Eat, Sleep, Internet and Talk': An Exploratory Study of Play Profile for Children Living with Palliative Care Needs
Title
Eat, Sleep, Internet and Talk': An Exploratory Study of Play Profile for Children Living with Palliative Care Needs
Creator
Jasem ZA; Darlington AS; Lambrick D; Randall DC
Identifier
Publisher
Palliative Care Social Practice
Date
2022
Subject
palliative; care; play; vulnerable; children
Description
BACKGROUND: Play is central to children's lives. Children living with palliative care needs experience disruption in their play. In this study, we sought to discover the characteristics and patterns of children's play when receiving care in children's hospital wards and hospices in Kuwait and the United Kingdom. METHODS: A qualitative nonparticipatory observation design was used. Thirty-one children were observed, between the ages of 5 and 11 years, all diagnosed with life-limiting or life-threatening conditions and receiving palliative care. The data were analysed using content analysis. RESULTS: The children's illnesses were negatively impacting their ability to have typical play for their age and development. The children's interactive play was with grown-ups and very rarely with other children. This was associated with isolation precautions, the child's need for assistance and a lack of play resources that match children's physical and cognitive abilities. This gave rise to their engagement in more sedentary, solitary play. The findings of the study did not indicate significant cultural differences between the two countries. CONCLUSION: Children living with palliative care needs may be socially isolated due to their illnesses and their play participation can be limited. Understanding the influencing factors that determine these children's play is essential for implementing effective modifications to enhance their play routines.
Rights
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Citation List Month
October 2022 List
URL Address
Collection
Citation
Jasem ZA; Darlington AS; Lambrick D; Randall DC, “Eat, Sleep, Internet and Talk': An Exploratory Study of Play Profile for Children Living with Palliative Care Needs,” Pediatric Palliative Care Library, accessed April 28, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18394.