Suffering in children and adolescents in paediatric palliative care in Spain: Psychometric properties of the qESNA scale
Title
Suffering in children and adolescents in paediatric palliative care in Spain: Psychometric properties of the qESNA scale
Creator
Toro-Perez D; Limonero JT; Bolance C; Guillen M; Navarro Vilarrubi S; Camprodon-Rosanas E
Identifier
Publisher
Anales de Pediatria
Date
2024
Subject
Spain; palliative therapy; psychologic assessment; Cronbach alpha coefficient; adolescent; anxiety; article; child; clinical practice; confirmatory factor analysis; controlled study; convergent validity; correlation coefficient; cross-sectional study; depression; diagnosis; emotional disorder; factor analysis; female; human; longitudinal study; major clinical study; male; mental disease; receiver operating characteristic; reliability; root mean squared error; sensitivity and specificity; social psychology
Description
Objective: To analyze the psychometric properties of the qESNA scale and its usefulness to assess the suffering of paediatric patients with life-limiting and/or life-threatening diseases (children with LLTC) in clinical practice. <br/>Method(s): Cross-sectional and longitudinal study in 58 patients in Spain (female, 32.8%; mean age, 15.6 [SD, 4.5]; age range, 8-23 years), with administration of the qESNA scale along with other scales to assess anxiety, depression, emotional changes and psychosocial functioning. We performed exploratory and confirmatory factor analyses and calculated goodness-of-fit indices were calculated; we assessed reliability by means of the Cronbach alpha and temporal stability and convergent validity through the intraclass correlation coefficient with scales used to assess psychological disorders and the specificity and sensitivity through ROC curves. <br/>Result(s): The factor analysis identified a 14-item scale with 3 factors, a comparative fit index of 0.93, a Tucker-Lewis index of 0.91 and a root mean square error of approximation of 0.07. the Cronbach alpha was 0.85 and the intraclass correlation coefficient was 0.66. The convergent validity was high for the correlation to the risk of depression (-0.69) and of anxiety (-0.60) and emotional changes (-0.59). The analysis of the ROC curves showed that a score of less than 81 would be indicative of suffering, with a sensitivity of 83.33% and a specificity of 93.48%. <br/>Conclusion(s): This study confirmed that the psychometric properties of the qESNA scale are good and the scale's usefulness as an instrument to detect emotional suffering in children with life-limiting or life-threatening illnesses in clinical practice.<br/>Copyright © 2024
Rights
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Citation List Month
October List 2024
URL Address
Collection
Citation
Toro-Perez D; Limonero JT; Bolance C; Guillen M; Navarro Vilarrubi S; Camprodon-Rosanas E, “Suffering in children and adolescents in paediatric palliative care in Spain: Psychometric properties of the qESNA scale,” Pediatric Palliative Care Library, accessed February 8, 2025, https://pedpalascnetlibrary.omeka.net/items/show/19746.