Perception of Pediatric Oncology Family Care Providers toward Palliative Care and Its Perceived Barriers in Egypt

Title

Perception of Pediatric Oncology Family Care Providers toward Palliative Care and Its Perceived Barriers in Egypt

Creator

Mohamed MA; Ibrahim AM; Ibrahim HM; Abdella N; Elmowafy RI

Publisher

Palliative and Supportive Care

Date

2022

Subject

Attitude; Barriers; Knowledge; Oncology; Palliative care; Practice

Description

BACKGROUND: Palliative care is comprehensive supportive care addressing the suffering, pain, discomfort, symptoms, and stress of cancer and any serious life-threatening disease. It is a key part of care for our children living with cancer and is an important source of support for their families. The study aimed to assess the perception of pediatric oncology family care providers toward palliative care and its perceived barriers in Egypt. METHOD(S): Total number of 500 oncology children's family care providers was recruited. A descriptive research design was utilized. Researchers used three tools as Structured Interview Questionnaire to assess the participants' knowledge and perceived barriers, Attitude toward palliative care Likert Scale, and Reported Practices Observational Checklist. The study was conducted in outpatient cancer clinics affiliated with El-Nasr governmental hospital located at Port Said governorate. RESULT(S): 51.8% of the total oncology children's family care providers had sufficient knowledge, 78.6% had a positive attitude, while,76.8% of them had inappropriate Practice towards palliative care. SIGNIFICANCE OF RESULTS: The pediatric oncology family care providers had sufficient knowledge and a positive attitude toward palliative care, but their practices were inappropriate. Also, the majority of participants identified Lack of family care providers training in pediatric palliative care and improper communication between the health team and family care providers as the main barriers to providing palliative care to children. Providing a palliative care training program for family caregivers through continuing professional development is highly recommended besides further research studies using large probability samples at different settings.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

2022 Special Edition Low Resource Setting Issue

Citation

Mohamed MA; Ibrahim AM; Ibrahim HM; Abdella N; Elmowafy RI, “Perception of Pediatric Oncology Family Care Providers toward Palliative Care and Its Perceived Barriers in Egypt,” Pediatric Palliative Care Library, accessed June 15, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18710.