The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study

Title

The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study

Creator

Joren CY; Aris-Meijer JL; Kremer LCM; Hofman SC; Rippen-Wagner H; Slingerland-Blom R; van der Velden C; Schuiling-Otten MA; Verhagen AAE; Kars MC

Publisher

Children

Date

2024

Subject

health care planning; palliative therapy; Likert scale; adult; advance care planning; article; caregiver support; child; clinical article; clinical decision making; cross-sectional study; family centered care; female; follow up; health care personnel; hospitalization; human; illness trajectory; interpersonal communication; male; mobile application; mortality; perception; person centered care; questionnaire; semi structured interview; shared decision making; terminal care; thematic analysis

Description

Background/Objective: The Individual Care Plan (ICP) for pediatric palliative care was developed to provide person-centered care for the individual child and family. Currently, a lack of clarity remains regarding the use and function of the ICP in daily practice. To further implement the ICP, it is important to identify how parents and healthcare professionals use the ICP and which obstacles or benefits are experienced. <br/>Method(s): This mixed-method study used qualitative interviews and quantitative questionnaires in (bereaved) parents and healthcare professionals with experience with the ICP. <br/>Result(s): Parents and healthcare professionals used the ICP to establish a joint plan for care and treatment of the child to coordinate care and to achieve child- and family-centered care. This includes both obstacles that complicate achieving care goals and benefits that make it easier. Furthermore, responsibilities for the ICP remained unclear, and there was no set point in the illness trajectory for drawing up the ICP. <br/>Conclusion(s): Parents and healthcare professionals use the ICP as intended. However, uncertainties regarding timing, roles and responsibilities prevent optimal use of the ICP. Agreements on timing and responsibilities are needed for further ICP implementation in daily pediatric palliative care practice.<br/>Copyright &#xa9; 2024 by the authors.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November List 2024

Collection

Citation

Joren CY; Aris-Meijer JL; Kremer LCM; Hofman SC; Rippen-Wagner H; Slingerland-Blom R; van der Velden C; Schuiling-Otten MA; Verhagen AAE; Kars MC, “The Practical Application of the Individual Care Plan for Pediatric Palliative Care: A Mixed-Method Study,” Pediatric Palliative Care Library, accessed February 17, 2025, https://pedpalascnetlibrary.omeka.net/items/show/19778.