Prognostic Disclosure to Dying Adolescents Against Parental Wishes: A Point-Counter Point Debate

Prognostic Disclosure to Dying Adolescents Against Parental Wishes: A Point-Counter Point Debate

Tanious MK; Goodrich G; Pedigo V; Ozark S; Arenth J

HEC Forum

2024

Pediatrics; Prognosis; Disclosure; Shared decision-making

An adolescent's last moment of life is an emotionally and medically complex time. Children may grapple with understanding the things happening to them and with grief of a future lost; caregivers struggle to simultaneously balance deep sorrow, hope, and love; and healthcare providers fight to maintain sound medical and ethical decision making. Increased discussion regarding adolescent end-of-life care is needed so that clinicians may better understand how to engage in ethically based medical management during these events. This holds particularly true in situations where potentially conflicting ideas exist between clinicians and family members. We describe the case of an acutely and terminally ill adolescent who remained cognitively intact but with rapidly advancing multiple organ failure and whose parents requested that he remain uninformed of his critical illness and prognosis.

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June List 2024