorbidity, conference abstract, Controlled Study, Feasibility Study, Female, Fraser J, Fratantoni K, Friebert S, Gaines J, health disparity, Human, Human Experiment, Human Immunodeficiency Virus, Interview, Journal of Pain and Symptom Management, Lyon M, Major Clinical Study, Male, Malignant Neoplasm, March 2019 List, Medical Care, Needle J, Needs Assessment, Nonhuman, Palliative Therapy, Pediatrics, Rare Disease, rigor, Skill, Social Isolation, Uncertainty, videorecording, Wellbeing, Wiener L
The Long-Term Care Experiences and Care Needs of Parents Caring for Children With Adrenoleukodystrophy
Tags: 2019, Descriptive Research, Guilt, Helplessness Learned, Hospice Care, Human, Individualized Medicine, Interviews, Journal of Nursing, Jui-Chun F, Long Term Care, March 2019 List, Miao-Ju C, Needs Assessment, Parental Attitudes, Peroxisomal Disorders -- Psychosocial Factors, Psychosocial Aspects of Illness, Qualitative Studies, Shu-Yuan L, Su-Fen C, Wei-Wen W U