Measuring a Patient Reported Outcome: A Pediatric Palliative Care Nationwide QI Collaborative
Title
Measuring a Patient Reported Outcome: A Pediatric Palliative Care Nationwide QI Collaborative
Creator
Autrey A; Thienprayoon R; Jones E
Identifier
Publisher
Journal of Pain and Symptom Management
Date
2025
Description
Introduction: Pediatric palliative care (PPC) aims to enhance the quality of life of children and families facing serious illness. Subsequently, patient reported outcomes (PRO) are crucial; however, development of valid, useful tools for our field has faced several population-specific challenges. In 2022, the Pediatric Palliative Improvement Network (PPIN) developed a collaborative project to increase the assessment of patient and family experiences with PPC services, including one of the two patient reported palliative care quality measures identified by AAHPM in 2021. Objective: By December 31, 2022, our collaborative aimed for: 10 sites contributing data, 50% of eligible PPC patients’ experiences being assessed, and 25% response rate.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
June List 2025
URL Address
Collection
Citation
Autrey A; Thienprayoon R; Jones E, “Measuring a Patient Reported Outcome: A Pediatric Palliative Care Nationwide QI Collaborative,” Pediatric Palliative Care Library, accessed June 6, 2026, https://pedpalascnetlibrary.omeka.net/items/show/20098.