Narrative Diaries in Paediatric Palliative Care: A Scoping Review

Narrative Diaries in Paediatric Palliative Care: A Scoping Review

Marinetto A; Carraro C; Santini A; Lazzarin P; Benini F; Zanin A

Acta Paediatrica

2025

Aim: The aim of the study was to offer a comprehensive overview about literature on narrative diaries in paediatric palliative care. Methods: A scoping review was conducted in accordance with the methods of Arksey and O'Malley. Results: Among 83 studies, nine met the inclusion criteria. In the majority of publications (six research, 66%), the principal objective of employing diaries was to examine the disease experiences of children from the familial viewpoint. Three studies were focused on the feasibility of the diary to get information enhancing the understanding of real-life experiences of patients. The most common diarists are parents (five studies, 55%), followed by young patients (two studies, 22%) and close relatives (one study, 11%). The most common type of diary is the paper diary (seven studies, 77%). App-diary and audio recorders are also reported. Conclusion: Current literature has demonstrated a limited use of diaries in paediatric palliative care. They could represent a valid tool that can enable healthcare providers an enhanced understanding of the child and family's experiences and needs comprehensively.

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