The Impact of Caring for Children With Severe Neurological Impairment on Clinicians

Title

The Impact of Caring for Children With Severe Neurological Impairment on Clinicians

Creator

Bogetz JF; Trowbridge A; Jonas D; Root MC; Mullin J; Hauer J

Publisher

Clinical Pediatrics

Date

2022

Subject

pediatric; palliative care; education; disability; burnout; workforce

Description

Clinicians face many challenges in caring for children with severe neurological impairment (SNI). This study aimed to understand expert clinician perspectives on the personal impact of caring for children with SNI to highlight the challenges and potential solutions by underscoring the aspects of care that can be sustaining. Twenty-five clinicians participated including physicians (n = 8, 32%), social workers (n = 5, 20%), nurses/nurse practitioners (n = 5, 20%), case managers (n = 3, 12%), developmental therapists (n = 2, 8%), and other psychosocial clinicians (n = 2, 8%). Clinicians represented a variety of specialties including complex care/hospitalists (n = 10, 19%), palliative care (n = 7, 13%), and critical care (n = 6, 12%). Thematic content analysis revealed 3 major themes: (1) worries and challenges; (2) positive impact from being present; and (3) personal growth and meaning-making. Many clinicians described the ways listening, examining biases, learning about family perspectives, and normalizing the need for emotional processing helped them to understand their patients, families, and themselves more deeply.

Rights

Article information provided for research and reference use only. PedPalASCNET does not hold any rights over the resource listed here. All rights are retained by the journal listed under publisher and/or the creator(s).

Citation List Month

August 2022 List

Collection

Citation

Bogetz JF; Trowbridge A; Jonas D; Root MC; Mullin J; Hauer J, “The Impact of Caring for Children With Severe Neurological Impairment on Clinicians,” Pediatric Palliative Care Library, accessed March 29, 2024, https://pedpalascnetlibrary.omeka.net/items/show/18164.