Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review

Title

Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review

Creator

Gardiner E; Wong V; Lin G; Miller AR

Publisher

BMC Health Services Research

Date

2022

Subject

Terminology; Descriptions; Neurodisability; Families; Children; Scoping review

Description

Children with neurodisability (ND) represent a significant population with a demonstrated need for coordinated support. Patient navigation has a primary focus on: facilitating access to and connection amongst fragmented systems; as well as the provision of educational and emotional support. Given the distinct needs of children with ND and their families, programs built upon such core concepts could be of great benefit. The diversity of terminology encompassing navigation-related concepts and activities (e.g., care coordination, case management, family support), however, presents challenges to both practice and research. This scoping review examined the terminology and descriptions provided within published articles on navigation-type models for children with ND and their families.

Citation List Month

April 2022 List

Collection

Citation

Gardiner E; Wong V; Lin G; Miller AR, “Terminology and descriptions of navigation and related practices for children with neurodisability and their families: a scoping review,” Pediatric Palliative Care Library, accessed November 28, 2022, https://pedpalascnetlibrary.omeka.net/items/show/18037.

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