Browse Items (94 total)
- Tags: Follow-up Studies
Association between religious and socio-economic background of parents of children with solid tumors and DNR orders
Tags: 2014, Adolescent, Adult, Backlog, Child, Decision Making, Education, Female, Follow-up Studies, Hakim F, Hileli I, Humans, Infant, Journal Article, Male, Medical Records, Neoplasms, Parents, Pediatric Blood & Cancer, Postovsky S, Preschool, Prognosis, Religion, Resuscitation Orders, Retrospective Studies, Socioeconomic Factors, Survival Rate, Weyl Ben Arush M, Young Adult
Sick leave among parents of children with cancer - a national cohort study
Tags: 2017, Acta Oncologica, Adolescent, Adult, Child, Child Preschool, Cohort Studies, Female, Follow-up Studies, Hed MI, Hjelmstedt S, Hoven E, Humans, Infant, Infant Newborn, Lindahl NA, Male, Montgomery S, Neoplasms/diagnosis/epidemiology/psychology, Oncology 2018 List, Only Child, Parents/psychology, Prognosis, Registries, Sick Leave, Sick Leave/statistics & numerical data, Sweden/epidemiology
Joubert syndrome: long-term follow-up
Tags: 2004, Achilles Tendon/pathology/physiopathology, Backlog, Cerebellar Ataxia/physiopathology/radiography, Cerebellum/abnormalities/radiography, Child, Chong K, Developmental Disabilities/physiopathology/radiography, Developmental Medicine and Child Neurology, Disease Specific, Evoked Potentials, Eye Movements, Female, Follow-up Studies, Harris CM, Hodgkins PR, Humans, Journal Article, Kriss A, Magnetic Resonance Imaging, Male, Pigment Epithelium of Eye/pathology/physiopathology, Prognosis, Russell-Eggitt I, Shawkat FS, Taylor DS, Thompson DA, Timms C, Tomography, Visual, X-Ray Computed
Short-term safety assessment in the use of intravenous zoledronic acid in children
Tags: 2004, Adolescent, Ambler G, Backlog, Bone Resorption/metabolism/prevention & control, Calcium/blood, Child, Clodronate, Cowell CT, Creatinine/blood, Diphosphonates/administration & dosage/adverse effects, Female, Fever/chemically induced, Follow-up Studies, Hogler W, Humans, Imidazoles/administration & dosage/adverse effects, Infusions, Intravenous, Journal Article, Little D, Male, McQuade M, Nausea/chemically induced, Pain/chemically induced, Phosphorus/blood, Preschool, Retrospective Studies, The Journal Of Pediatrics, Time Factors, Urea/blood, Vomiting/chemically induced, Yap F
Parent and clinician preferences for location of end-of-life care: Home, hospital or freestanding hospice?
Tags: 2013, Adolescent, Alexander S, Attitude To Death, Backlog, Child, Choice Behavior, Female, Follow-up Studies, home care services, Hospice Care, Hospitals, Humans, Journal Article, Kassam A, Male, Neoplasms, Parents, Pediatric Blood & Cancer, Physicians, Preschool, Prognosis, Quality Of Life, Questionnaires, Residence Characteristics, Skiadaresis J, Terminal Care, Wolfe J
Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems
Tags: 2018, Akbari Sari A, Asian Pacific Journal Of Cancer Prevention, Cancer Care Facilities/og [Organization & Administration], Cancer Care Facilities/ut [Utilization], Child, Delivery of Health Care/og [Organization & Administration], Developing World 2018 List, Eshghi P, Follow-up Studies, Health Services Accessibility/og [Organization & Administration], Heravi Karimooi M, Humans, Khanali ML, Neoplasms/th [therapy], Palliative Care/og [Organization & Administration], Prognosis, Qualitative Research, Quality Of Health Care, Rassouli M, Shirin Abadi Farahani A, Tahmasebi M, Zendedel K
Family focused grief therapy: a randomized, controlled trial in palliative care and bereavement
Tags: 2006, Adult, Backlog, Bereavement, Bloch S, Caregivers/psychology, Depressive Disorder/therapy, Family Health, Family Relations, Family Therapy/methods, Family/psychology, Female, Follow-up Studies, Grief, Humans, Journal Article, Kissane DW, Longitudinal Studies, Male, McKenzie DP, McKenzie M, Middle Aged, Moskowitz C, O'Neill I, Palliative Care, Personality Inventory, Psychological/therapy, Social Adjustment, SSHRC CURA, Stress, Terminal Care, The American Journal Of Psychiatry, Treatment Outcome
Juvenile neuronal ceroid lipofuscinosis (JNCL): quantitative description of its clinical variability
A prospective comparative study of 2540 infants and children with newly diagnosed idiopathic thrombocytopenic purpura (ITP) from the Intercontinental Childhood ITP Study Group
Tags: 2003, Adolescent, Age Distribution, Anti-Inflammatory Agents/therapeutic use, Backlog, Berchtold W, Buchanan GR, Child, Female, Follow-up Studies, Humans, Idiopathic/drug therapy/epidemiology, Imbach P, Immunoglobulins, Incidence, Infant, Intercontinental Childhood ITP Study Group, Intravenous/administration & dosage/therapeutic use, Journal Article, Kohan R, Kuhne T, Male, Michaels LA, Prospective Studies, Purpura, Questionnaires, The Journal Of Pediatrics, Thrombocytopenic, Zimmerman S
Antenatal Palliative Care Consultation: Implications For Decision-making And Perinatal Outcomes In A Single-centre Experience
Tags: 2017, Adult, Archives of Disease in Childhood. Fetal and Neonatal Edition, Decision Making, Female, Follow-up Studies, Gollehon N, Humans, Infant Newborn, Kukora S, Laventhal N, Male, March 2017 List, Palliative Care/methods, Pregnancy, Pregnancy Outcome, Prenatal Care/methods, Referral And Consultation/organization & Administration, Retrospective Studies, Young Adult
Long-term follow-up, neurological outcome and survival rate in 28 Nordic patients with glutaric aciduria type 1
Tags: 2004, Adolescent, Adult, Amino Acid Metabolism, Backlog, Child, Christensen E, European Journal of Paediatric Neurology, Female, Finland/epidemiology, Follow-up Studies, Glutarates/urine, Glutaryl-CoA Dehydrogenase, Hagberg G, Holme E, Humans, Inborn Errors/complications/diagnosis/mortality, Infant, Journal Article, Kyllerman M, Lonnquist T, Male, Nervous System Diseases/etiology, Newborn, Oxidoreductases Acting on CH-CH Group Donors/deficiency, Preschool, Prognosis, Q3 Scoping Review Results, Rotwelt T, Scandinavia/epidemiology, Skjeldal O, Skov L, Survival Rate, Time Factors, von Dobeln U
Predictors of husbands' and wives' grief reactions following infant death: the role of marital intimacy
Long term posttraumatic growth after breast cancer: prevalence, predictors and relationships with psychological health
Tags: 2010, Adaptation, Adult, Aged, Attitude To Health, Backlog, Bonnaud-Antignac A, Breast Neoplasms/epidemiology/psychology, Cross-sectional Studies, Disease-Free Survival, Female, Florin A, Follow-up Studies, Humans, Journal Article, Journal Of Clinical Psychology In Medical Settings, Lelorain S, Middle Aged, Post-Traumatic/diagnosis/epidemiology/psychology, Predictive Value of Tests, Prevalence, Psychological, Quality Of Life/psychology, Retrospective Studies, Stress Disorders
Hospitalization for mental illness among parents after the death of a child.
Tags: 2005, Adult, Backlog, Bereavement, Child, Comparative Study, Death, Female, Follow-up Studies, Hospitalization/statistics & numerical data, Hospitals, Humans, Infant, Journal Article, Laursen TM, Li J, Life Change Events, Longitudinal Studies, Male, Mental Disorders/epidemiology, Middle Aged, Mood Disorders/epidemiology, Mortensen PB, Non-U.S. Gov't, Olsen J, Parents/psychology, Precht DH, Preschool, Psychiatric, Registries, Regression Analysis, Research Support, Risk, Schizophrenia/epidemiology, Sex Factors, Substance-Related Disorders/epidemiology, The New England Journal Of Medicine
Mortality in parents after death of a child in Denmark: A nationwide follow-up study.
Tags: 2003, Adolescent, Adult, Backlog, Bereavement, Cause Of Death, Child, Death, Denmark/epidemiology, Female, Follow-up Studies, Health Status, Humans, Incidence, Infant, Journal Article, Lancet, Li J, Life Change Events, Longitudinal Studies, Male, Mortality, Mortensen PB, Olsen J, Parents/psychology, Population Surveillance, Precht DH, Preschool, Proportional Hazards Models, Registries, Risk Factors, Sex Distribution, SSHRC CURA, Time Factors
Handgrip strength and mortality in the oldest old population: the Leiden 85-plus study
Tags: 2010, 80 And Over, Activities of Daily Living, Aged, Backlog, Canadian Medical Association Journal, Cardiovascular Diseases, Comorbidity, de Craen Anton JM, Depression, Disability Evaluation, Female, Follow-up Studies, Gussekloo J, Hand Strength, Humans, Journal Article, Kaplan-Meier Estimate, Ling CHY, Maier AB, Male, Mortality, Muscle Strength Dynamometer, Netherlands, Neuropsychological Tests, Prospective Studies, Study Design, Taekema D, Westendorp RG
Shared Spiritual Beliefs between Adolescents with Cancer and Their Families
Tags: 2020, 2021 Special Edition - Oncology, Adolescent, Adolescent Behavior, Adolescents, Adult, Advance Care Planning/statistics & Numerical Data, Baker JN, Cancer, Cheng YI, congruence, Cross-sectional Studies, Decision Making, Family, Family/psychology, Female, Follow-up Studies, Friebert S, funding from the American Cancer Society to adapt/translate this protocol into, Humans, Livingston J, Longitudinal Studies, Lyon ME, Male, Neoplasms/psychology/therapy, Pediatric Blood & Cancer, Prognosis, Quality Of Life, Religion and Medicine, Single-Blind Method, Spanish. There are no other conflicts of interest to disclose., Spirituality, study from the National Institutes of Health. Maureen E. Lyon is also receiving, Thompkins J, Tweddle M, Wang J, Young Adult
Brief report: family-based group intervention for young siblings of children with chronic illness and developmental disability
Tags: 2005, Adaptation, Adolescent, Adult, Analysis of Variance, Attitudes, Backlog, Child, Chronic Disease, Developmental Disabilities, Family Therapy, Female, Follow-up Studies, Health Knowledge, Humans, Infant, Intervention, Interventions, Journal Article, Journal of Pediatric Psychology, Kao BT, Lobato DJ, Male, PedPal Lit, Practice, Preschool, Psychological, sibling bereavement, Siblings, Social Adjustment
Polyethylene glycol without electrolytes for children with constipation and encopresis
Tags: 2002, Adolescent, Backlog, Child, Constipation/therapy, Encopresis/therapy, Female, Follow-up Studies, Humans, Iowa, Journal Article, Journal Of Pediatric Gastroenterology And Nutrition, Loening-Baucke V, Male, Non-U.S. Gov't, Polyethylene Glycols/therapeutic use, Preschool, Prospective Studies, Research Support, Time Factors
A Longitudinal, Randomized, Controlled Trial Of Advance Care Planning For Teens With Cancer: Anxiety, Depression, Quality Of Life, Advance Directives, Spirituality
METHODS:
Adolescent (age 14-20 years)/family dyads (N = 30) with a cancer…
Tags: 2014, Adolescent, Adult, Advance Care Planning, Advance Care Planning/statistics & Numerical Data, Advance Directive, Advance Directives/psychology, Advance Directives/statistics & Numerical Data, African-american, Anxiety/complications, Anxiety/psychology, Cancer, Communication, Decision-making, Depression/complications, Depression/psychology, End Of Life, Family, Family Intervention, Feasibility Studies, Female, Follow-up Studies, Humans, Journal of Adolescent Health, July 2016 List, Longitudinal Studies, M.E. Lyon, Male, Neoplasms/complications, Neoplasms/psychology, Patient Satisfaction/statistics & Numerical Data, Pediatric Palliative Care, Quality Of Life/psychology, Spirituality, Surveys And Questionnaires, United States, Wang J, Young Adult
Long-term use of peripherally inserted central venous catheters for cancer chemotherapy in children
Tags: 2006, Adolescent, Adult, Antineoplastic Agents/administration & dosage, Backlog, Catheterization, Central Venous/adverse effects, Child, Female, Follow-up Studies, Hara T, Hatano M, Hattori S, Hematologic Tests, Humans, Incidence, Infant, Infusions, Intravenous, Journal Article, Koga Y, Male, Matsuzaki A, Neoplasms/drug therapy, Non-U.S. Gov't, PedPal Lit, Preschool, Research Support, Retrospective Studies, Risk Factors, Suminoe A, Support Care Cancer
Efficacy and tolerability of levetiracetam versus phenytoin after supratentorial neurosurgery
Tags: 2008, 80 And Over, Adult, Aged, Anticonvulsants/administration & dosage/adverse effects, Backlog, Brain Injuries/complications/surgery, Brain/drug effects/physiopathology/surgery, Bromfield EB, Drug Tolerance/physiology, Drug Toxicity, Epilepsy/drug therapy/etiology/prevention & control, Female, Follow-up Studies, Humans, Hurwitz S, Journal Article, Male, Middle Aged, Milligan TA, Neurology, Neurosurgical Procedures/adverse effects, Phenytoin/administration & dosage/adverse effects, Piracetam/administration & dosage/adverse effects/analogs & derivatives, Postoperative Complications/drug therapy/prevention & control, Retrospective Studies, Supratentorial Neoplasms/complications/surgery, Treatment Outcome
Neuronal ceroid-lipofuscinosis: A clinical and morphological study of 19 patients.
Tags: 1995, Adolescent, Adult, Age of Onset, American Journal Of Medical Genetics, Angelini L, Atrophy, Backlog, Binelli S, Brain/pathology/radiography, Bugiani O, Cerebellum/pathology, Child, Female, Follow-up Studies, Humans, Infant, Journal Article, Longitudinal Studies, Magnetic Resonance Imaging, Male, Nardocci N, Neuronal Ceroid-Lipofuscinoses/diagnosis/physiopathology, Preschool, Time Factors, Tomography, Verga ML, X-Ray Computed, Zorzi G
Neurologic presentations of mitochondrial disorders
Tags: 2000, Backlog, Barash V, Brain Diseases, Child, Deafness/diagnosis/genetics, Developmental Disabilities/diagnosis/genetics, Fattal-Valevski A, Female, Follow-up Studies, Gutman A, Harel S, Humans, Inborn/diagnosis/genetics, Journal Article, Journal of Child Neurology, Lerman-Sagie T, Lev D, Male, MELAS Syndrome/diagnosis/genetics, Mental Retardation/diagnosis/genetics, MERRF Syndrome/diagnosis/genetics, Metabolic, Mitochondrial Myopathies/diagnosis/genetics, Neurologic Examination, Nissenkorn A, Q3 Scoping Review Results, Watemberg N, Zeharia A
Seizures in children with congenital hydrocephalus: long-term outcome
A follow up study of myocardial involvement in patients with mitochondrial encephalomyopathy, lactic acidosis, and stroke-like episodes (MELAS)
Tags: 1998, Adolescent, Adult, Aotsuka H, Backlog, Child, Echocardiography, Electrocardiography, Female, Follow-up Studies, Heart (british Cardiac Society), Humans, Hypertrophy, Journal Article, Left Ventricular/physiopathology/ultrasonography, Male, MELAS Syndrome/physiopathology/ultrasonography, Okajima Y, Q3 Scoping Review Results, Stroke Volume, Takayanagi M, Tanabe Y
Serious adverse events after measles-mumps-rubella vaccination during a fourteen-year prospective follow-up
Tags: 2000, Adolescent, Adult, Adverse Drug Reaction Reporting Systems, Backlog, Child, Davidkin I, Drug Hypersensitivity/etiology, Female, Finland, Follow-up Studies, Humans, Infant, Journal Article, Kallio MJ, Kurki T, Male, Measles-Mumps-Rubella Vaccine/adverse effects, Nervous System Diseases/etiology, Non-U.S. Gov't, Patja A, Peltola H, Preschool, Prospective Studies, Research Support, The Pediatric Infectious Disease Journal, Vaccination, Valle M
Neurologically impaired children and digestive problems
Tags: 2006, Adolescent, Archives de Pediatrie, Backlog, Botulinum Toxin Type A/administration & dosage, Brain Damage, Capito C, Child, Chronic/complications/therapy, Disabled Children, Enteral Nutrition, Follow-up Studies, France, Fundoplication, Gastric Acidity Determination, Gastroesophageal Reflux/complications/therapy, Gastroscopy, Heloury Y, Humans, Infant, Injections, Intramuscular, Journal Article, Leclair MD, Podevin G, Preschool, Prospective Studies, Protein-Energy Malnutrition/etiology/therapy, Q3 Scoping Review Results, Treatment Outcome
Peroxisome biogenesis disorders with prolonged survival: phenotypic expression in a cohort of 31 patients
Tags: 2004, Admiraal RJ, Adolescent, Adult, American Journal Of Medical Genetics.Part A, Backlog, Barth PG, Child, Cohort Studies, de Klerk JB, Developmental Disabilities/pathology, Duran M, Eye Diseases/pathology, Face/abnormalities, Female, Follow-up Studies, Gootjes J, Growth Disorders/pathology, Humans, Infant, Journal Article, Kidney/pathology, Liver/pathology, Male, Membrane Proteins/genetics, Mutation, Peroxisomal Disorders/genetics/mortality/pathology, Phenotype, Poll-The BT, Preschool, Q3 Scoping Review Results, Seizures/pathology, Spleen/pathology, Survival Rate, Time Factors, Wanders RJ, Waterham HR, Wenniger-Prick LJ
Spiritual aspects of loss among partners of men with AIDS: postbereavement follow-up
Tags: 1999, Acquired Immunodeficiency Syndrome/psychology, Acree M, Adaptation, Backlog, Bereavement, Caregivers/psychology, Cohort Studies, Death studies, Folkman S, Follow-up Studies, Homosexuality, Humans, Journal Article, Male, Male/psychology, Psychological, Religion and Psychology, Richards TA, San Francisco, United States
The impact on health-related quality of life from non-steroidal anti-inflammatory drugs, methotrexate, or steroids in treatment for juvenile idiopathic arthritis
Tags: 2006, Adolescent, Anti-Inflammatory Agents, Antirheumatic Agents/adverse effects/therapeutic use, Arthritis, Backlog, Browne RH, Child, Comparative Study, Female, Follow-up Studies, Gatchel RJ, Glucocorticoids/adverse effects/therapeutic use, Health Status, Humans, Infant, Journal Article, Journal of Pediatric Psychology, Juvenile Rheumatoid/drug therapy, Male, Methotrexate/adverse effects/therapeutic use, Methylprednisolone/adverse effects/therapeutic use, Morton AA, Multivariate Analysis, Non-Steroidal/adverse effects/therapeutic use, PedPal Lit, Preschool, Punaro MG, Quality Of Life, Riddle R, Ryser CN, Sampson JD
Long-term effects of the death of a child on parents' adjustment in midlife
Tags: 2008, Adaptation, Adolescent, Adult, Backlog, Bereavement, Bereavement Leave Policy Paper, Death, Depressive Disorder/diagnosis/etiology/psychology, Family Conflict/psychology, Female, Floyd FJ, Follow-up Studies, Greenberg J, Grief, Health Status, Hong J, Humans, Journal Article, Journal Of Family Psychology, Longitudinal Studies, Male, Marriage/psychology, Middle Aged, Parents/psychology, Psychiatric Status Rating Scales, Psychological, Psychological/diagnosis/etiology/psychology, Rogers CH, Seltzer MM, Stress, Time, Wisconsin
Buffers for the bereaved: the impact of social factors on the emotional health of bereaving parents
Tags: 1984, Adaptation, Adult, Anxiety Disorders - psychology, Backlog, Bereavement Leave Policy Paper, Child, Cultural Characteristics, Depressive Disorder/psychology, Ethnic Groups/psychology, Female, Follow-up Studies, Grief, Humans, Infant, Interpersonal Relations, Israel, Journal Article, Male, Obsessive-Compulsive Disorder/psychology, Parents/psychology, Preschool, Psychological, Roskin M, Social Environment, Socioeconomic Factors, Somatoform Disorders/psychology, The International Journal Of Social Psychiatry
The forgotten griever: a nationwide follow-up study of mortality subsequent to the death of a sibling
Tags: 2012, Adolescent, Adult, Age Factors, Aged, American Journal Of Epidemiology, Backlog, Bereavement, Cause Of Death, Female, Follow-up Studies, Humans, Journal Article, Kawachi I, Male, Middle Aged, Mortality, Proportional Hazards Models, Registries, Rostila Mikael, Saarela J, Sex Factors, sibling bereavement, Siblings, Sweden, Young Adult
Safety and efficacy of rosuvastatin therapy for the prevention of hyperlipidemia in adult cardiac transplant recipients
Tags: 2005, 80 And Over, Aged, Backlog, Cohort Studies, Comparative Study, Control, dosage, Dose-Response Relationship, Drug, Drug Administration Schedule, Female, Fluorobenzenes/administration &, Follow-up Studies, Frolich J, Graft Rejection, Graft Survival, Heart Transplantation/adverse effects/methods, Humans, Humphries K, Hyperlipidemia/drug therapy/prevention &, Ignaszewski A, Imai C, Journal Article, Male, Middle Aged, Postoperative Complications/prevention &, Prospective Studies, Pyrimidines/administration &, Risk Assessment, Samman A, Straatman L, Sulfonamides/administration &, Survival Rate, The Journal Of Heart And Lung Transplantation : The Official Publication Of The International Society For Heart Transplantation, Treatment Outcome
Survival without disability to age 5 years after neonatal caffeine therapy for apnea of prematurity
Tags: 2012, Anderson PJ, Apnea/drug therapy, Asztalos EV, Backlog, Barrington KJ, Blindness/epidemiology/etiology/prevention & control, Caffeine/adverse effects/therapeutic use, Central Nervous System Stimulants/adverse effects/therapeutic use, Cerebral Palsy/epidemiology, Child, Child Development, Cognition Disorders/epidemiology/etiology/prevention & control, Davis PG, Deafness/epidemiology/etiology/prevention & control, Developmental Disabilities/epidemiology/etiology/prevention & control, Dewey D, Doyle LW, Female, Follow-up Studies, Grunau RE, Humans, Incidence, Infant, JAMA, Journal Article, Male, Moddemann D, N2N, Newborn, Odds Ratio, Ohlsson A, Premature, Preschool, Roberts RS, Schmidt B, Solimano A, Survival Analysis, Tin W, Treatment Outcome, Trial Investigators Caffeine for Apnea of Prematurity (CAP), Very Low Birth Weight
Efficacy and tolerance of gastrostomy feeding in pediatric forms of neuromuscular diseases
Tags: 2002, Adolescent, Adult, Child, Child Preschool, Cuisset J, Devos P, Enteral Nutrition, feeding difficulties, Female, Follow-up Studies, Gastroesophageal Reflux, Gastroesophageal Reflux/complications, Gastrostomy, GERD, Gottrand F, Guimber D, Humans, Infant, Infant Newborn, Journal Of Parenteral And Enteral Nutrition, Male, Michaud L, Neuromuscular Diseases/complications/therapy, Nutritional Status, Percutaneous Endoscopic Gastrostomy, Seguy D, SMA type I, surgical intervention, Treatment Outcome, Turck D, Weight Gain
Causal links between stressful events, coping style, and adolescent symptomatology
Surviving cancer in childhood can mean lifelong health issues
Tags: 2006, Adolescent, Adult, Backlog, Cataract/etiology, Child, Follow-up Studies, Graft vs Host Disease, Health Status, Hearing Loss/etiology, Hematopoietic Stem Cell Transplantation/adverse effects, Humans, Journal Article, Lancet Oncology, Pain/etiology, PedPal Lit, Senior K, Survivors, Vision Disorders/etiology
Living with cerebral palsy and tube feeding: A population-based follow-up study
Tags: 1999, Activities of Daily Living, Adaptation, Adolescent, Adult, Attitude To Health, Backlog, Camfield C, Camfield P, Caregivers/psychology, Cerebral Palsy/mortality/psychology/therapy, Child, Community Health Planning, Enteral Nutrition/adverse effects/psychology, Follow-up Studies, Gastrostomy/adverse effects/psychology, Humans, Infant, Jejunostomy/adverse effects/psychology, Journal Article, Nova Scotia/epidemiology, Nutritional Failure, Parents/psychology, Precipitating Factors, Preschool, Psychological, Quality Of Life, Questionnaires, Smith SW, Survival Analysis, The Journal Of Pediatrics