Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries

Title

Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries

Creator

Horey D; Boyle FM; Cassidy J; Cassidy PR; Erwich JJHM; Gold KJ; Gross MM; Heazell AEP; Leisher SH; Murphy M; Ravaldi C; Siassakos D; Storey C; Vannacci A; Wojcieszek A; Flenady V

Identifier

Publisher

Birth (Berkeley, California)

Date

2021

Subject

bereavement care; high-income countries; middle-income countries; parents; stillbirth

Description

BACKGROUND: Stillbirth, the death of a baby before birth, is associated with significant psychological and social consequences that can be mitigated by respectful and supportive bereavement care. The absence of high-level evidence to support the broad scope of perinatal bereavement practices means that offering a range of options identified as valued by parents has become an important indicator of care quality. This study aimed to describe bereavement care practices offered to parents across different high-income and middle-income countries. METHODS: An online survey of parents of stillborn babies was conducted between December 2014 and February 2015. Frequencies of nine practices were compared between high-income and middle-income countries. Differences in proportions of reported practices and their associated odds ratios were calculated to compare high-income and middle-income countries. RESULTS: Over three thousand parents (3041) with a self-reported stillbirth in the preceding five years from 40 countries responded. Fifteen countries had atleast 40 responses. Significant differences in the prevalence of offering nine bereavement care practices were reported by women in high-income countries (HICs) compared with women in middle-income countries (MICs). All nine practices were reported to occur significantly more frequently by women in HICs, including opportunity to see and hold their baby (OR = 4.8, 95% CI 4.0-5.9). The widespread occurrence of all nine practices was reported only for The Netherlands. CONCLUSIONS: Bereavement care after stillbirth varies between countries. Future research should look at why these differences occur, their impact on parents, and whether differences should be addressed, particularly how to support effective communication, decision-making, and follow-up care.

Rights

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Citation List Month

Special Edition #2

Citation

Horey D; Boyle FM; Cassidy J; Cassidy PR; Erwich JJHM; Gold KJ; Gross MM; Heazell AEP; Leisher SH; Murphy M; Ravaldi C; Siassakos D; Storey C; Vannacci A; Wojcieszek A; Flenady V, “Parents' experiences of care offered after stillbirth: An international online survey of high and middle-income countries,” Pediatric Palliative Care Library, accessed October 5, 2022, https://pedpalascnetlibrary.omeka.net/items/show/18078.

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