Health Care Professionals' Awareness of a Child's Impending Death
Title
Health Care Professionals' Awareness of a Child's Impending Death
Creator
Kobler K; Bell C; Kavanaugh K; Gallo A M; Corte C; Vincent C
Identifier
Publisher
Qualitative Health Research
Date
2020
Subject
case study; children; decision-making; end-of-life issues; Midwest; professional; qualitative; theory development
Description
Health care professionals' (HCPs) experiences during early pediatric end-of-life care were explored using a theory-building case study approach. Multiple data collection methods including observation, electronic medical record review, and semi-structured interviews were collected with 15 interdisciplinary HCPs across four cases. Within- and across-case analyses resulted in an emerging theory. HCPs' initial awareness of a child's impending death is fluid, ongoing, and informed through both relational and internal dimensions. Initial cognitive awareness is followed by a deeper focus on the child through time-oriented attention to the past, present, and future. HCPs engage in a "delicate dance of figuring out" key issues. Awareness was exemplified through four themes: professional responsibility, staying connected, grounded uncertainty, and holding in. The emerging theoretical model provides a framework for HCPs to assess their ongoing awareness, identify personal assumptions, and inform gaps in understanding when facilitating early end-of-life care discussions with families.
Rights
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Citation List Month
June 2020 List
URL Address
Collection
Citation
Kobler K; Bell C; Kavanaugh K; Gallo A M; Corte C; Vincent C, “Health Care Professionals' Awareness of a Child's Impending Death,” Pediatric Palliative Care Library, accessed September 28, 2023, https://pedpalascnetlibrary.omeka.net/items/show/17113.