'i Have To Live With The Decisions I Make': Laying A Foundation For Decision Making For Children With Life-limiting Conditions And Life-threatening Illnesses

Title

'i Have To Live With The Decisions I Make': Laying A Foundation For Decision Making For Children With Life-limiting Conditions And Life-threatening Illnesses

Creator

Bluebond-Langner M; Hargrave D; Henderson EM; Langner R

Identifier

10.1136/archdischild-2015-310345

Publisher

Archives Of Disease In Childhood

Date

2016

Subject

Communication; Cystic Fibrosis; Decision-making; Oncology; Qualitative Research

Description

The relationship between parents and clinician is critical to the care and treatment of children with life-limiting conditions (LLCs) and life-threatening illnesses (LTIs). This relationship is built and maintained largely in consultations. In this article we lay out factors that bear on the success of clinical consultations and the maintenance of the essential clinician-parent relationship at progression or deterioration of LLCs or LTIs. We suggest an approach to engaging parents in conversations about care and treatment that recognises and appreciates the dilemmas which clinicians and parents face and in so doing provides a way for everyone to live with the decisions that are made. A close analysis of a consultation at progression and excerpts of encounters among parents, clinician and researcher are used to illustrate our approach to research, analysis and development of recommendations for clinical practice.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

February 2017 List

Citation

Bluebond-Langner M; Hargrave D; Henderson EM; Langner R, “'i Have To Live With The Decisions I Make': Laying A Foundation For Decision Making For Children With Life-limiting Conditions And Life-threatening Illnesses,” Pediatric Palliative Care Library, accessed September 18, 2021, https://pedpalascnetlibrary.omeka.net/items/show/10725.

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