Browse Items (94 total)
- Tags: Follow-up Studies
Peroxisome biogenesis disorders with prolonged survival: phenotypic expression in a cohort of 31 patients
Tags: 2004, Admiraal RJ, Adolescent, Adult, American Journal Of Medical Genetics.Part A, Backlog, Barth PG, Child, Cohort Studies, de Klerk JB, Developmental Disabilities/pathology, Duran M, Eye Diseases/pathology, Face/abnormalities, Female, Follow-up Studies, Gootjes J, Growth Disorders/pathology, Humans, Infant, Journal Article, Kidney/pathology, Liver/pathology, Male, Membrane Proteins/genetics, Mutation, Peroxisomal Disorders/genetics/mortality/pathology, Phenotype, Poll-The BT, Preschool, Q3 Scoping Review Results, Seizures/pathology, Spleen/pathology, Survival Rate, Time Factors, Wanders RJ, Waterham HR, Wenniger-Prick LJ
Long-term follow-up, neurological outcome and survival rate in 28 Nordic patients with glutaric aciduria type 1
Tags: 2004, Adolescent, Adult, Amino Acid Metabolism, Backlog, Child, Christensen E, European Journal of Paediatric Neurology, Female, Finland/epidemiology, Follow-up Studies, Glutarates/urine, Glutaryl-CoA Dehydrogenase, Hagberg G, Holme E, Humans, Inborn Errors/complications/diagnosis/mortality, Infant, Journal Article, Kyllerman M, Lonnquist T, Male, Nervous System Diseases/etiology, Newborn, Oxidoreductases Acting on CH-CH Group Donors/deficiency, Preschool, Prognosis, Q3 Scoping Review Results, Rotwelt T, Scandinavia/epidemiology, Skjeldal O, Skov L, Survival Rate, Time Factors, von Dobeln U
Short-term safety assessment in the use of intravenous zoledronic acid in children
Tags: 2004, Adolescent, Ambler G, Backlog, Bone Resorption/metabolism/prevention & control, Calcium/blood, Child, Clodronate, Cowell CT, Creatinine/blood, Diphosphonates/administration & dosage/adverse effects, Female, Fever/chemically induced, Follow-up Studies, Hogler W, Humans, Imidazoles/administration & dosage/adverse effects, Infusions, Intravenous, Journal Article, Little D, Male, McQuade M, Nausea/chemically induced, Pain/chemically induced, Phosphorus/blood, Preschool, Retrospective Studies, The Journal Of Pediatrics, Time Factors, Urea/blood, Vomiting/chemically induced, Yap F
Mortality in parents after death of a child in Denmark: A nationwide follow-up study.
Tags: 2003, Adolescent, Adult, Backlog, Bereavement, Cause Of Death, Child, Death, Denmark/epidemiology, Female, Follow-up Studies, Health Status, Humans, Incidence, Infant, Journal Article, Lancet, Li J, Life Change Events, Longitudinal Studies, Male, Mortality, Mortensen PB, Olsen J, Parents/psychology, Population Surveillance, Precht DH, Preschool, Proportional Hazards Models, Registries, Risk Factors, Sex Distribution, SSHRC CURA, Time Factors
Bereaved parents' experience of research participation.
Tags: 2004, Accidents/psychology, Adolescent, Adult, Attitude, Backlog, Bereavement, Biomedical and Behavioral Research, Child, Dyregrov K, Empirical Approach, Ethics, Female, Follow-up Studies, Humans, Infant, Interview, Journal Article, Longitudinal Studies, Male, Medical/methods, Middle Aged, Multi-site Ethics, Newborn, Norway, Parents/psychology, Preschool, Psychological, Registries, Regression Analysis, Research, Research Subjects/psychology, Social science & medicine, Sociology, Sudden Infant Death, Suicide/psychology
Unilateral closed-lip schizencephaly and epilepsy: a comparison with cases of unilateral polymicrogyria
Tags: 2004, Adolescent, Adult, Backlog, Brain & Development, Brain/abnormalities/pathology, Caraballo RH, Cersosimo RO, Child, Electroencephalography, Epilepsy/pathology, Fejerman N, Female, Follow-up Studies, Frontal Lobe/pathology, Gait Disorders, Humans, Infant, Journal Article, Magnetic Resonance Imaging, Male, Neurologic/complications/pathology, Preschool, Q3 Scoping Review Results, Temporal Lobe/pathology, Tomography, X-Ray Computed
Assessing the impact of pediatric epilepsy and concomitant behavioral, cognitive, and physical/neurologic disability: Impact of Childhood Neurologic Disability Scale
Tags: 2003, Adolescent, Backlog, Breau L, Camfield C, Camfield P, Child, Child Behavior Disorders/diagnosis/etiology, Chronic Disease, Cognition Disorders/diagnosis/etiology, Developmental Medicine and Child Neurology, Diagnostic and Statistical Manual of Mental Disorders, Disability Evaluation, Epilepsy/complications/diagnosis, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Preschool, Questionnaires, Reproducibility of Results
Use of bisphosphonate therapy for osteoporosis in childhood and adolescence
Tags: 2003, Adolescent, Backlog, Batch JA, Bone Density, Child, Clodronate, Couper JJ, Cowell CT, Densitometry, Diphosphonates/adverse effects/therapeutic use, Dose-Response Relationship, Drug, Drug Administration Schedule, Female, Follow-up Studies, Humans, Journal Article, Journal of Paediatrics and Child Health, Male, Osteoporosis/diagnosis/drug therapy, Preschool, Risk Assessment, Rodda C, Severity Of Illness Index, Treatment Outcome, X-Ray, Zacharin M
A prospective comparative study of 2540 infants and children with newly diagnosed idiopathic thrombocytopenic purpura (ITP) from the Intercontinental Childhood ITP Study Group
Tags: 2003, Adolescent, Age Distribution, Anti-Inflammatory Agents/therapeutic use, Backlog, Berchtold W, Buchanan GR, Child, Female, Follow-up Studies, Humans, Idiopathic/drug therapy/epidemiology, Imbach P, Immunoglobulins, Incidence, Infant, Intercontinental Childhood ITP Study Group, Intravenous/administration & dosage/therapeutic use, Journal Article, Kohan R, Kuhne T, Male, Michaels LA, Prospective Studies, Purpura, Questionnaires, The Journal Of Pediatrics, Thrombocytopenic, Zimmerman S
Parental stress and burden following traumatic brain injury amongst children and adolescents.
Tags: 2003, Adaptation, Adolescent, Adult, Analysis of Variance, Backlog, Brain Injuries/economics/psychology, Brain Injury, Child, Comparative Study, Cost Of Illness, England, Family Characteristics, Family Health, Female, Follow-up Studies, Hawley CA, Health Education, Health Status, Humans, Journal Article, Long J, Longitudinal Studies, Magnay AR, Male, Mental Health, Non-U.S. Gov't, Parents/psychology, Poverty, Preschool, Psychological, Psychological/etiology, Questionnaires, Research Support, Stress, Ward AB
Polyethylene glycol without electrolytes for children with constipation and encopresis
Tags: 2002, Adolescent, Backlog, Child, Constipation/therapy, Encopresis/therapy, Female, Follow-up Studies, Humans, Iowa, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Loening-Baucke V, Male, Non-U.S. Gov't, Polyethylene Glycols/therapeutic use, Preschool, Prospective Studies, Research Support, Time Factors
Joubert syndrome: long-term follow-up
Tags: 2004, Achilles Tendon/pathology/physiopathology, Backlog, Cerebellar Ataxia/physiopathology/radiography, Cerebellum/abnormalities/radiography, Child, Chong K, Developmental Disabilities/physiopathology/radiography, Developmental Medicine and Child Neurology, Disease Specific, Evoked Potentials, Eye Movements, Female, Follow-up Studies, Harris CM, Hodgkins PR, Humans, Journal Article, Kriss A, Magnetic Resonance Imaging, Male, Pigment Epithelium of Eye/pathology/physiopathology, Prognosis, Russell-Eggitt I, Shawkat FS, Taylor DS, Thompson DA, Timms C, Tomography, Visual, X-Ray Computed
Emotionally focused interventions for couples with chronically ill children: a 2-year follow-up
Tags: 2002, Adaptation, Analysis of Variance, Backlog, Child, Chronic Disease/psychology, Cloutier PF, Cost Of Illness, Family Characteristics, Female, Follow-up Studies, Humans, Intervention, Interventions, Johnson SM, Journal Article, Journal Of Marital And Family Therapy, Male, Manion IG, Marital Therapy/methods, Marriage/psychology, Ontario, Parents/psychology, Preschool, Psychological, Psychological/etiology, Spouses/psychology, Stress, Time Factors, Treatment Outcome, Walker JG
Follow-up on seven adult patients with mild Sanfilippo B-disease.
Tags: 1987, Adult, Age Factors, American Journal Of Medical Genetics, Backlog, Dementia/complications/genetics, Female, Follow-up Studies, Humans, Journal Article, Longitudinal Studies, Male, Mental Retardation/complications/genetics, Mucopolysaccharidoses/genetics, Mucopolysaccharidosis III/genetics, Pedigree, van de Kamp JJ, van Schrojenstein-de Valk HM
Therapeutic modification of membrane lipid abnormalities in juvenile neuronal ceroid-lipofuscinosis (Batten disease).
Tags: 1988, Adolescent, American Journal Of Medical Genetics, Backlog, Bennett MJ, Cartwright IJ, Corn Oil/therapeutic use, Dietary Fats, Fish Oils/therapeutic use, Follow-up Studies, Galloway JH, Gayton R, Hosking GP, Humans, Journal Article, Lipid Metabolism, Lipoproteins/blood, Longitudinal Studies, Neuronal Ceroid-Lipofuscinoses/diet therapy/drug therapy/therapy, Thompson G
Congenital malformations of the central nervous system in a 1-year birth cohort followed to the age of 14 years
Tags: 1986, Abnormalities, Adolescent, Backlog, Central Nervous System/abnormalities, Child, Child's Nervous System, Disabled Persons, Follow-up Studies, Humans, Hydrocephalus/congenital, Infant, Journal Article, Meningomyelocele/diagnosis, Multiple/diagnosis, Newborn, Preschool, Q3 Scoping Review Results, Rantakallio P, von Wendt L
Radiological manifestations of bisphosphonate treatment with APD in a child suffering from osteogenesis imperfecta
Wilson's disease: a longitudinal study of psychiatric symptoms
Tags: 1990, Adolescent, Adult, Amnestic, Backlog, Berrios GE, Biological Psychiatry, Cognitive Disorders/di [Diagnosis], Cognitive Disorders/px [Psychology], Cohort Studies, Delirium, Dementia, Dening TR, Female, Follow-up Studies, Hepatolenticular Degeneration/di [Diagnosis], Hepatolenticular Degeneration/px [Psychology], Humans, IM, Journal Article, Liver Function Tests, Longitudinal Studies, Male, Neurologic Examination, Neuropsychological Tests, Retrospective Studies
Beta-endorphin levels of children in acute stress
Tags: 1990, Acute Disease, Backlog, beta-Endorphin/blood, Biomarkers of Pain, Biomarkers Reference List, Blood Glucose/analysis, Child, Diabetes Research And Clinical Practice, Dindar A, Follow-up Studies, Gunoz H, Humans, Hyperglycemia/blood/epidemiology/pathology, Infant, Insulin/blood, Journal Article, Newborn, Neyzi O, Preschool, Prognosis, Stress/blood/epidemiology
Juvenile neuronal ceroid lipofuscinosis (JNCL): quantitative description of its clinical variability
Continuity of care: an approach to measurement
Tags: 1972, Ambulatory Care, Backlog, Bass RD, Communication, Community Mental Health Services, Community Psychiatry, Comprehensive Health Care, Day Care, Evaluation Studies as Topic, Follow-up Studies, Hospitalization, Humans, Journal Article, Medical Records, Mental Disorders/therapy, Models, Prospective Studies, Psychotherapy, Questionnaires, Referral And Consultation, The American Journal Of Psychiatry, Theoretical, Transfer Agreement, Windle C
Buffers for the bereaved: the impact of social factors on the emotional health of bereaving parents
Tags: 1984, Adaptation, Adult, Anxiety Disorders - psychology, Backlog, Bereavement Leave Policy Paper, Child, Cultural Characteristics, Depressive Disorder/psychology, Ethnic Groups/psychology, Female, Follow-up Studies, Grief, Humans, Infant, Interpersonal Relations, Israel, Journal Article, Male, Obsessive-Compulsive Disorder/psychology, Parents/psychology, Preschool, Psychological, Roskin M, Social Environment, Socioeconomic Factors, Somatoform Disorders/psychology, The International Journal Of Social Psychiatry
Neuronal ceroid-lipofuscinosis: A clinical and morphological study of 19 patients.
Tags: 1995, Adolescent, Adult, Age of Onset, American Journal Of Medical Genetics, Angelini L, Atrophy, Backlog, Binelli S, Brain/pathology/radiography, Bugiani O, Cerebellum/pathology, Child, Female, Follow-up Studies, Humans, Infant, Journal Article, Longitudinal Studies, Magnetic Resonance Imaging, Male, Nardocci N, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology, Preschool, Time Factors, Tomography, Verga ML, X-Ray Computed, Zorzi G
Causal links between stressful events, coping style, and adolescent symptomatology
Tay-Sachs disease: Progression of changes on neuroimaging in four cases.
Tags: 1992, Atrophy, Backlog, Brain Diseases, Brain/pathology, Child, Demyelinating Diseases/diagnosis/pathology, Emission-Computed, Follow-up Studies, Fukumizu M, Humans, Infant, Journal Article, Kurokawa T, Longitudinal Studies, Magnetic Resonance Imaging, Male, Metabolic/diagnosis/pathology, Neuroradiology, Preschool, Sakuragawa N, Takashima S, Tay-Sachs Disease/diagnosis/pathology, Tomography, X-Ray Computed, Yoshikawa H
Magnetic resonance spectroscopy in Niemann-Pick disease type C: Correlation with diagnosis and clinical response to cholestyramine and lovastatin.
Tags: 1994, Arnold DL, Backlog, Brain/drug effects/metabolism/pathology, Cholesterol, Cholestyramine/administration & dosage/adverse effects, Chromosome Aberrations/genetics, Chromosome Disorders, Combined Modality Therapy, Dietary/administration & dosage, Follow-up Studies, Genes, Humans, Infant, Journal Article, Lipid Metabolism, Longitudinal Studies, Lovastatin/administration & dosage/adverse effects, Magnetic Resonance Imaging, Magnetic Resonance Spectroscopy, Male, Neuropsychological Tests, Niemann-Pick Diseases/diagnosis/drug therapy/genetics, Pediatric Neurology, Recessive/genetics, Schreiber R, Scriver CR, Shevell MI, Sylvain M
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics
Structural equation modeling with longitudinal data: strategies for examining group differences and reciprocal relationships
Tags: 1994, Adolescent, Alcohol Drinking/epidemiology/psychology, Alcoholism/epidemiology/psychology, Anger, Backlog, Cohort Studies, Farrell AD, Female, Follow-up Studies, Gender Identity, Humans, Journal Article, Journal Of Consulting And Clinical Psychology, Longitudinal Studies, Male, Models, Peer Group, Personality Inventory/statistics & numerical data, statistical
Postbereavement depressive mood and its prebereavement predictors in HIV+ and HIV- gay men
Tags: 1996, Acquired Immunodeficiency Syndrome/psychology, Adaptation, Adult, Backlog, Bereavement, Boccellari A, Caregivers/psychology, Chesney M, Collette L, Cooke M, Depression/diagnosis/psychology, Folkman S, Follow-up Studies, HIV Seropositivity/psychology, Homosexuality, Humans, Journal Article, Journal Of Personality And Social Psychology, Male, Male/psychology, Middle Aged, P.H.S., Personality Inventory, Psychological, Research Support, Risk Factors, San Francisco, Sick Role, U.S. Gov't
Vulnerability and resilience to combat exposure: can stress have lifelong effects?
Tags: 1994, 80 And Over, Adaptation, Adult, Aged, Aldwin CM, Backlog, Combat Disorders/diagnosis/psychology, Defense Mechanisms, Europe, Follow-up Studies, Humans, Journal Article, Korea, Levenson MR, Longitudinal Studies, Male, Mathematical Computing, Middle Aged, Non-P.H.S., P.H.S., Personality Development, Personality Inventory/statistics & numerical data, Psychological, Psychological/complications, Psychology And Aging, Research Support, Software, Spiro A, Stress, U.S. Gov't, Veterans/psychology
Predictors of burden in spouse caregivers of individuals with Alzheimer's disease
Tags: 1991, Activities of Daily Living/psychology, Adaptation, Aged, Alzheimer Disease/psychology/therapy, Anger, Anxiety/psychology, Backlog, Depression/psychology, Female, Follow-up Studies, Hostility, Humans, Journal Article, Longitudinal Studies, Maiuro RD, Male, Marriage/psychology, Mental Status Schedule/statistics & numerical data, P.H.S., Personal Satisfaction, Personality Assessment/statistics & Psychometrics, Psychological, Psychology And Aging, Research Support, Russo J, Sick Role, Teri L, U.S. Gov't, Vitaliano PP, Young HM
Efficacy and complications of morphine infusions in postoperative paediatric patients
Tags: 1999, Acute Disease, Adolescent, Akathisia, Analgesia/nursing, Analgesics, Anesthesia Recovery Period, Anoxemia/chemically induced, Arousal/drug effects, Backlog, Child, Confidence Intervals, Courtrn C, Drug-Induced/etiology, Esmail Z, Female, Follow-up Studies, Hamilton D, Humans, Incidence, Infant, Infusions, Intravenous, Journal Article, Kestle J, Male, Montgomery C, Morphine/administration & dosage/adverse effects/therapeutic use, Opioid/administration & dosage/adverse effects/therapeutic use, Paediatric Anaesthesia, Pain, Postoperative Nausea and Vomiting/chemically induced, Postoperative/prevention & control, Preschool, Pruritus/chemically induced, Respiration/drug effects, Retrospective Studies, Urinary Retention/chemically induced
Follow-up in children with Joubert syndrome
Tags: 1997, Adolescent, Adult, Ataxia/diagnosis/genetics/physiopathology, Backlog, Boltshauser E, Cerebellum/abnormalities, Child, Cross-sectional Studies, Developmental Disabilities/diagnosis/genetics/physiopathology, Disease Progression, Disease Specific, Facies, Female, Follow-up Studies, Humans, Infant, Journal Article, Kidney Diseases/complications, Landau K, Male, Mental Retardation/complications, Mesencephalon/abnormalities, Muscle Hypotonia/diagnosis/genetics/physiopathology, Neuropediatrics, Newborn, Ocular Motility Disorders/complications, Preschool, Respiration Disorders/complications, Retrospective Studies, Schmid M, Steinlin M, Survivors/classification, Syndrome
Predictors of husbands' and wives' grief reactions following infant death: the role of marital intimacy
Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up
Tags: 1999, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adaptation, Backlog, Bereavement, Caregivers/psychology, Cohort Studies, Death studies, Folkman S, Follow-up Studies, Homosexuality, Humans, Journal Article, Male, Male/psychology, Psychological, Religion and Psychology, Richards TA, San Francisco, United States
Serious adverse events after measles-mumps-rubella vaccination during a fourteen-year prospective follow-up
Tags: 2000, Adolescent, Adult, Adverse Drug Reaction Reporting Systems, Backlog, Child, Davidkin I, Drug Hypersensitivity/etiology, Female, Finland, Follow-up Studies, Humans, Infant, Journal Article, Kallio MJ, Kurki T, Male, Measles-Mumps-Rubella Vaccine/adverse effects, Nervous System Diseases/etiology, Non-U.S. Gov't, Patja A, Peltola H, Preschool, Prospective Studies, Research Support, The Pediatric Infectious Disease Journal, Vaccination, Valle M
Status epilepticus in children: aetiology, treatment, and outcome
Tags: 1997, Adolescence, Age Distribution, Anesthetics, Anticonvulsants, Backlog, Barbiturates/ad [Administration & Dosage], Chi-Square Distribution, Child, Developmental Medicine & Child Neurology, Diazepam/ad [Administration & Dosage], Drug Administration Schedule, Electroencephalography, Encephalitis/co [Complications], Eriksson KJ, Female, Follow-up Studies, Human, Infant, Intravenous/ad [Administration & Dosage], Journal Article, Koivikko MJ, Male, Meningitis, Nervous System Diseases/ep [Epidemiology], Neuropsychological Tests, Non-U.S. Gov't, Preschool, Prevalence, Retrospective Studies, Risk Factors, Septic/co [Complications], Sex Distribution, Shock, Status Epilepticus/di [Diagnosis], Status Epilepticus/dt [Drug Therapy], Status Epilepticus/ep [Epidemiology], Status Epilepticus/et [Etiology], Streptococcal Infections/co [Complications], Support, Time Factors, Treatment Outcome, Viral/co [Complications]
Influence of epilepsy on mortality in mental retardation: an epidemiologic study
Tags: 1996, Adult, Backlog, Blomquist HK, Cause Of Death, Cerebral Palsy/ep [Epidemiology], Cerebral Palsy/mo [Mortality], Cohort Studies, Comorbidity, Confidence Intervals, Edvinsson SO, Epilepsia, Epilepsy, Epilepsy/di [diagnosis], Epilepsy/ep [Epidemiology], Epilepsy/mo [Mortality], Follow-up Studies, Forsgren L, Generalized/di [Diagnosis], Generalized/ep [Epidemiology], Generalized/mo [Mortality], Human, Journal Article, Mental Retardation/di [Diagnosis], Mental Retardation/ep [Epidemiology], Mental Retardation/mo [Mortality], Middle Age, Mortality, Nystrom L, Pneumonia/ep [Epidemiology], Pneumonia/mo [Mortality], Prevalence, Severity Of Illness Index, Sweden/ep [Epidemiology]
Reduced life expectancy in 40 cases of early onset cerebellar ataxia with retained tendon reflexes: a population-based study
Tags: 1993, Acta Neurologica Scandinavica, Adolescent, Adult, Aged, Backlog, Cerebellar Ataxia/genetics/mortality/physiopathology, Child, Chio A, Chromosome Aberrations/genetics, Chromosome Disorders, Female, Follow-up Studies, Genes, Humans, Italy/epidemiology, Journal Article, Life Expectancy, Male, Middle Aged, Mortara P, Neurologic Examination, Orsi L, Outcomes, Preschool, Recessive/genetics, Reflex, Schiffer D, Spinocerebellar Degenerations/genetics/mortality/physiopathology, Stretch/genetics/physiology, Survival Analysis, Survival Rate
Late onset globoid cell leukodystrophy (Krabbe's disease)--Swedish case with 15 years of follow-up.
Tags: 1995, Acta Paediatrica, Adult, Age of Onset, Arvidsson J, Backlog, Epilepsy/etiology, Follow-up Studies, Galactosylceramidase/blood, Globoid Cell/complications/enzymology/radiography, Hagberg B, Humans, Journal Article, Leukodystrophy, Longitudinal Studies, Male, Mansson JE, Musculoskeletal Equilibrium, Svennerholm L, Sweden, Tomography, Vision Disorders/etiology, X-Ray Computed