The Experiences of Parents of Children in Pediatric Palliative Care: A Qualitative Study

Title

The Experiences of Parents of Children in Pediatric Palliative Care: A Qualitative Study

Creator

Karakul A; Kıratlı D; Akgül AE; Çelik T

Publisher

Journal of Pediatric Nursing

Date

2022

Subject

Experience; Mothers; Pediatric palliative care; Qualitative study

Description

PURPOSE: This study aims to better understand the experiences of mothers of children receiving pediatric palliative care. DESIGN AND METHODS: The qualitative phenomenological method was used to determine the mothers' experiences. The study sample included 15 mothers. Individual interviews, an introductory information form and a semi-structured interview form were used for data collection. The data were analyzed with Colaizzi's seven-step method. MAXQDA was used for coding and creating themes. RESULTS: Three main themes of the interviews emerged; family experiences, social life and care in the palliative care unit. The mothers said that family relationships were affected, that they experience fear of loss, that they experience depression, that all responsibility for treatment and care lies with the mothers, and that there is no social support. Mothers said that they are in the same place as mothers of children in similar situations and that they are happy and comfortable because they have single rooms. In addition, the mothers stated that they are very afraid of the COVID-19 virus infecting their children and therefore losing their children. CONCLUSIONS: The mothers experienced some problems such as fear of loss, depression, care burden, social support, exclusion, daily life, social relationships, feeling safe, and emotional effect. PRACTICE IMPLICATIONS: Pediatric nurses need to understand mothers' anxiety, grief, relationships with their children, and coping strategies to provide support.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

November 2022 List

Collection

Citation

Karakul A; Kıratlı D; Akgül AE; Çelik T, “The Experiences of Parents of Children in Pediatric Palliative Care: A Qualitative Study,” Pediatric Palliative Care Library, accessed May 30, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18559.