Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method

Parental Perspective in Paediatric Palliative Care: A Systematic Review of Literature Using the PRISMA Method

Srivastava R; Srivastava S

Indian Journal of Palliative Care

2022

Communication; Pediatric palliative care; Decision-making; Systematic review; Parental concerns; Perspective

Research in Parental Perspectives are pivotal in gaining understanding of parents' experiences, issues, concerns and attitude in pediatric palliative care which affects their decision making. However only a limited number of such studies have included the first-person perspective of Parents. The aim of this article is to understand the contribution of previous research on parental perspectives in pediatric palliative care through a systematic review of literature. Nine articles that met the inclusion criteria were accessed and seven key themes emerged; Psychological perspective, parental concerns, parental needs, parental attitude, spiritual perspective, cultural perspective and financial perspective. This review highlights requirement of more research into parental perspective if possible, covering all key aspects along with additional research in cultural perspective and development of validated tools, checklists and psychometric questionnaires for the assessment of these perspectives in various domains: spiritual, financial, psychological, cultural and social.

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

September 2022 List