Rights of the Dying Child: The Nurses' Perception
Title
Rights of the Dying Child: The Nurses' Perception
Creator
Lazzarin P; Marinelli E; Orzalesi M; Brugnaro L; Benini F
Identifier
Publisher
Journal of Palliative Medicine
Date
2018
Subject
Child; pediatrics; adult; article; female; human; major clinical study; male; Italy; quality of life; awareness; Only Child; dying; Likert scale; cross-sectional study; health care planning; multicenter study; questionnaire; work experience; pediatric hospital; ward; patient right; nurse attitude; human rights; postgraduate education
Description
Aim: The Charter of the Rights of the Dying Child was formulated as a professional guide for caring the child in the final stages. The study examines the nurses' degree of agreement with the Charter's principles and their perception of the implementation of those principles in hospital. Material(s) and Method(s): A multicenter, cross-sectional study to observe the nurses' positions about the 10 rights outlined in the Charter, using an online questionnaire in 5 pediatric hospitals in northern Italy. Result(s): A total of 119 nurses (44.9%) completed the questionnaire. The majority (range: 86.6-100%) expressed their agreement with the Charter's principles (Likert >=4). Lower ratings were reported in Charter's principles implementation items (range: 42.9-89.1%). Being older and working in a smaller hospital lead the nurses to overlook the child's right to be informed and to be given the opportunity to make decisions about his/her own life and death (p = 0.02, p < 0.01). Postgraduate training induced greater awareness of the dying child (p = 0.01). Conclusion(s): This study highlights the value of the Charter of the Rights of the Dying Child as a reference guideline for nurses working in pediatric hospitals. Better training is important to improve the nurse's communication skills and the pediatric palliative care should be offered to all families that have a child with incurable disease mostly in the end of life.Copyright © 2018 Mary Ann Liebert, Inc.
Rights
Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).
Citation List Month
URL Address
Collection
Citation
Lazzarin P; Marinelli E; Orzalesi M; Brugnaro L; Benini F, “Rights of the Dying Child: The Nurses' Perception,” Pediatric Palliative Care Library, accessed February 17, 2025, https://pedpalascnetlibrary.omeka.net/items/show/19587.